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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Has Anyone With Dermatitis Herpetiformis Tried Terrasil?
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ncallier    2

Has anyone with dermatitis herpetiformis tried Terrasil? I am suffering horribly from some skin problem that I think is associated with my Celiac Disease, but I really don't know what it is because I can't get any of my doctors to examine it. They just suggest that I hand it off to someone else

Sorry, but I must vent a little bit! I have unresponsive doctors whose only advise is to adopt a gluten free lifestyle and see another specialist for my symptoms. They ALL obviously think that I am too stupid or something on that order to understand what that means, because that is all they can offer in the way of relief.

Immediately upon getting my diagnosis, I did and continue to follow a gluten free lifestyle. I do not cheat; I try very hard to make sure that my family/ I do not cross contaminate any surfaces or food that I come in contact with.

I really don't know what to do at this point. I have screamed and cried and cursed and fumed at the lack of care from the doctors that I have loved and admired over the years.

Please respond! I need some support and don't feel that I am getting any from my doctors, i.e. allergist, gastroenterologist, endocrinologist, general practiticioner, dermatologist...

Also, please forgive my pity party, but I feel so lost and alone. (I even hate that I admitted that!)

Thanks so much for addressing my issues!! ;)

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saintmaybe    39

Has anyone with dermatitis herpetiformis tried Terrasil? I am suffering horribly from some skin problem that I think is associated with my Celiac Disease, but I really don't know what it is because I can't get any of my doctors to examine it. They just suggest that I hand it off to someone else

Sorry, but I must vent a little bit! I have unresponsive doctors whose only advise is to adopt a gluten free lifestyle and see another specialist for my symptoms. They ALL obviously think that I am too stupid or something on that order to understand what that means, because that is all they can offer in the way of relief.

Immediately upon getting my diagnosis, I did and continue to follow a gluten free lifestyle. I do not cheat; I try very hard to make sure that my family/ I do not cross contaminate any surfaces or food that I come in contact with.

I really don't know what to do at this point. I have screamed and cried and cursed and fumed at the lack of care from the doctors that I have loved and admired over the years.

Please respond! I need some support and don't feel that I am getting any from my doctors, i.e. allergist, gastroenterologist, endocrinologist, general practiticioner, dermatologist...

Also, please forgive my pity party, but I feel so lost and alone. (I even hate that I admitted that!)

Thanks so much for addressing my issues!! ;)

I don't have dh,but I understand about the lack of care from doctors. I went to a dermatologist and got hit for a huge bill to boot, for them to suggest using clearasil for the chronic acne on my back. Thanks, doctors, the thought had never occurred to me. /sarcasm They then also laughed at me when I asked about the connection to gluten sensitivity. I swore off that ENTIRE HOSPITAL, after that experience. There's plenty of research that makes the connection to all kinds of skin disorders. A) I don't want a doctor/doctors who aren't up to date with current research and B. it's just f***ing rude to laugh at your patients.

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    • What does this result mean exactly?   Endomysial Abs, IgA Negative   Negative Transglutaminase IgA <2 U/mL 0 - 3 U/mL Negative 0 - 3
      Weak Positive 4 - 10
      Positive >10
      Tissue Transglutaminase (tTG) has been identified
      as the endomysial antigen. Studies have demonstr-
      ated that endomysial IgA antibodies have over 99%
      specificity for gluten sensitive enteropathy. Immunoglobulin A (IgA) 518 mg/dL 87 - 352 mg/dL
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