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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Dr, Oz's Show On Celiac Disease W/eliazabeth Hasselbeck
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USF1970    1

I am furious after watching a show about Celiac Disease on Dr. Oz. He greatly misled his audience. He implied that one can lose weight on a gluten-free diet, that even though Celiac Disease causes malabsorption, people w/celiac disease are usually overweight and he led his audience believe that African Americans are likely to have celiac disease. He never ONCE mentioned the cost, the fact that 'prepared' gluten-free products are filled w/fat and calories and that the texture takes getting used to. He EVEN said that if you have any of the symptoms he mentioned (all of which were correct) to go on a gluten-free diet for two weeks to determine if you feel better!!! That goes against everything I've read. Overall, he made Celiac Disease to be a 'walk in the park' which I find anything but and I've been on the gluten-free diet, strictly, for over 12 years. Pls. go online and watch this segment of his show (I saw it here in Savannah on June 19, 2012) then go onto his website and correct the misleading information he provided. I don't think I'll trust anything else I see or hear from him.

Linda in Savannah, GA

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Lisa    457

<sigh> NOT AGAIN!! This is a classic case of the blind leading the blind. :blink:

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kareng    1,992

Its a re-run. I saw it before. Its the stupid one where they ambush people at the grocery and tell them they shouldn't eat wheat. "Do you have gas and bloating?" "Sometimes". "Then you should cut gluten out". As if you can't occasionally have gas and bloating for other reasons or foods.

Frustrating!

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Raven815    4

That's why I don't watch his show anymore and I had such high hopes for it. He is too vague on any subject he talks about. He trys to cram too much stuff into one show. That used to get me really mad. I wanted in depth info on certain subjects.

Laura :P

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Haha this cracks me up, for the reason that my Dad called me today to tell me he saw an episode of Dr. Oz about Celiac disease and he learned a lot....luckily I've trained my parents well, and dad realized that some of the things were different than what I had said!! I guess I better go watch it to see just what is up!! 😃

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USF1970    1

Haha this cracks me up, for the reason that my Dad called me today to tell me he saw an episode of Dr. Oz about Celiac disease and he learned a lot....luckily I've trained my parents well, and dad realized that some of the things were different than what I had said!! I guess I better go watch it to see just what is up!! 😃

You'll be amazed........

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USF1970    1

That's why I don't watch his show anymore and I had such high hopes for it. He is too vague on any subject he talks about. He trys to cram too much stuff into one show. That used to get me really mad. I wanted in depth info on certain subjects.

Laura :P

I'd be satisfied w/the truth from him.....

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Unwell35    1

Look, you guys dont seem to understand the magnitude of this rare disease. I found out today that I have Celiac's, that my mothers depression and breakdown after pregnancy were due to Celiac's, My grandfather had a colostomy bag, My cousin has an enlarged heart and misdiagnosed Chrohns disease, my aunt diverticulitis, Diabetes, thyroid, autoimmune deficiency, My son, chronic athsma fatigue and marked other things. My grandmothers schizophrenia, my own memory, mental status, thinking I was bipolar and so afraid of going crazy. I would really love to do a show to help raise awareness about this debilitating silent killer, which claimed the lives of most of my family. THANK YOU DOCOTR OZ FINING OUT ABOUT THIS DISEASE SAVED MY LIFE!!!!!!!!

All of you people hecking and ridiculing ought to be ashamed of yourselves.

Unwell35

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kareng    1,992

Look, you guys dont seem to understand the magnitude of this rare disease. I found out today that I have Celiac's, that my mothers depression and breakdown after pregnancy were due to Celiac's, My grandfather had a colostomy bag, My cousin has an enlarged heart and misdiagnosed Chrohns disease, my aunt diverticulitis, Diabetes, thyroid, autoimmune deficiency, My son, chronic athsma fatigue and marked other things. My grandmothers schizophrenia, my own memory, mental status, thinking I was bipolar and so afraid of going crazy. I would really love to do a show to help raise awareness about this debilitating silent killer, which claimed the lives of most of my family. THANK YOU DOCOTR OZ FINING OUT ABOUT THIS DISEASE SAVED MY LIFE!!!!!!!!

All of you people hecking and ridiculing ought to be ashamed of yourselves.

Unwell35

If you have read other posters stories on this forum, you would realize we do understand the "magnitude of this rare disease". We object to the inaccuracies and completely incorrect info that was presented on Dr Oz.

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USF1970    1

I am always THRILLED when the public is made aware of this debilitating disease. That's why I made a special point of watching his segment on celiac disease. And he made one important point and that is, gluten is in EVERYTHING. However, the rest of the segment was very misleading and he never once mentioned the difficulties of being on a gluten-free diet - cross-contamination, expensive, weight gain, availability, texture.......none of that was mentioned. As I previously stated, he made it sound as if following a gluten-free diet is a walk in the park. From my 12+ years experience, that isn't so. I'd rather have no publicity than inaccurate and misleading 'publicity'.

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Finally@45    12

He greatly misled his audience. ... he led his audience believe that African Americans are likely to have celiac disease.

I just watched the clip on line and though the 2 ladies with him are African American [and bloated?], I didn't hear him say anything specifically about the liklihood of African Americans having Celiac. It is important for doctors and the general public to realize we live in a society of people with mixed ancestry. About 60-70% of African Americans have Caucasian ancestry, genetically proven through a dominant occurance of white male lineage. That's the majority right? It's not as if the Celiac gene disappears just because a person's skin is white to tan to brown to black.

As a person of a few races who, like you, has suffered the harsher side effects of Celiac, I wouldn't want Dr. Oz to imply otherwise. While it would be ok to say that the gene is most prevalent among people of Irish, Scottish descent, a responsible doctor/public educator should add that just as many people are unaware of their genetic heritage, many people are unaware they have the Disease, which is genetic.

I must add that I might have suspected Celiac sooner if I hadn't heard a particular expert on Celiac emphasize that it was only common among white people. I take the blame of course, but I really wish she hadn't said that.

Nevertheless, I agree with you on the rest of the segment. The message was diluted and under-emphasized the strict nature of the diet.

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Look, you guys dont seem to understand the magnitude of this rare disease. I found out today that I have Celiac's, that my mothers depression and breakdown after pregnancy were due to Celiac's, My grandfather had a colostomy bag, My cousin has an enlarged heart and misdiagnosed Chrohns disease, my aunt diverticulitis, Diabetes, thyroid, autoimmune deficiency, My son, chronic athsma fatigue and marked other things. My grandmothers schizophrenia, my own memory, mental status, thinking I was bipolar and so afraid of going crazy. I would really love to do a show to help raise awareness about this debilitating silent killer, which claimed the lives of most of my family. THANK YOU DOCOTR OZ FINING OUT ABOUT THIS DISEASE SAVED MY LIFE!!!!!!!!

All of you people hecking and ridiculing ought to be ashamed of yourselves.

Unwell35

Ummmm.....okay. It's great that Dr. Oz brings awareness to certain issues, but it is a tv show. It's by no means meant to take the place of a person's primary care physician. It's for entertainment and some basic info, perhaps he enlightens you, so you go to a doc and talk it out. Perfect, that's great, but don't rely on Dr.Oz unless you're sitting face to face with him and him alone in an office and you just paid your co-pay; meaning he is your physician. This is an amazing disease, it affects many people in many different ways, and this forum is an awesome place to meet some great people! All of these people have had their own experiences with Celiac disease, either themselves or a person close to them. Certainly check out the topics, there's so much to learn here!

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LVM    0

USF/Linda, I agree with you totally. I was also infuriated to see this show. I thought it was totally misleading. To recommend going gluten-free merely because you are fatigued w/o medical diagnosis? that is crazy!! I would never recommend anyone go on this diet unless they absolutely had to. it is too hard, it is expensive, you eliminate many healthy sources of fiber, etc, etc. Plus just not being able to participate in many of life's fun food occasions, such as wedding cake, etc. If it wasn't totally necessary, I would never be gluten-free. If someone has problems including fatigue a full medical workup should be done, not a two week trial!!!! That would not have held true for me as it took me 3 months or more to feel better after my diagnosis via biopsy 9 yr ago. I was surprised EH went along with this show as it was.

Gluten free has become trendy and I think that is what this was about. Or he has stock in gluten-free products? I couldn't figure out what his motive would be.

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USF1970    1

USF/Linda, I agree with you totally. I was also infuriated to see this show. I thought it was totally misleading. To recommend going gluten-free merely because you are fatigued w/o medical diagnosis? that is crazy!! I would never recommend anyone go on this diet unless they absolutely had to. it is too hard, it is expensive, you eliminate many healthy sources of fiber, etc, etc. Plus just not being able to participate in many of life's fun food occasions, such as wedding cake, etc. If it wasn't totally necessary, I would never be gluten-free. If someone has problems including fatigue a full medical workup should be done, not a two week trial!!!! That would not have held true for me as it took me 3 months or more to feel better after my diagnosis via biopsy 9 yr ago. I was surprised EH went along with this show as it was.

Gluten free has become trendy and I think that is what this was about. Or he has stock in gluten-free products? I couldn't figure out what his motive would be.

Help Elisabeth Hasselbeck sell books maybe? :unsure:

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