• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Blood Test Results
0

4 posts in this topic

Recommended Posts

suziegp    0

I tried posting in another forum, but I don't think I gave enough info and maybe it was the wrong forum. I would appreciate any help.

I was uninformed when my journey began in 2006. I just knew that if I didn't eat wheat I felt better. I stopped gluten, with an occasional cheat and if I didn't cheat too often I didn't get sick. After six weeks on a gluten-free diet I had an endoscopy which, of course, was negative since I had been gluten free.

In 2009 I cheated and ended up in so much pain I went to the ER where I was diagnosed with colitis (CT scan showed inflamed colon). A year later a different doctor diagnosed me with celiac using blood tests and I am also positive for the celiac gene. He is monitoring my blood and says I am still getting gluten somewhere. The day before my latest blood test I was sick. I had eaten out - a supposedly gluten-free meal, but that was 2 1/2 days prior to being ill. The results were still in the normal range, however my doctor interprets the test as showing I had gluten.

If I had gluten in my system, would the antibody numbers be higher than they are? Do IGG and IGA test out zero when you've been gluten free? Should I be aiming for zero?

I really don't understand the results, as it looks like they are 5 and 6, but he says 6/30, 5/30. I don't know what that means. Here is what he said:

I am writing in regard to these suboptimal antigliadin test results, since at 30 =100%;

IGA 6/30 which reflects > 20% impact from gluten on the immune system.

IGG 5/30 which reflects > 16.6% impact from gluten on the bowel lining

Component

Latest Ref Rng 6/19/2012

GLIADIN AB, IGG

<11 U/mL 5

GLIADIN AB, IGA

<11 U/mL 6

These levels do document that these % of damage are happening to your immune and intestinal systems at this time.

I've worked so hard to be gluten-free, being extra diligent since February. I've only eaten out 3 times in the last 4 months and was extremely careful. I eat a very limited diet. I don't even eat gluten-free breads, pretzels. etc. I'm getting very frustrated and down. Thanks so much for any help!

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Skylark    935

Wait, what??? Is this note from an MD who actually went to medical school or some flaky naturopath? It reflects a profound lack of understanding of how immunoassays work and you need to run screaming from this practitioner!!! Your tests are negative, you're doing great.

Antibody tests are almost never zero because antibodies naturally cross-react, producing some background or "noise" in the test. (This is by design because it lets your body identify viruses and bacteria you've never encountered before as potential threats.) You are comfortably below the 11 U/mL the lab has identified as a positive result, meaning that they cannot tell your blood test from that of a normal person who has no gluten issues at all.

Share this post


Link to post
Share on other sites
suziegp    0

Wait, what??? Is this note from an MD who actually went to medical school or some flaky naturopath? It reflects a profound lack of understanding of how immunoassays work and you need to run screaming from this practitioner!!! Your tests are negative, you're doing great.

Antibody tests are almost never zero because antibodies naturally cross-react, producing some background or "noise" in the test. (This is by design because it lets your body identify viruses and bacteria you've never encountered before as potential threats.) You are comfortably below the 11 U/mL the lab has identified as a positive result, meaning that they cannot tell your blood test from that of a normal person who has no gluten issues at all.

Thank you so much. I feel so much better knowing I'm not doing something wrong and that my hard work has paid off. Yes, he's an MD, but a general practitioner. Celiac is not his specialty. Guess I'd better go on a search ....

Thanks again!

Share this post


Link to post
Share on other sites
Skylark    935

Wow, that's still sort of inexcusable from someone who went to medical school. Well, there's that joke - "What do you call the worst student in a medical school graduating class?" "Doctor."

Good luck finding someone who understands celiac better. I think your labs are fine. B)

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      107,864
    • Total Posts
      938,375
  • Member Statistics

    • Total Members
      65,762
    • Most Online
      3,093

    Newest Member
    don1938
    Joined
  • Popular Now

  • Topics

  • Posts

    • http://jamanetwork.com/journals/jamadermatology/fullarticle/423327 Found this article that suggests a link between PD and the Mthfr genes (which are also associated with Celiac Disease).    Taking methyl forms of B9 (methylfolate) and B12 (methylcobalamine), and B6 (P5P), makes these vitamins more usable to people with the Mthfr genes.   Celiac Disease causes malabsorption.  Celiacs on a gluten free diet may develop deficiencies.  (Gluten free breads and cookies are not required to be fortified with vitamins like their gluten containing counterparts.)   Perhaps adding these vitamins would be beneficial. Hope this helps.
    • I'm not sure that this is the original study I looked at, but it does describe the different antibodies found circulating in the blood that is specific to DH (anti-eTG, which is analogous to anti-tTG in regular celiac disease). At any rate, it seems that they can test for it, but many labs do not have the ability to do so or doctors do not know to ask for this lab test. So I suppose if one was very interested in a diagnosis, one could go to a research centre where they would likely have the ability to test for its presence! https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4435051/
    • Welcome.  You might consider staying on gluten and seeing your doctor for a celiac blood test panel.  You need to be consuming gluten for several  weeks prior to the blood draw otherwise the tests can be invalid.   You could have celiac disease or a gluten sensitivity.   The only way to know for sure is to get tested as there are over 200 symptoms attributed to celiac disease and those can overlap with other illnesses.   Best to rule out celiac disease.  Learn more:  http://www.cureceliacdisease.org/screening/ Celiac disease symptoms are like a chameleon -- always changing.    
    • Yes, you can get diagnosed with biopsies prior to having a celiac (antibodies) blood panel.  That what they did BEFORE the blood test was invented.   Thyroid issues are common with many who have celiac disease.  It was prudent that your doctor ordered these tests.   The lipase test is linked to the pancreas.  Again, a poor result can be attributed to celiac disease.  
    • So where oh where to begin. I read all and everyone's post because as a community I think it's extra special when people have others they can vent to that understand how each other are feeling. Ok enough with the gushy stuff. Down to business. I have been gluten free for almost 9 months October 4 (im counting)  the relief I have felt is diarhea is gone. Another good positive symptom and sign is I'm 5'7 so at diagnosis I withered away to about 108 (very sickly all muscle was gone) I now I got weighed in at 122 today! And I'm literally eating whole foods some extra food maybe some chips here and there but I've always been a chip person. I haven't weighed 122 since I was 18 (Im 29) so that part had me excited. Except for the last few weeks my fatigue has come back with a vengeance. I don't know where it's coming from, i got my thyroid (just tsh until I see endo at end of month when she will check all thyroid hormones) and it was at 3.45 I'm not on thyroid hormone so I wonder if this is causing my fatigue and fast weight gain since I started gaining weight pretty fast (even though I needed it, it happened all at once over a month) I'm also having severe hair loss. I had my iron checked and it's all went up except my ferritin which was at 15 last week's blood test. My symptoms consist mainly of hair loss, shortness of breath, dizziness especially from sitting to standing, really bad raynauds attacks everyday all day (on feet) neck pain (severe) now new symptom started about 4 months ago the back of my shoulder bone to the elbow and clavicle bone are all hurting so so bad. I don't expect anyone to know what's wrong with me I just felt like venting. Also I was prescribed neomycin and xifaxin because a hydrogen breath test showed high methane in my test but normal level hydrogen so the actual SIBO test was negative but she was confused about the high methane and said I may benefit from the antibiotics. I still am waiting to get them from my insurance. I'm a seronegative celiac with positive biopsy. We've already gone through and rules out other scenarios for the villous blunting and IEL's. Any info would help me. I feel so weak some days. And all doctors want to say it's anxiety. I've heard that for far too long I actually went to a hematologist today because I've been freaked out the last year my wbc have been at 3.3 which my lab range is 4.5 and above to whatever the higher limit is. He told me to do a bone marrow biopsy because of the pain in my shoulder and arm and my "low wbc "which he wasn't even concerned about. Is this necessary right now or am I just spooking myself. Is it common to have low wbc. Could it be the extra methane in my breath or whatever. Any help would be great. Listen I have friends and family but they won't listen to all this. They think most of this is in my head. 
  • Upcoming Events