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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Hair!
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25 posts in this topic

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bartfull    565

Mom's hair was very thin and fine. Dad's hair was mostly missing. :P I thought I was doomed to have really thin hair too, but it's been getting ridiculous. For the past ten or fifteen years it has been falling out by the handful and I have actual bald spots.

I've been gluten-free for a little over a year now. I started taking sub-lingual B12 and biotin but had to stop when I developed an intolerance to corn. Haven't been able to find ANY that I could take.

But I DID find a good mult-vitamin I can take, and it has 150% of the RDA of biotin. I've been taking them for going on three months now, and there is no mistaking it - my hair is growing back!!

Every morning I put my hair up, and for the past few weeks I need to spray and smooth out all of the short hairs that aren't long enough to reach the barrette. I haven't needed to clean the bathroom drain of hair for a while either.

No need to respond. I just wanted to let you all know that on top of feeling REALLY GOOD again, this last lingering symptom is now on its way out. :)

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IrishHeart    1,634

Well, please share the name of this fab supplement!!!

Major hair loss was one of my many horrid symptoms and I still have issues with hair falling out.

I have tried many of the ones suggested on here, but they are not

doing the trick. It is better, yes, but I want THICKER. I want MORE regrowth.

(And before anyone suggests it, nope, it is not my thyroid or any other organ/system. Thanks. :) )

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IrishHeart    1,634

Again, the names of these products may help people who are reading this thread :) !!Please? Thanks!

Do you mean a collagen supplement like hyaluronic acid, for example?

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saintmaybe    39

I use FRS chews for b supplementation. I dont know if they're corn free, but they're available at GNC. I think they are, because any kind of corn makes me sick as a dog and i feel fine on these. My hair is growing back quickly, but also curly and dark red, instead of my old blah brown. =)

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bartfull    565

The vitamins I am taking are (cough cough) Dr. Mercola Multivitamin Plus. I know Dr. Mercola is on the quackwatch site, but it is for making unsubstantiated claims, not because there is anything wrong with his products. And I KNOW they work. Remember the meltdown I had a few months ago? I cried for three days in a row, from the moments BEFORE I woke up until I cried myself to sleep at night. I was so vitamin deficient at that time I really thought I was dying. After only a few days on these I started to come out of it, and now, as you know, I feel better than I have since I was a kid. Of course I know that part of that renewed health is just diet, but I LOVE my vitamins. And now, well, I ALMOST have hair again. Pretty soon I might even be able to stop wearing it up so I can stand upside down with the hairspray trying to push it into place to hide tha bald spots.

The collagen tip reminds me - my nails are thick and strong - always have been. As a matter of fact, for my toes I really should use a chainsaw instead of clippers. Strange that my nails should be so strong and my hair so weak.

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rosetapper23    236

Thanks for the reminder, IrishHeart...but I'm not feeling well these days, so I chose the lazy way out.

The product that seems to work the best for me is NeoCell Super Collagen.

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IrishHeart    1,634

Thanks for the reminder, IrishHeart...but I'm not feeling well these days, so I chose the lazy way out.

The product that seems to work the best for me is NeoCell Super Collagen.

No, you are not lazy at all. You are always so sweet to share all your ideas. :)

(and I am sorry to hear you are not feeling well, hon. I hope you feel better soon!)

P.S. I checked this product and it also contains all the amino acids I am already taking, but also has the collagen. I am using HA now, additionally, so when these are done, I will try this one you suggest. You know all about my tissue and tendon issues, so it can only help. :)

Thanks, ROSE!!!!

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bartfull    565

You're welcome, IH. After all the help you have given me and so many others here, it's the least I can do. :) I hope they work for you.

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IrishHeart    1,634

You're welcome, IH. After all the help you have given me and so many others here, it's the least I can do. :) I hope they work for you.

I may give them a whirl. I have tried everything. It looks better than it did when I was so sick, but honestly, it was really quite bad. I stopped looking in the mirror at one point. :ph34r: Made me cry. (Anyone who sees pics of me from that time is appalled and gasps at the sight of me. My mom cried when she saw me--all boney and yucky and balding. I used to be quite "Rubenesque") :lol:

I look remarkably better, I think and more "like me" now.I gained some weight and I am recovering slowly. Someday, I will write an excellent progress report like you did recently. :) You inspired us all.

Oh, I am so happy you are doing so well! Continued healing and only happy days for you from now on!!!

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GF Lover    201

So thru my foggy mind am I to understand that Biotin was the one helping with the hair loss. I can't afford to lose much more :(

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bartfull    565

Yep. I learned about biotin here. I wasn't on the sub-linguals long enough to see any difference so it MAY be something else in these vitamins I'm taking now, but I ASSUME it's the biotin that is helping with the hair.

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GF Lover    201

Biotin it is then. I'll try anything once. :P

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IrishHeart    1,634

The vitamins I am taking are (cough cough) Dr. Mercola Multivitamin Plus.

I want to be sure I have the right one.

Is it THIS one? with WHOLE FOODS in it?

http://www.swansonvitamins.com/MRC002/ItemDetail

I read the label ingredients and it includes sprouted barley grass and wheat grass.

The label says it is "soy, dairy and corn free"-- but not gluten free.

Please tell me you are taking some other Dr. Mercola Multivitamin?.

He must have another multi formula?

Let me know which one it is. Thanks!

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bartfull    565

Um, you know, another celiac friend got these for me and assured me she takes them all the time. She has been SO helpful with my diet, I automatically trusted what she said. I never even NOTICED those things you pointed out! Now not only am I embarrassed, but I'm confused. I have been taking these with no problem whatsoever.

Now that raises a question I have had for a year now: AM I celiac? Having never been tested, I just assumed I was when going gluten-free cleared up my symptoms. But as I have said, a few weeks after dropping gluten and corn, I ate gluten-free cornbread and had a BIG reaction. I am SO sensitive to corn.

Does this mean that corn is my problem and not gluten? :blink:

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Fairy Dancer    10

I have a head full of hair but what I am wondering is there anything to stop grey hair?

I am losing my colour :(

It did start falling out at one point but because I started out with an awful lot of it, it just looked a little bit thinner is all and lately I have new regrowth anyway, especially since I started using the 'no-pooing' technique on it (no use of chemical shampoos). I call it my paleo hair as I am on the paleo diet as well lol.

I also avoid using styling products etc. I am trying to encourage its natural curl to come back as it used to be nothing more than a giant ball of frizz with chemical products on it...even with the best on the market. Its a little bit better now but it's still early days and a bit of stubborn frizz remains from where it was chemically treated with colourants (as close to my own hair colour as I could get).

I want to avoid having to use colourants in the future though..

Silly grey hairs coming through lol

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Fairy Dancer    10

Opps double post, sorry.

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IrishHeart    1,634

Um, you know, another celiac friend got these for me and assured me she takes them all the time. She has been SO helpful with my diet, I automatically trusted what she said. I never even NOTICED those things you pointed out! Now not only am I embarrassed, but I'm confused. I have been taking these with no problem whatsoever.

Now that raises a question I have had for a year now: AM I celiac? Having never been tested, I just assumed I was when going gluten-free cleared up my symptoms. But as I have said, a few weeks after dropping gluten and corn, I ate gluten-free cornbread and had a BIG reaction. I am SO sensitive to corn.

Does this mean that corn is my problem and not gluten? :blink:

Don't be embarrassed! It's okay.

It just means I will not be trying these vitamins. :lol:

I am stumped as to why you are not having symptoms and I do not know what this means for you, Bart.

It is perplexing that the gluten is not bothering you. :blink:

Tell your celiac friend, however, that they are NOT gluten free!

Even if you guys are not noticing symptoms, we all know it does not mean damage is not being done.

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bartfull    565

IH, Skylark, Mushroom, do you think I should do a gluten challenge? I'm shocked! I've been eating these vitamins for months now and all they have done is make me feel better. I've been eating 50 milligrams of gluten every day! I know that corn gives me psoriasis. Nightshades do too, as well as asperin. It would be strange if all of my intolerances gave me psoriasis EXCEPT gluten.

See? THIS is why I wish I had a real diagnosis. I don't know if I have celiac or not. I don't know if any of the other intolerances have done damage. Even if I go to the store for a bag of wheat flour and make biscuits to eat every day, I won't know for sure if wheat is a problem for me unless I DO get a psoriasis flare.

I suppose it won't make much difference in the long run. Almost every gluten food also has corn in it. (Except for the biscuits or home made pie crust.) And I don't want to go back to eating all of that garbage processed food now anyway.

I just wish I KNEW.

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IrishHeart    1,634

IMHO, if you would feel better knowing, then try a gluten challenge.

If you feel worse, then you can stop it.

Right now, though, you say you feel GREAT!

Why mess with it? :)

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mommida    158

There is a ;) POSSIBLE ;) link between B12 defiency and premature greying. (also a possible link for geographic tongue)

I really suggest the Biotin. Biotin would naturally be found from eating animal liver. I seriously doubt many of us are eating enough Biotin in our diets. (that and there has been warnings for years about too much contamination in animal liver) There is no known adverse affect from "high" doses of Biotin. Not only will your hair grow but fingernails too. :)

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saintmaybe    39

There is a ;) POSSIBLE ;) link between B12 defiency and premature greying. (also a possible link for geographic tongue)

I really suggest the Biotin. Biotin would naturally be found from eating animal liver. I seriously doubt many of us are eating enough Biotin in our diets. (that and there has been warnings for years about too much contamination in animal liver) There is no known adverse affect from "high" doses of Biotin. Not only will your hair grow but fingernails too. :)

Sorry to hijack the thread, but what on earth is geographic tongue? I have visions of a tongue with a little suitcase and passport. :-D

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saintmaybe    39

There is a ;) POSSIBLE ;) link between B12 defiency and premature greying. (also a possible link for geographic tongue)

I really suggest the Biotin. Biotin would naturally be found from eating animal liver. I seriously doubt many of us are eating enough Biotin in our diets. (that and there has been warnings for years about too much contamination in animal liver) There is no known adverse affect from "high" doses of Biotin. Not only will your hair grow but fingernails too. :)

Wow, that has a name?! I just looked up pics, and I've had that my whole life and no one has ever said anything to me about it. Thats good to know though, about the b12, both for the tongue and the hair. I am vain, and freak out about every new gray.

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