• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

So Long For Now
0

20 posts in this topic

Some day, maybe he will understand and I will be back.'

See ya.

Diana

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Some day, maybe he will understand and I will be back.'

See ya.

Diana

Because of the diet, or the time you spend online? Perhaps he should do some reading here.

0

Share this post


Link to post
Share on other sites

Diana, Sorry to hear your leaving us. Stop in when you can even if it is under another name.

0

Share this post


Link to post
Share on other sites

If you are allowed or can sneak time on a computer and see this-

I'm sorry. That's a very scary way to live. I hope you can get help when you are ready for it.

0

Share this post


Link to post
Share on other sites

(((HUGS))) Diana

1

Share this post


Link to post
Share on other sites
Ads by Google:


That's pretty upsetting that your husband would have a problem with you writing on a forum to try and better your health. I wish you the best.

1

Share this post


Link to post
Share on other sites

I wonder if he feels she is revealing to much private info. Some people are not as comfortable with public lives as others. He may be embarrassed even by the medical issues. If that is the case, it is good that she respects him enough to pull out.

2

Share this post


Link to post
Share on other sites




If it is a privacy issue he is upset about, (I assume you are using your real name right now) you can change your user ID--just ask Admin (Scott). He can help you.

Sorry you are leaving. You seemed to be getting valuable information and enjoying contributing as well.

My husband has a different take on the forum. It was one of the

resources that helped save my life. Now, it helps me to help others who are in the same sinking boat.

Sorry to see you go---I wish you well!

2

Share this post


Link to post
Share on other sites

I agree with kareng. He sounds like a control freak to me. It's so sad when spouses aren't supportive, but this goes beyond that. :(

1

Share this post


Link to post
Share on other sites

For those who have been following Diana, they will have read several times that her husband was not supportive of her doing what she needs to for her health. She can certainly change her name on here.

1

Share this post


Link to post
Share on other sites




For those who have been following Diana, they will have read several times that her husband was not supportive of her doing what she needs to for her health. She can certainly change her name on here.

This is important information for anyone reading this thread.

thanks, K!

This community wants Diana to be well.

We will always be here for you, Diana!

2

Share this post


Link to post
Share on other sites

Well, maybe it is a temporary thing. I hope he comes to realize that celiac disease is not an easy thing to live with as a beginner, and that there is not much of anywhere else to get good advice about adapting to the gluten-free lifestyle. As we all know, most doctors are happy to tell you "guess what you have an autoimmune disease, don't eat gluten, go away". That's about as helpful as saying have a nice day. In Australia the doctors tell their patients to seek out the Australian celiac society for support. There doctor's at least know they are not qualified to help and admit it. I hope your husband comes to understand this is a serious disease, and that you are not going to find the help you need from just any joe-blow doctor or dietician. There are several celiac specialty centers in the USA that can help, but they may not be a convenient drive. Chicago, LA, and Baltimore have the main ones. This forum is a lot more accessible and convenient than driving a few hundred miles and paying for advice you get free here.

Don't forget the advice you got here, and watch out for hucksters selling phony gluten aides on the web. It's lonely being a person with a disease that nobody around you understands, even your own family. And your doctor doesn't help either. With celiac we help each other because we have to, not much of anyone else will do it.

0

Share this post


Link to post
Share on other sites

That's pretty upsetting that your husband would have a problem with you writing on a forum to try and better your health. I wish you the best.

This is how I feel as well. I hope you have another support system in place as you do need one. Please take care of yourself and continue on the gluten-free road to good health. Remember changing your lifestyle is likely saving your life! It is that important. Life is a very precious thing.

Hope to see you back sooner than you think! :)

2

Share this post


Link to post
Share on other sites

First I would like to say that I have a good marriage. It is going through its hardest test. The test began long ago when my body was making life difficult on me. It's continual demands makes life hard for the whole family. Yes, the struggle has been there all along and now finally, knowing gluten is likely a causing factor, we may be able to quiet this body- atleast what is left of it.

If Only I could see this from my husband's side. He has put much money into supplements which have helped immensly. He has worked a full time job and been dedicated to spending time with all of our children. He sent me back to the doctor that had helped years ago. He has built a home in such a way to protect me from my allergies. There are countless ways that he has supported me in this trial.

What is it that I want? Someone to talk over the situation with and tell me how to cope. I want to be carried/held continually. I want him to trust my judgement when I say I am not up to something. I want some applause for standing up. (I know one doctor that would do this for me). My husband can't do these things. He is not medically inclined. Neither was I. He is busy. It is hard to see past a less-then neat-house and into the heart of a very frustrated lady. He simply cannot relate to constant fatigue. Lately, he told me he does not get fatigued when he works hard. He gets invigorated!

So maybe the forum can fill in some where he fails. Over the past few weeks I have been finding questions to ask and I am going to start posting them. I also discovered that a lady around the block is suffering. As I described my struggles, she said, oh, yeah I have had that same thing. Every subject I brought up. Most everyone on the forum has had them too. I know, because I have read them. I heard my neighbor was suffering (just by chance) when talking to a mutual friend. There are provisions for me put together by God who cares. He is working in the situation and on me.

So, I am back. Just incase my family would prefer it I have withheld my name. Love and health to you all. DT

I was not able to change my name or delete this, but for now we will have to go with it. Funny, I posted this as anonymous, but when I hit post it put my name.

1

Share this post


Link to post
Share on other sites

Welcome back. I hope things improve for you soon. I agree that many folks that haven't dealt with overwhelming fatigue just don't get it. I don't think they understand that if we do push through it we then pay for it for days afterward. It can take a long time for some of us to heal to the point where we really have energy. Hopefully you will reach that point before too long.

1

Share this post


Link to post
Share on other sites

"With celiac we help each other because we have to, not much of anyone else will do it."

You mean, You did not volunteer for this position either?

0

Share this post


Link to post
Share on other sites

D, you can't change your username yourself but if you PM "admin" he will do it for you. That way you can post away and feel comfortable. Glad you are back:)

0

Share this post


Link to post
Share on other sites

Welcome back!

0

Share this post


Link to post
Share on other sites

"With celiac we help each other because we have to, not much of anyone else will do it."

You mean, You did not volunteer for this position either?

Ha-Ha, I guess I volunteered the same way everyone did. I was born with the right genes and something made them click into gear. But we can help each other by sharing information and ideas about living with celiac, so that is a good thing. This site has helped a lot of people since it was started.

2

Share this post


Link to post
Share on other sites

Anonymous,

I'm glad you are back. The way you left seemed out of frustration, and I can really relate to that.

My marriage wasn't strong enough to withstand my inability to find a diagnosis for my problems, and I know I diminished my spouses and childs life because of the pains and discomforts and depressions that I was suffering blindly.

I remember back in 2003 that I even took several different prescriptions for depression - I had never been depressed before in my life. I couldn't even explain why I was. I knew I was bloating and sat on the toilet 4 hours a day, had no energy and fitness wiped me out beyond what I could explain, but no resolution ever came. At least not in time to save my marriage.

You are so lucky. You have the opportunity to save your life now, and in that you also have the chance to save your marriage.

I know I am very thankful for this forum, both the historical reference material and the regular chatter's, and am glad you will also be a part of the neighborhood.

Ron

2

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      107,390
    • Total Posts
      935,831
  • Member Statistics

    • Total Members
      65,077
    • Most Online
      3,093

    Newest Member
    MayonnaisePlease
    Joined
  • Popular Now

  • Topics

  • Posts

    • Hello again i heard somewhere that if you have been diagnosed with celiac disease after all the tests have been done you are entitled to a prescription of food containing gluten free food. I am in the uk but i thought this had been recently discontinued? Anyone help.
    • Hello thankyou its always great to know that other people are going through things the same time. Yes my endoscopy is friday coming at 8.15am, been through the procedure before for diagnosing a hernia so that side of things are ok, just not sure if i needed the biopsy at first being the blood test confirmed  positive but i know now that i do need it not just for me but also for my 11 year old daughter who could also be celiac later and it would be better for her to know 100% mum is celiac.
    • Hi Whitepaw Your question about what was I eating before I fell ill is a good one.  I had given a party the previous month and there was a lot of cake left over and what is more, it was all gluten free because I had made it!  So I was eating maybe a couple of slices a day...  I was taking soluable aspirin when I shouldn't take it, really.  I was also taking iron supplements.   And adding chilli to a lot of my food - normally not a problem.   And I had a huge amount of stress going on having just completed a project and also having tests on a lump on my tongue. Oh yes - and  I ate some marshmallows which may have contained gluten?  And my son had a stomach virus at the time. High fat food + aspirin + iron supplements + chilli + stress+ possible glutening + stomach virus?  = gastritis!! I also ate quite a lot of walnuts the days before it got really bad so maybe they didn't help. I need to be much more careful - it has taught me a lesson. I'm particularly cross with myself about the aspirin and also not checking the marshmallow ingredients as I am usually so careful. I know exactly what you mean about dreading the next meal - last night I had chicken and potato again but added a tiny bit of bolognese and I actually enjoyed the meal, which I think meant it sat easier in my stomach.   I think that there is a psychological element to acute gastritis, too.  I think if one is stressed it can hang around a lot longer.  I have read a few posts from people who found after trying to do all the right things to get better it was going onto medication to help with stress that actually helped them get better in the end.  I can see that - because if I could hear the children fighting, or had a stressful conversation with someone, I could actually feel my stomach react. Anyway - thank you for your help, I am so grateful. And great idea about the food diary.  Perhaps, also, worth making a note about stress factors on a particular day, and what meds one was on.  I think ompremazole was a great way to stop the gnawing pain for me but since I have lowered the dose I have to say that a lot of the bloating and feeling of nausea has gone. I think if I ever get gastritis again I'll stick myself on a gastritis diet first, just for a few days.   If that doesn't help I'll probably check with my doctor but take ompremazole for maybe two to three weeks til the gnawing stops, then taper down.  I hope it won't happen again though!  There is no doubt about it, it is a drug to be taken with caution, but I have to say I have heard some success stories too of people who took it short term and were helped tremendously.  I think tapering off it is probably a good idea, though, because I do have a friend who I think is suffering from rebound at the moment by coming off an inhibitor cold turkey.
    • Hey all so ever since about a week ago I felt a sharp pain in my upper right quadrant, followed by a minor hotflash and it hurts to press on my right side. I'm extremely worried because I was admitted to the ER last night, blood came back fine, xray fine and ultrasound fine. What prompted me to enter the ER was the fact that now my breathing is affected..   SYMPTOMS SO FAR: Sharp Pain Touching My Right Side Minor weakness , no fever. Mucus in stools? (when i wipe its a yellow on the toilet paper sorry for tmi) Right shoulder soreness Mucus in jugular? Or lung!? The "pipe" you can feel on your neck going up to your head, somewhat warm to the touch. Aches to touch. Happens mostly at night. Began last night and returned tonight. Unusually smelly breath. Awful Constipation, when I CAN go barely anything comes out as its flaky. Slight Pain in right leg, comes and goes. Very active stomach, gurgling can be heard from as high up as my chest. Slight stomach pain relief when massaging. I'm very worried people I'm petrified of surgery and I don't want to die.. But I don't understand why everything would come clean if im experiecing these symptoms?   Anyways
    • Well thanks everyone seriously. I'm sure this will get better and I'm thankful this reaction is normal. So guilty when I think of others worse off than me. I will read and read and read until I've taught myself to feel better. And then help others ((((hugs all around)))
  • Upcoming Events