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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Continuing / New Symptoms
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5 posts in this topic

Hi All -

So I am a self-diagnosed celiac. I didn't understand about the tests for celiac until after I had gone off gluten and as I'm sure many have said before me, there was no way I was about to start eating it again for confirmation of the actual disease. Whether I had celiac itself or not, I knew that I felt horrible when eating gluten and that was all I needed to know.

I've been off of gluten for nearly a year now and I've seen tremendous improvement in so many areas regarding my health. I feel a hundred times better every day than I have for years. However, I am still struggling with some continued and new symptoms, mainly physical pain, nausea, and bloating. These are not nearly as debilitating as they used to be, but they are a serious issue for me. The pain is mainly in my back and very, very occasionally in my chest as a broad, radiating pain. The nausea generally occurs in the morning and the bloating is after some meals, generally ones involving some type of rice or grain.

The biggest problem is the pain in my back and sometimes chest. It doesn't really feel like a muscular soreness, if you know what I mean. At first I thought it was clearly related to going hungry for a long time (like at work, where I have an physically active and fast-paced job) but now I'm not so sure. I have even been wondering if it was stress related, but I keep feeling like it must be in some way connected with my food and digestive system. It really, really hurts. It's not just a brief, nagging pain. It's something that makes me unable to continue with my work at times. Has anyone else experienced anything like this?

I'm also wondering if anyone has tried the Specific Carbohydrate Diet. Because of these lingering and bothersome symptoms, I've been thinking about trying the grain/sugar/processed junk-free SCD in the hopes that it will help me resolve whatever my body is still struggling to process. Thoughts?

I've been stalking this forum ever since I started gluten-free living and it's been a great help so here's to hoping someone might have some input for my situation!

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I had to go SCD (modified for my own needs) at first. I think I could make mortar and brick out of almonds, and cover it in marzipan adobe by now :D .

Keeping a food diary helps. In the past 3 years I had gotten much more adventuresome, and as a result, I was eating things that do not work for me. Tracking down the culprit ingredients was very challenging. Also, packers and manufacturers of food and ingredients constantly change how they do things in terms of gluten. There are many, many packaged foods I have had to give up because my body said they were cross contaminated, even if the food manufacturer said they were not. Also, some companies either move their facilities to ones co-processing gluten, or change suppliers, and they went from "safe" gluten free to "eat at own risk" status. One of the biggest bummers right now is where I used to get inexpensive almonds now has warnings on the bags about being processed in a wheat environment, when they didn't have that particular allergen listed before, so I have been stuck getting them somewhere else for a lot more money. I tried the almonds in the new packaging at the original store and it's a good warning. :ph34r: I may try to talk them into using a different packer and become safe again, since I have sent a lot of people there, plus I end up spending beaucoup bucks $$$ there, but I'm not optimistic. :(

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HI Atroposian,

Welcome to the forum! The pain you describe could be an ulcer or something else. I suggest you see a doctor about it. They do have tests now for the H. Pylori bacteria, which causes most ulcers. It's worth getting tested so you know if that is the cause.

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yup, might well be an ulcer....need to get it checked out.

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Depends on where the pain is. I had lower back and hip pain I at first thought was a direct result of my job working in a garden center. Then I found out my brother has ankylosing spondylitis, and lo and behold so do I. That is a WORST case scenario, and It's doubtful that's your specific issue. It could be the early stages of bursitis or sciatica, generalized inflammation of the joint. I generally eat primal, and it has helped some. It's definitely toned my migraines down to manageable levels. What's clear is that there's something else going on and you should get it checked out.

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