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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

The King Of Threads - Info On Celiac Disease
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1 post in this topic

You've heard about it, you've read about it, you've seen it on roadside billboards! (Insert John Philliip Souza marching band music here). And now here it is! The King of Threads! The thread of threads! The one thread to rule them all!

The King of threads is a handy repository of the sum of all knowledge about celiac from all ages, from all lands, and from all species. Here you can list (and also find) your favorite threads, blogs, articles, sites etc about celiac disease and related conditions.

The posts can contain one or more links. Please use a post format such as:

TYPE

Location

Topic

Short description

Thread title

Thread post

Description

If it is a thread please note the favorite post or list all posts if appropriate.

Type: field i.e. thread, blog, article, research paper, site,

Example:

Type: Thread

Location: Celiac.com

Topic: Useful info on celiac

Short description: Listing of useful threads and information about celiac

Thread title: The King of threads

Thread post: All posts

Description: A thread listing useful threads, posts, article, blogs, sites and info gathered from many lands, people, ages and species.

The King of Threads

Eventually the King of threads will be consolidated into a compact format and and transcribed on to small circular disk for space launch into a distant galaxy. Until that happens we can add our ideas of useful info to help people living with celiac disease or related conditions in our local world.

Some possible topics/short descriptions

gluten-free diet - Getting started, tips

gluten-free diet - Inspiration

gluten-free diet - recipe

Celiac - testing

Celiac - Diagnosis

gluten-free diet - Humor

Other topics are allowed, these are just suggestions for starters.

Ok, so go ahead and start posting your favorite threads, blogs, articles, etc. The King of threads is waiting impatiently!

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    • So I'm new to all of this. I don't really have stomach issues other than occasional heartburn. Went to a gastro Dr and she took some blood samples. There's a test where the range is 0-19. I have no idea what it is called but mine was 62. She recommended an endoscopy and my anxiety has completely taken over. I'm terrified. I know nothing about this other than what came up when I googled celiac. What came up was a lot of scary this is what can happen to you results. I'm beyond afraid and do t know what to do. Reaching out for help. 
    • You have multiple problems, and may have several different diagnoses. I needed sinus surgery, and was referred to a teaching hospital University of Iowa. I had to jump through all of the surgeon's hoops by seeing specialists in other related departments. He told me, "Sometimes we think we are allergic to foods and we are not."  After being tested negative for those offensive foods, I figured out that I have histamine sensitivity to these foods. An appointment with the specialist in the Allergy and Immunology Dept confirmed it. I was told to eat a low histamine diet, and to avoid those foods that had been offensive, to keep a  food diary, and occasionally to challenge myself with a food I had not been able to eat. My father was diagnosed celiac from an intestinal biopsy. I had stopped eating wheat and oats, because they made me itch, etc. Other offensive foods to me are tomatoes, raspberries, strawberries, egg, banana, cantaloupe, mushroom, canned or not fresh fish. I have read to eat fresh food. Avoid bruised fruit. Even aged meat contains histamine. There are foods that contain histamine and foods that cause the release of histamine. No leftovers better. I don't eat dairy, because I have a reaction to yogurt. Any foods that are fermented contain histamine. Apples make me cough. It isn't fun eating this way, but until a solution is discovered, I must follow this low histamine diet. I am keeping a food diary. Vary your diet. Be positive. Be proactive. By the way, an oral histamine doesn't help. I don't know what does, but I take one capsule of Diamine oxidase (DAO) before eating, to tie up the histamine before it reaches my gut. You may want to read up on histamine sensitivity and a low histamine diet. Please ask for a referral to a large teaching hospital specialist. May I suggest you begin with Endocrinology Dept. They  will refer you to their other specialists concerning your symptoms. However, you will have your endocrinologist as your home specialist. He will coordinate your care. 
    • Thanks for the welcome. Endoscopy results came in the morning confirming Celiac, but they also found cells called Eosinophils which apparently has something to do with white blood cells. They want to do another scope in 8 weeks to see if they're still there.
    • Oh. Please get a referral to a large teaching hospital. The specialists there will give you answers.  Take care.
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