• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Is This Common?
0

14 posts in this topic

Is it common to start suggesting to family members who suffer the same digestive issues that you have get tested?

I have probably been driving my family nuts with all of this because I have no diagnosis of anything. Everything points to Celiac disease, but if I could just get one person in my life to care, it would be appreciated. I feel like I have been dealing with this on my own.

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Everyone I'm related to by blood lives 1000 or 2000 miles away. I haven't let that stop me! My husband has had the blood tests which like mine came back negative, fortunately his doctor knows that means nothing. I was diagnosed by biopsy, but our insurance won't pay for an endoscopy and we just don't have the money for it. So instead I have finally after almost 6 months nagged my husband into trying gluten free. It's so painfully obvious to me and he is finally willing to admit that gluten may be his problem. I call it my sixth sense (like the movie), I see celiac people.

1

Share this post


Link to post
Share on other sites

Yup, I always say I am like that little boy in the movie Adalaide mentioned.

I SEE CELIACS....everywhere. :ph34r:

I have educated my large extended family ---full of AI diseases and GI troubles ---and not one (except my Mom) has done a thing about it.

And yet, perfect strangers listen to me. My cat's vet, the dental tech, the phlebotomoist who draws my blood, the UPS guy---all went to be tested.

Are any of them celiacs? yup!

Are any of my family celiacs? Oh, you betcha.

I can talk about it until I'm blue in the face, but until someone gets as sick as I was, they will not believe it. They think I am the only one. (no, I am just the FIRST)

I gave up. They know where to find me if they want help. I lost enough sleep over it.

Don't make yourself crazy over it.

1

Share this post


Link to post
Share on other sites

Thank you. I will definitely try. I would like to be okay with my self-diagnosis, but while I feel a little bit better, there are still new things happening that worry me.

0

Share this post


Link to post
Share on other sites

I just came here to write the same thing about my mother. She says she is healthy and just has stomach issues and joint pain and heat rash and fatigue... UGH! I am almost sure she has it but she's talking about how she can eat gluten moderately and she will be fine. I argue with her but...

I told her that I'll call to nag her everyday until she gets tested. lol :rolleyes:

0

Share this post


Link to post
Share on other sites
Ads by Google:


You can mention it to family members. All first degree relatives of a diagnosed celiac should be screened for it.

It is common for them to refuse the idea, and there is no point in nagging them--it will only hurt your relationship with them in the long run. Mention it once--then move on.

Many claim that they are fine; many have overt symptoms, but deny that gluten has anything to do with it; many are scared of the idea of having to eat gluten-free--they would rather keep suffering.

For those who have not actually done the gluten-free diet, it sounds impossible. Even for those of us starting out, it is a major challenge. After 12 years, for me it is not a big deal. But my first year was a steep learning curve, and I did not have the benefit you do of this online support group.

0

Share this post


Link to post
Share on other sites

I told her that I'll call to nag her everyday until she gets tested. lol :rolleyes:

Don't bother. I pressed my sister (diabetes, hypothyroid, high BP, etc. etc.) because I know siblings should be tested and her symptoms are obvious, but it just irritated her and I backed off.

I worry about her, but as my doctor (and Peter)both have pointed out, she does not want the hassle of dealing with a gluten-free diet and prefers to manage her symptoms with medications and remain status quo.

She an intelligent woman. I know she reads all the info I send her and so, I have to respect that decision.

0

Share this post


Link to post
Share on other sites

I've been noticing lately a lot of my family members (and I mean a lot) are having gastric, arthritic, mood, and thinking problems....so I'm positive that coeliacs is in my family.

0

Share this post


Link to post
Share on other sites

Ahhh, yes. But my mother understands nagging, I think she sees it as a way of expressing her love. Maybe it is our Ukrainian Polish background.... Lol

I hear what you are saying though. For my brother, I told him, gave him info to look into and advice on how to get an accurate test and he'll decide whether to test based on that.

My mom on the other hand won't do any research and comes up with her own ideas based on.... I don't know what. She obviously ddin't believe me when I told her that her niece's celiac was not caused by an eating disorder as a teen. I only say I'll nag her becAuse it will work and she understands it.

Thanks for your advice.

0

Share this post


Link to post
Share on other sites

I've been noticing lately a lot of my family members (and I mean a lot) are having gastric, arthritic, mood, and thinking problems....so I'm positive that coeliacs is in my family.

Me too. My sister had pasta last night and just kept burping and passing gas all night. I notice everybody's problems now.

0

Share this post


Link to post
Share on other sites

My parents and sister were tested and no one has it. I really thought my Mom had it. She has so many health problems that I almost wanted her to have it so she could start to feel better. No dice though. Blood tests were normal and so was her endo.

I have a cousin with fibromyalgia who I've urged sooo many times to be tested. Some people are just too overwhelmed with the idea of going gluten-free. Maybe I wouldn't have sought out a GI to figure out my issues if I had thought for a second that I could have celiacs.

0

Share this post


Link to post
Share on other sites

Is it common to start suggesting to family members who suffer the same digestive issues that you have get tested?

I have probably been driving my family nuts with all of this because I have no diagnosis of anything. Everything points to Celiac disease, but if I could just get one person in my life to care, it would be appreciated. I feel like I have been dealing with this on my own.

When I was diagnosed my GI doc suggested I tell other family members about it so they could get tested if necessary. I have mentioned it a few times, but I figure it's ultimately their decision. Although, I don't refrain from bringing it up when I hear them complain of their gut issues! Haha no better time to have that discussion! :)

0

Share this post


Link to post
Share on other sites

Hi there,

I have an opposite story. My Mom has had celiac for about 30 years and for a long time she has nagged me that I had it. I never had any symptoms and have always had a weight problem. I have had many auto immune diseases, but thought because I didn't have gut issues and was heavy, there was no way I could have it. Lo and behold, at 49 years old, I became very sick w/ DH. I ahve now had two tests come back positive for celiac (biopsy & celiac blood panel). I am dumbfounded. My Mother is gloating (not really). Now it's my turn to convince my sisters and extended family to be aware. I'm sure none of them will listen to me, either. All I can do is try.

Laura :rolleyes:

1

Share this post


Link to post
Share on other sites

I think we should have a discussionamong family members. All first degree relatives of a diagnosed celiac should takeit seriously. I have tried to explain my family but no one has done anythingabout it. But there are visitors who listen to me and are living a better life,until they get as sick as I was, they will not believe it. They think it

1

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,754
    • Total Posts
      932,210
  • Member Statistics

    • Total Members
      64,219
    • Most Online
      3,093

    Newest Member
    MalMask
    Joined
  • Popular Now

  • Topics

  • Posts

    • My question is, how long does it take for the anxiety to fade? My anxiety is out of this world. It's horrendous. I have health anxiety and it's real, and it's bad. I thought going gluten-free would help me and I think it's actually gotten worse. But I don't think that's from being gluten-free. I think having an AI disorder panicked me. I've been on the diet 6 months and it's going well for the most part, but like I said, the anxiety is no better. Does that just take a really long time?
    • Thank y'all for the info! His doc said he may not have celiac bc he doesn't look the part whatever that means I guess bc he's a big boy lol but he did the panel anyways And said he'll prob get false neg even if he has gluten issues . He also testing for b12 iron and his vit d, and inflammation. We already know his vit D is low he's been taking high amounts of D3 with magnesium for months now. Doc said could be possible MS but he had spinal tab a while back and physical test also nurve and muscle study and Nero said the results were perfect but he did have some white matter change in MRI but could be from head trauma he's had or high blood pressure or migraines . It's all too much to process sometimes. He's 26  But I would think bc his stomach issues have improved so much in the past weeks bc of going gluten free it makes me lean more towards gluten issues rather than MS wouldn't u think? 
    • Thanks  I didn't pay attention to how long ago this study came out and wasn't sure if anyone had any "recent" data or information. Plus, my retainer is a Hawley retainer and I think it's made of acrylic. I'm not sure that would even have gluten products in it. I'll keep wearing it.
    • My husband bought some McCormick's skillet sauce on Sunday and it says it's certified gluten free. We always use the gluten free seasoning and I've never had an issue. I've just noticed the last couple days that my tummy has been kinda funny and I can't really think of anything that I've eaten that would have caused it, so it may very well not be gluten. But I went to their website and checked out the ingredients and it lists worscestshire sauce as an ingredient. It also lists the ingredients in that and I don't see any malt - just distilled vinegar. But I haven't eaten worscestshire sauce since I was diagnosed because I thought it wasn't safe. But I trust McCormick and know they have a good reputation. Thoughts? Oh, and here's the link to the product.  https://www.mccormick.com/spices-and-flavors/cooking-sauces/skillet-sauces/fajita-skillet-sauce
    • First STAY on gluten til you are done testing, you need 12 weeks for blood test with it in your system and 2 weeks for hte follow up endoscope.  Second yes, if he has celiac then his intestines are damaged and he will not be getting all the nutrients his body needs, so even when off gluten you can have issues show up like this. These can be helped by supplementing I suggest a full B-vitamin regime, and magnesium myself, there are others he might be low in like iron, folate, potassium etc. You should probably see about having his levels checked and talking to a dietician about what me might need. I personally love this blend from liquid health called stress & energy and another one from them called neurological support that I take 1tbsp of each 3 times a day. Best part they are liquid so you just add them to tea, water, or juice. Another I might suggest is Doctors Best Magnesium or Natural Vitality Calm Magnesium Supplements. Doctors best is easier on the stomach while calm can cause gut issues and a laxative effect and it is suggest you start off with 1/4tsp doses and step it up from there to the full dose. I take 2-3 times the dose on this but we are all different in the levels we will need.
  • Upcoming Events