Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Dr, Oz's Show On Celiac Disease W/eliazabeth Hasselbeck


USF1970

Recommended Posts

USF1970 Apprentice

I am furious after watching a show about Celiac Disease on Dr. Oz. He greatly misled his audience. He implied that one can lose weight on a gluten-free diet, that even though Celiac Disease causes malabsorption, people w/celiac disease are usually overweight and he led his audience believe that African Americans are likely to have celiac disease. He never ONCE mentioned the cost, the fact that 'prepared' gluten-free products are filled w/fat and calories and that the texture takes getting used to. He EVEN said that if you have any of the symptoms he mentioned (all of which were correct) to go on a gluten-free diet for two weeks to determine if you feel better!!! That goes against everything I've read. Overall, he made Celiac Disease to be a 'walk in the park' which I find anything but and I've been on the gluten-free diet, strictly, for over 12 years. Pls. go online and watch this segment of his show (I saw it here in Savannah on June 19, 2012) then go onto his website and correct the misleading information he provided. I don't think I'll trust anything else I see or hear from him.

Linda in Savannah, GA

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

<sigh> NOT AGAIN!! This is a classic case of the blind leading the blind. :blink:

Link to comment
Share on other sites
kareng Grand Master

Its a re-run. I saw it before. Its the stupid one where they ambush people at the grocery and tell them they shouldn't eat wheat. "Do you have gas and bloating?" "Sometimes". "Then you should cut gluten out". As if you can't occasionally have gas and bloating for other reasons or foods.

Frustrating!

Link to comment
Share on other sites
Raven815 Rookie

That's why I don't watch his show anymore and I had such high hopes for it. He is too vague on any subject he talks about. He trys to cram too much stuff into one show. That used to get me really mad. I wanted in depth info on certain subjects.

Laura :P

Link to comment
Share on other sites
USF1970 Apprentice

EXACTLY......stupid :rolleyes:

Link to comment
Share on other sites
~**caselynn**~ Enthusiast

Haha this cracks me up, for the reason that my Dad called me today to tell me he saw an episode of Dr. Oz about Celiac disease and he learned a lot....luckily I've trained my parents well, and dad realized that some of the things were different than what I had said!! I guess I better go watch it to see just what is up!! ?

Link to comment
Share on other sites
USF1970 Apprentice

Haha this cracks me up, for the reason that my Dad called me today to tell me he saw an episode of Dr. Oz about Celiac disease and he learned a lot....luckily I've trained my parents well, and dad realized that some of the things were different than what I had said!! I guess I better go watch it to see just what is up!! ?

You'll be amazed........

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



USF1970 Apprentice

That's why I don't watch his show anymore and I had such high hopes for it. He is too vague on any subject he talks about. He trys to cram too much stuff into one show. That used to get me really mad. I wanted in depth info on certain subjects.

Laura :P

I'd be satisfied w/the truth from him.....

Link to comment
Share on other sites
Unwell35 Newbie

Look, you guys dont seem to understand the magnitude of this rare disease. I found out today that I have Celiac's, that my mothers depression and breakdown after pregnancy were due to Celiac's, My grandfather had a colostomy bag, My cousin has an enlarged heart and misdiagnosed Chrohns disease, my aunt diverticulitis, Diabetes, thyroid, autoimmune deficiency, My son, chronic athsma fatigue and marked other things. My grandmothers schizophrenia, my own memory, mental status, thinking I was bipolar and so afraid of going crazy. I would really love to do a show to help raise awareness about this debilitating silent killer, which claimed the lives of most of my family. THANK YOU DOCOTR OZ FINING OUT ABOUT THIS DISEASE SAVED MY LIFE!!!!!!!!

All of you people hecking and ridiculing ought to be ashamed of yourselves.

Unwell35

Link to comment
Share on other sites
kareng Grand Master

Look, you guys dont seem to understand the magnitude of this rare disease. I found out today that I have Celiac's, that my mothers depression and breakdown after pregnancy were due to Celiac's, My grandfather had a colostomy bag, My cousin has an enlarged heart and misdiagnosed Chrohns disease, my aunt diverticulitis, Diabetes, thyroid, autoimmune deficiency, My son, chronic athsma fatigue and marked other things. My grandmothers schizophrenia, my own memory, mental status, thinking I was bipolar and so afraid of going crazy. I would really love to do a show to help raise awareness about this debilitating silent killer, which claimed the lives of most of my family. THANK YOU DOCOTR OZ FINING OUT ABOUT THIS DISEASE SAVED MY LIFE!!!!!!!!

All of you people hecking and ridiculing ought to be ashamed of yourselves.

Unwell35

If you have read other posters stories on this forum, you would realize we do understand the "magnitude of this rare disease". We object to the inaccuracies and completely incorrect info that was presented on Dr Oz.

Link to comment
Share on other sites
USF1970 Apprentice

I am always THRILLED when the public is made aware of this debilitating disease. That's why I made a special point of watching his segment on celiac disease. And he made one important point and that is, gluten is in EVERYTHING. However, the rest of the segment was very misleading and he never once mentioned the difficulties of being on a gluten-free diet - cross-contamination, expensive, weight gain, availability, texture.......none of that was mentioned. As I previously stated, he made it sound as if following a gluten-free diet is a walk in the park. From my 12+ years experience, that isn't so. I'd rather have no publicity than inaccurate and misleading 'publicity'.

Link to comment
Share on other sites
Finally-45 Contributor

He greatly misled his audience. ... he led his audience believe that African Americans are likely to have celiac disease.

I just watched the clip on line and though the 2 ladies with him are African American [and bloated?], I didn't hear him say anything specifically about the liklihood of African Americans having Celiac. It is important for doctors and the general public to realize we live in a society of people with mixed ancestry. About 60-70% of African Americans have Caucasian ancestry, genetically proven through a dominant occurance of white male lineage. That's the majority right? It's not as if the Celiac gene disappears just because a person's skin is white to tan to brown to black.

As a person of a few races who, like you, has suffered the harsher side effects of Celiac, I wouldn't want Dr. Oz to imply otherwise. While it would be ok to say that the gene is most prevalent among people of Irish, Scottish descent, a responsible doctor/public educator should add that just as many people are unaware of their genetic heritage, many people are unaware they have the Disease, which is genetic.

I must add that I might have suspected Celiac sooner if I hadn't heard a particular expert on Celiac emphasize that it was only common among white people. I take the blame of course, but I really wish she hadn't said that.

Nevertheless, I agree with you on the rest of the segment. The message was diluted and under-emphasized the strict nature of the diet.

Link to comment
Share on other sites
~**caselynn**~ Enthusiast

Look, you guys dont seem to understand the magnitude of this rare disease. I found out today that I have Celiac's, that my mothers depression and breakdown after pregnancy were due to Celiac's, My grandfather had a colostomy bag, My cousin has an enlarged heart and misdiagnosed Chrohns disease, my aunt diverticulitis, Diabetes, thyroid, autoimmune deficiency, My son, chronic athsma fatigue and marked other things. My grandmothers schizophrenia, my own memory, mental status, thinking I was bipolar and so afraid of going crazy. I would really love to do a show to help raise awareness about this debilitating silent killer, which claimed the lives of most of my family. THANK YOU DOCOTR OZ FINING OUT ABOUT THIS DISEASE SAVED MY LIFE!!!!!!!!

All of you people hecking and ridiculing ought to be ashamed of yourselves.

Unwell35

Ummmm.....okay. It's great that Dr. Oz brings awareness to certain issues, but it is a tv show. It's by no means meant to take the place of a person's primary care physician. It's for entertainment and some basic info, perhaps he enlightens you, so you go to a doc and talk it out. Perfect, that's great, but don't rely on Dr.Oz unless you're sitting face to face with him and him alone in an office and you just paid your co-pay; meaning he is your physician. This is an amazing disease, it affects many people in many different ways, and this forum is an awesome place to meet some great people! All of these people have had their own experiences with Celiac disease, either themselves or a person close to them. Certainly check out the topics, there's so much to learn here!

Link to comment
Share on other sites
LVM Newbie

USF/Linda, I agree with you totally. I was also infuriated to see this show. I thought it was totally misleading. To recommend going gluten-free merely because you are fatigued w/o medical diagnosis? that is crazy!! I would never recommend anyone go on this diet unless they absolutely had to. it is too hard, it is expensive, you eliminate many healthy sources of fiber, etc, etc. Plus just not being able to participate in many of life's fun food occasions, such as wedding cake, etc. If it wasn't totally necessary, I would never be gluten-free. If someone has problems including fatigue a full medical workup should be done, not a two week trial!!!! That would not have held true for me as it took me 3 months or more to feel better after my diagnosis via biopsy 9 yr ago. I was surprised EH went along with this show as it was.

Gluten free has become trendy and I think that is what this was about. Or he has stock in gluten-free products? I couldn't figure out what his motive would be.

Link to comment
Share on other sites
USF1970 Apprentice

USF/Linda, I agree with you totally. I was also infuriated to see this show. I thought it was totally misleading. To recommend going gluten-free merely because you are fatigued w/o medical diagnosis? that is crazy!! I would never recommend anyone go on this diet unless they absolutely had to. it is too hard, it is expensive, you eliminate many healthy sources of fiber, etc, etc. Plus just not being able to participate in many of life's fun food occasions, such as wedding cake, etc. If it wasn't totally necessary, I would never be gluten-free. If someone has problems including fatigue a full medical workup should be done, not a two week trial!!!! That would not have held true for me as it took me 3 months or more to feel better after my diagnosis via biopsy 9 yr ago. I was surprised EH went along with this show as it was.

Gluten free has become trendy and I think that is what this was about. Or he has stock in gluten-free products? I couldn't figure out what his motive would be.

Help Elisabeth Hasselbeck sell books maybe? :unsure:

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,070
    • Most Online (within 30 mins)
      7,748

    TT24
    Newest Member
    TT24
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Fluka66
      Thank you again for your reply and comments which I have read carefully as I appreciate any input at this stage. I'm tending to listen to what my body wants me to do, having been in agony for many years any respite has been welcome and avoiding all wheat and lactose has thankfully brought this.  When in pain before I was seen by a number of gynacologists as I had 22 fibroids and had an operation 13 years ago to shrink them . However the pain remained and intensified to the point over the years where I began passing out. I was in and out of a&e during covid when waiting rooms where empty. My present diet is the only thing that's given me any hope for the future. As I say I had never heard of celiac disease before starting so I guess had this not come up in a conversation I would just have carried on. It was the swollen lymph node that sent me to a boots pharmacist who immediately sent me to a&e where a Dr asked questions prescribed antibiotics and then back to my GP. I'm now waiting for my hospital appointment . Hope this answers your question. I found out more about the disease because I googled something I wouldn't normally do, it did shed light on the disease but I also read some things that this disease can do. On good days I actually hope I haven't got this but on further investigation my mother's side of the family all Celtic have had various problems 're stomach pain my poor grandmother cried in pain as did her sister whilst two of her brother's survived WW2 but died from ulcers put down to stress of fighting.  Wishing you well with your recovery.  Many thanks  
    • knitty kitty
      Welcome to the forum, @Nacina, What supplements is your son taking?
    • knitty kitty
      @BluegrassCeliac, I'm agreeing.  It's a good thing taking magnesium. And B vitamins. Magnesium and Thiamine work together.  If you supplement the B vitamins which include Thiamine, but don't have sufficient magnesium, Thiamine won't work well.  If you take Magnesium, but not Thiamine, magnesium won't work as well by itself. Hydrochlorothiazide HCTZ is a sulfonamide drug, a sulfa drug.  So are proton pump inhibitors PPIs, and SSRIs. High dose Thiamine is used to resolve cytokine storms.  High dose Thiamine was used in patients having cytokine storms in Covid infections.  Magnesium supplementation also improves cytokine storms, and was also used during Covid. How's your Vitamin D? References: Thiamine and magnesium deficiencies: keys to disease https://pubmed.ncbi.nlm.nih.gov/25542071/ Hiding in Plain Sight: Modern Thiamine Deficiency https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8533683/ The Effect of a High-Dose Vitamin B Multivitamin Supplement on the Relationship between Brain Metabolism and Blood Biomarkers of Oxidative Stress: A Randomized Control Trial https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6316433/ High‐dose Vitamin B6 supplementation reduces anxiety and strengthens visual surround suppression https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9787829/ Repurposing Treatment of Wernicke-Korsakoff Syndrome for Th-17 Cell Immune Storm Syndrome and Neurological Symptoms in COVID-19: Thiamine Efficacy and Safety, In-Vitro Evidence and Pharmacokinetic Profile https://pubmed.ncbi.nlm.nih.gov/33737877/ Higher Intake of Dietary Magnesium Is Inversely Associated With COVID-19 Severity and Symptoms in Hospitalized Patients: A Cross-Sectional Study https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9132593/ Magnesium and Vitamin D Deficiency as a Potential Cause of Immune Dysfunction, Cytokine Storm and Disseminated Intravascular Coagulation in covid-19 patients https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7861592/ Sulfonamide Hypersensitivity https://pubmed.ncbi.nlm.nih.gov/31495421/
    • BluegrassCeliac
      Hi,   Not saying Thiamine (B1) couldn't be an issue as well, but Mg was definitely the cause of my problems. It's the only thing that worked. I supplemented with B vitamins, but that didn't change anything, in fact they made me sick. Mg stopped all my muscle pain (HCTZ) within a few months and fixed all the intestinal problems HCTZ caused as well. Mom has an allergy to some sulfa drugs (IgG Celiac too), but I don't think I've ever taken them. Mg boosted my energy as well. It solved a lot of problems. I take 1000mg MgO a day with no problems. I boost absorption with Vitamin D. Some people can't take MgO,  like mom, she takes Mg Glycinate. It's one of those things that someone has try and find the right form for themselves. Everyone's different. Mg deficiency can cause anxiety and is a treatment for it. A pharmacist gave me a list of drugs years ago that cause Mg deficiency: PPIs, H2 bockers, HCTZ, some beta blockers (metoprolol which I've taken -- horrible side effects), some anti-anxiety meds too were on it. I posted because I saw he was an IgG celiac. He's the first one I've seen in 20 years, other than my family. We're rare. All the celiacs I've met are IgA. Finding healthcare is a nightmare. Just trying to help. B  
    • Scott Adams
      It sounds like you've been through a lot with your son's health journey, and it's understandable that you're seeking answers and solutions. Given the complexity of his symptoms and medical history, it might be beneficial to explore a few avenues: Encourage your son to keep a detailed journal of his symptoms, including when they occur, their severity, any triggers or patterns, and how they impact his daily life. This information can be valuable during medical consultations and may help identify correlations or trends. Consider seeking opinions from specialized medical centers or academic hospitals that have multidisciplinary teams specializing in gastrointestinal disorders, especially those related to Celiac disease and Eosinophilic Esophagitis (EOE). These centers often have experts who deal with complex cases and can offer a comprehensive evaluation. Since you've already explored alternative medicine with a nutrition response doctor and a gut detox diet, you may want to consider consulting a functional medicine practitioner. They take a holistic approach to health, looking at underlying causes and imbalances that may contribute to symptoms. Given his low vitamin D levels and other nutritional markers, a thorough nutritional assessment by a registered dietitian or nutritionist specializing in gastrointestinal health could provide insights into any deficiencies or dietary adjustments that might help alleviate symptoms. In addition to routine tests, consider asking about more specialized tests that may not be part of standard screenings. These could include comprehensive stool analyses, food intolerance testing, allergy panels, or advanced imaging studies to assess gut health.
×
×
  • Create New...