• Join our community!

    Do you have questions about celiac disease or the gluten-free diet?

  • Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
0
ShannonA

Accidental Exposure

Rate this topic

Recommended Posts

Oh no! I was 2 weeks in on a gluten free diet and I ate soy sauce. I am so nauseated I could kick myself! I really thought soy was made only of soy beans, how naive! I am bloated and I was doing so good and feeling better than I had in such a long time. GRRRRRRRRRRRRRRRRRR

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Oh no! I was 2 weeks in on a gluten free diet and I ate soy sauce. I am so nauseated I could kick myself! I really thought soy was made only of soy beans, how naive! I am bloated and I was doing so good and feeling better than I had in such a long time. GRRRRRRRRRRRRRRRRRR

Hi Shannon, I did the very same thing. Soy sauce. Same time frame. Was a bit of a wakup call, I am afraid of everything now :) I hope you start to feel better. And no kicking, you feel bad enough already. ;)

Share this post


Link to post
Share on other sites

Hope you feel better soon.. But a good lesson learned Please read labels or ask before putting any food in your mouth!!! This all takes time & knowledge but you too will get there....

Share this post


Link to post
Share on other sites

If you have a Whole Foods store near you, they sell a ton of different gluten free sauces that taste great. Gluten-free Tamari Soy Sauce, gluten-free Thai Peanut sauce, gluten-free Teriyaki, gluten-free BBQ sauce - the list goes on...

  • Upvote 1

Share this post


Link to post
Share on other sites

If you have a Whole Foods store near you, they sell a ton of different gluten free sauces that taste great. Gluten-free Tamari Soy Sauce, gluten-free Thai Peanut sauce, gluten-free Teriyaki, gluten-free BBQ sauce - the list goes on...

Thank you!

Share this post


Link to post
Share on other sites
Ads by Google:


Hope you feel better soon.. But a good lesson learned Please read labels or ask before putting any food in your mouth!!! This all takes time & knowledge but you too will get there....

Lesson learned! Sticking to basic food for a while

Share this post


Link to post
Share on other sites

Hi Shannon, I did the very same thing. Soy sauce. Same time frame. Was a bit of a wakup call, I am afraid of everything now :) I hope you start to feel better. And no kicking, you feel bad enough already. ;)

Im afraid too so basic food only

Share this post


Link to post
Share on other sites


Ads by Google:


It is a very hard lesson to learn but a great lesson. I think when this happens & one gets ill then they usually never will decide to ever cheat!..Feel better soon...

Any mistake can be turned around to make a good lesson so really no bad mistakes if we learn & grow from them...

Share this post


Link to post
Share on other sites

That was my first mistake too!

A friend and I went out to "celebrate" my new gluten free diet!

We decided on a chinese buffet!

It was yummy!

And I was sick for a whole week!

And then I read that Soy sauce is actually "wheat sauce" or "gluten-juice. Ugh...oh my god...I feel your pain.

I very quickly started googling everything before I put it in my mouth.

And reading labels.

And soon after that...

Ate at an Arabic restaurant and happily ordered kebabs and rice and NO pita bread. While mindlessly eating my last three bites of rice....I realize there are those little vermicelli things in the rice! Oh no! And there was another week of sickness and horrible migraines. Very shortly I stopped eating out completely because I clearly didn't know enough about this beast called gluten...to know how to avoid him.

Talk about "Scared Straight" !!! :)

That was when I realized that avoiding gluten unsuccessfully was kinda like a playing a contact sport and getting your ass kicked repeatedly.

I started learning then. :)

Share this post


Link to post
Share on other sites

That was my first mistake too!

A friend and I went out to "celebrate" my new gluten free diet!

We decided on a chinese buffet!

It was yummy!

And I was sick for a whole week!

And then I read that Soy sauce is actually "wheat sauce" or "gluten-juice. Ugh...oh my god...I feel your pain.

I very quickly started googling everything before I put it in my mouth.

And reading labels.

And soon after that...

Ate at an Arabic restaurant and happily ordered kebabs and rice and NO pita bread. While mindlessly eating my last three bites of rice....I realize there are those little vermicelli things in the rice! Oh no! And there was another week of sickness and horrible migraines. Very shortly I stopped eating out completely because I clearly didn't know enough about this beast called gluten...to know how to avoid him.

Talk about "Scared Straight" !!! :)

That was when I realized that avoiding gluten unsuccessfully was kinda like a playing a contact sport and getting your ass kicked repeatedly.

I started learning then. :)

Yep no more eating out for a while, even though it's hard I'm trying to stick to natural foods. I'm still nauseated but hopefully it's almost over

Share this post


Link to post
Share on other sites


Ads by Google:


That was my first mistake too!

A friend and I went out to "celebrate" my new gluten free diet!

We decided on a chinese buffet!

It was yummy!

And I was sick for a whole week!

And then I read that Soy sauce is actually "wheat sauce" or "gluten-juice. Ugh...oh my god...I feel your pain.

I very quickly started googling everything before I put it in my mouth.

And reading labels.

And soon after that...

Ate at an Arabic restaurant and happily ordered kebabs and rice and NO pita bread. While mindlessly eating my last three bites of rice....I realize there are those little vermicelli things in the rice! Oh no! And there was another week of sickness and horrible migraines. Very shortly I stopped eating out completely because I clearly didn't know enough about this beast called gluten...to know how to avoid him.

Talk about "Scared Straight" !!! :)

That was when I realized that avoiding gluten unsuccessfully was kinda like a playing a contact sport and getting your ass kicked repeatedly.

I started learning then. :)

I'm five weeks into this and I am terrified to eat out! I've been sick for so many years I don't want to take any chances. Do you ever get over this fear? I recently learned that if you kiss someone who just ate gluten that that's cross contamination! My niece found that out the hard way with her boyfriend. She was sick for weeks before they figured it out. I'm single and can't even imagine how I deal with that on new dates. It's embarrassing enough to make the fuss to get a gluten-free meal..... yikes. anyone have advice? Penny

Share this post


Link to post
Share on other sites

Help with the kissing or the eating out?? Haha 😝 I learned cross contamination by kissing the hard way, phew that only took me once!! Now eating out is a tough subject, you have got to find a place you can trust. I live in a small town and the restaurants here are owned by people I've become friends with, easy to get aroun gluten when they are well informed. Now, when I travel, I google for gluten-free menus, place phone calls, read comments by other gluten free people, and quiz the wait staff. The biggest thing is for you to be aware of what you can and can't eat and don't be afraid to tell them, it's our health not theirs! Lol another thing I do is leave a comment on their website. If I've had a great experience, I like for them to know, positive feedback reinforces that they are doing well! A properly trained staff is half the battle! Good luck! :)

  • Upvote 1

Share this post


Link to post
Share on other sites

I made that mistake 3 months in. I knew about soy sauce and went out for sushi. Did not have soy, but my spicy tuna and my son shared some of his roll with me that was a california roll with tuna on top. woke up the next day to a rash all over my belly. looked online and the imitation crab in the california roll is full of gluten. As far as eating out, I try to call ahead when going somewhere new to see what they offer and knowledgeable they are. Last weekend I was out with my family and we tried a mediterrain cafe on a whim. I asked the owner what she would recommend for me, and she has another customer that is gluten free, so told me the exact plate I should order and knew that her rice, hummus and all salad dressing were gluten-free. I didn't even look at the menu. It seems the best way to eat out is to ask the waiter/waitress what the chef recommends that is gluten-free. when I don't do that, I usually get sick. Hope that helps with eating out.

Share this post


Link to post
Share on other sites

Being fearful of eating out will be there- there are good safe places to eat, so long as the person taking care of you knows what they are doing! I have been to Outback and PF Changs each once, both fabulous experiences, great knowledge and super nice and helpful. I also eat at Chipotle once a week, no problem, I order a bowl, they wash hands and change gloves, and get fresh cheese from the back for me. Never had a problem there, I do lots of homework, ask questions, and know how comfortable I feel at a particular place, I stick to dedicated gluten free menus and eat out not very often, but I also want to learn to live with this diet the rest of my life, keep being social, but not being sick in the process.

When I went to PF Changs, I felt like I was being treated special, my own gluten free sauce, a special plate, the manager even bought me a gluten free dessert which was yummmmy!!!

Do your homework, I don't eat anything new without reading a label- I have made probably 20 calls or emails about products, medications, etc to determine if they are gluten free. It takes work, but you will learn to be an investigator!

Share this post


Link to post
Share on other sites

Being fearful of eating out will be there- there are good safe places to eat, so long as the person taking care of you knows what they are doing! I have been to Outback and PF Changs each once, both fabulous experiences, great knowledge and super nice and helpful. I also eat at Chipotle once a week, no problem, I order a bowl, they wash hands and change gloves, and get fresh cheese from the back for me. Never had a problem there, I do lots of homework, ask questions, and know how comfortable I feel at a particular place, I stick to dedicated gluten free menus and eat out not very often, but I also want to learn to live with this diet the rest of my life, keep being social, but not being sick in the process.

When I went to PF Changs, I felt like I was being treated special, my own gluten free sauce, a special plate, the manager even bought me a gluten free dessert which was yummmmy!!!

Do your homework, I don't eat anything new without reading a label- I have made probably 20 calls or emails about products, medications, etc to determine if they are gluten free. It takes work, but you will learn to be an investigator!

I LOVE going to PF Changs!!! Its a place I can go to and actually feel comfortable and normal!

There's a couple apps for smart phones that will help you locate gluten free restaurants in your area. They also include reviews and other people will post their experiences at those restaurants. Its been very helpful for me - the apps are "Gluten Free Registry" which is free and "Find Me Gluten Free."

Share this post


Link to post
Share on other sites


Ads by Google:


Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,896
    • Total Posts
      943,402
  • Member Statistics

    • Total Members
      67,038
    • Most Online
      3,093

    Newest Member
    Susie swanson
    Joined
  • Popular Now

  • Topics

  • Posts

    • Hi, I am a 24 year old male , with no family history of Celiac.  I have low testosterone.  they did a Biopsy today and during the scope the Doctor said I have Gastritis in upper stomach.  My lab are as follows:   Immunoglobulin A, Qn, Serum 132 90-386 (mg/dL) F Deamidated Gliadin Abs, IgA 3 0-19 (units) - Negative 0 - 19 - Weak Positive 20 - 30 - Moderate to Strong Positive >30 F Deamidated Gliadin Abs, IgG 2 0-19 (units) - Negative 0 - 19 - Weak Positive 20 - 30 - Moderate to Strong Positive >30 F t-Transglutaminase (tTG) IgG 21  H 0-5 (U/mL) - Negative 0 - 5 - Weak Positive 6 - 9 - Positive >9 F Endomysial Antibody IgA Negative Negative  F t-Transglutaminase (tTG) IgA <2 0-3 (U/mL) - Negative 0 - 3 - Weak Positive 4 - 10 - Positive >10   I am wondering the probability that I have celiac?
    • Get pictures if you can and contact GFWD if true and perhaps we can inform others better about this issue.
    • First this is a old post please check date, second, are you celiac/been tested? You should probably see about a gluten challenge and testing if you have not. Or are you confirmed to have a gluten/wheat allergy? What kind of testing was done to determine this? Or is it a NCGS gluten issue? Sorry for the questions but different people have different issues and it is a bit hard to address them without more information. Perhaps start a new thread and feel free to introduce yourself. We always welcome new members and are glad to help out. You mention allergy but also mention swelling stomach/gut which is is sometime a celiac reaction generally.  
    • My husband & I used to be beekeepers. It would be almost impossible for wheat protein to get into honey. The honey is inside the hive; it's not like it's laying out in the open in a plate or a bowl. Here's a hive.: https://www.mannlakeltd.com/10-frame-traditional-growing-apiary-kit-wood-frames-painted?gclid=CjwKCAiA4vbSBRBNEiwAMorER1htsezzCA5djegusWEGx_DzRHG4xePYQIxxd1paGZy4ibxMR_dSFxoCFUoQAvD_BwE The bees have a narrow opening at the bottom of the hive where they enter & exit & when they enter then they climb upward inside the hive. The bottom section is the brood chamber where the queen lays eggs & eventually become bees. At the top of that section is something called a queen excluder which is generally a metal screen type thing with holes in it. The queen is larger than the workers so the holes are smaller than the queen in order to keep her in the brood chamber. This is so she doesn't go laying eggs all over the hive. The workers fit through the excluder allowing them to go to the supers (boxes) above where the nectar is deposited in honeycomb & turned into honey & when a cell is full, they cap it off. You've seen honeycomb before. So when harvest time comes, the beekeeper takes the full (of honey) supers off the brood chamber & replaces them with empty (of honey) supers so the bees can start filling those up. The full supers get taken to what we call the honey house which is where extraction takes place. Here's a YouTube video of honey extraction. As you can see, this is not anywhere that other food is being made or prepared. Other food does not get done in honey production. It's a class all it's own. There's not going to be any wheat barley or rye there.   
    • I noticed my  gluten sensitivity problem started 2 yeats ago after I had my gallbladder removed.  I had to figure it out on my own what my problem was .my sister -who is a nurse practitioner -suggested to me that maybe I am allergic to gluten? I asked her what is gluten ?that was two years ago I have noticed a definite correlation between all my gastrointestinal problems starting after my gallbladder was removed.  as soon as I accidentally ingest gluten my stomach swells up so tight it feels like it will burst have a terrible pain right at the site of where my gall bladder was removed.  I'm so thankful for the site I've learned so much from all of you it is a hard road to travel to try to find things and you can eat that will not make you sick keep posting. I think it gives all of us encouragement! thank you.
  • Upcoming Events