• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.
  • Celiac.com Sponsor:
    Celiac.com Sponsor:

Accidental Exposure
0

15 posts in this topic

Oh no! I was 2 weeks in on a gluten free diet and I ate soy sauce. I am so nauseated I could kick myself! I really thought soy was made only of soy beans, how naive! I am bloated and I was doing so good and feeling better than I had in such a long time. GRRRRRRRRRRRRRRRRRR

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Oh no! I was 2 weeks in on a gluten free diet and I ate soy sauce. I am so nauseated I could kick myself! I really thought soy was made only of soy beans, how naive! I am bloated and I was doing so good and feeling better than I had in such a long time. GRRRRRRRRRRRRRRRRRR

Hi Shannon, I did the very same thing. Soy sauce. Same time frame. Was a bit of a wakup call, I am afraid of everything now :) I hope you start to feel better. And no kicking, you feel bad enough already. ;)

0

Share this post


Link to post
Share on other sites

Hope you feel better soon.. But a good lesson learned Please read labels or ask before putting any food in your mouth!!! This all takes time & knowledge but you too will get there....

0

Share this post


Link to post
Share on other sites

If you have a Whole Foods store near you, they sell a ton of different gluten free sauces that taste great. Gluten-free Tamari Soy Sauce, gluten-free Thai Peanut sauce, gluten-free Teriyaki, gluten-free BBQ sauce - the list goes on...

1

Share this post


Link to post
Share on other sites

If you have a Whole Foods store near you, they sell a ton of different gluten free sauces that taste great. Gluten-free Tamari Soy Sauce, gluten-free Thai Peanut sauce, gluten-free Teriyaki, gluten-free BBQ sauce - the list goes on...

Thank you!

0

Share this post


Link to post
Share on other sites
Ads by Google:


Hope you feel better soon.. But a good lesson learned Please read labels or ask before putting any food in your mouth!!! This all takes time & knowledge but you too will get there....

Lesson learned! Sticking to basic food for a while

0

Share this post


Link to post
Share on other sites

Hi Shannon, I did the very same thing. Soy sauce. Same time frame. Was a bit of a wakup call, I am afraid of everything now :) I hope you start to feel better. And no kicking, you feel bad enough already. ;)

Im afraid too so basic food only

0

Share this post


Link to post
Share on other sites

It is a very hard lesson to learn but a great lesson. I think when this happens & one gets ill then they usually never will decide to ever cheat!..Feel better soon...

Any mistake can be turned around to make a good lesson so really no bad mistakes if we learn & grow from them...

0

Share this post


Link to post
Share on other sites

That was my first mistake too!

A friend and I went out to "celebrate" my new gluten free diet!

We decided on a chinese buffet!

It was yummy!

And I was sick for a whole week!

And then I read that Soy sauce is actually "wheat sauce" or "gluten-juice. Ugh...oh my god...I feel your pain.

I very quickly started googling everything before I put it in my mouth.

And reading labels.

And soon after that...

Ate at an Arabic restaurant and happily ordered kebabs and rice and NO pita bread. While mindlessly eating my last three bites of rice....I realize there are those little vermicelli things in the rice! Oh no! And there was another week of sickness and horrible migraines. Very shortly I stopped eating out completely because I clearly didn't know enough about this beast called gluten...to know how to avoid him.

Talk about "Scared Straight" !!! :)

That was when I realized that avoiding gluten unsuccessfully was kinda like a playing a contact sport and getting your ass kicked repeatedly.

I started learning then. :)

0

Share this post


Link to post
Share on other sites

That was my first mistake too!

A friend and I went out to "celebrate" my new gluten free diet!

We decided on a chinese buffet!

It was yummy!

And I was sick for a whole week!

And then I read that Soy sauce is actually "wheat sauce" or "gluten-juice. Ugh...oh my god...I feel your pain.

I very quickly started googling everything before I put it in my mouth.

And reading labels.

And soon after that...

Ate at an Arabic restaurant and happily ordered kebabs and rice and NO pita bread. While mindlessly eating my last three bites of rice....I realize there are those little vermicelli things in the rice! Oh no! And there was another week of sickness and horrible migraines. Very shortly I stopped eating out completely because I clearly didn't know enough about this beast called gluten...to know how to avoid him.

Talk about "Scared Straight" !!! :)

That was when I realized that avoiding gluten unsuccessfully was kinda like a playing a contact sport and getting your ass kicked repeatedly.

I started learning then. :)

Yep no more eating out for a while, even though it's hard I'm trying to stick to natural foods. I'm still nauseated but hopefully it's almost over

0

Share this post


Link to post
Share on other sites

That was my first mistake too!

A friend and I went out to "celebrate" my new gluten free diet!

We decided on a chinese buffet!

It was yummy!

And I was sick for a whole week!

And then I read that Soy sauce is actually "wheat sauce" or "gluten-juice. Ugh...oh my god...I feel your pain.

I very quickly started googling everything before I put it in my mouth.

And reading labels.

And soon after that...

Ate at an Arabic restaurant and happily ordered kebabs and rice and NO pita bread. While mindlessly eating my last three bites of rice....I realize there are those little vermicelli things in the rice! Oh no! And there was another week of sickness and horrible migraines. Very shortly I stopped eating out completely because I clearly didn't know enough about this beast called gluten...to know how to avoid him.

Talk about "Scared Straight" !!! :)

That was when I realized that avoiding gluten unsuccessfully was kinda like a playing a contact sport and getting your ass kicked repeatedly.

I started learning then. :)

I'm five weeks into this and I am terrified to eat out! I've been sick for so many years I don't want to take any chances. Do you ever get over this fear? I recently learned that if you kiss someone who just ate gluten that that's cross contamination! My niece found that out the hard way with her boyfriend. She was sick for weeks before they figured it out. I'm single and can't even imagine how I deal with that on new dates. It's embarrassing enough to make the fuss to get a gluten-free meal..... yikes. anyone have advice? Penny

0

Share this post


Link to post
Share on other sites

Help with the kissing or the eating out?? Haha 😝 I learned cross contamination by kissing the hard way, phew that only took me once!! Now eating out is a tough subject, you have got to find a place you can trust. I live in a small town and the restaurants here are owned by people I've become friends with, easy to get aroun gluten when they are well informed. Now, when I travel, I google for gluten-free menus, place phone calls, read comments by other gluten free people, and quiz the wait staff. The biggest thing is for you to be aware of what you can and can't eat and don't be afraid to tell them, it's our health not theirs! Lol another thing I do is leave a comment on their website. If I've had a great experience, I like for them to know, positive feedback reinforces that they are doing well! A properly trained staff is half the battle! Good luck! :)

1

Share this post


Link to post
Share on other sites

I made that mistake 3 months in. I knew about soy sauce and went out for sushi. Did not have soy, but my spicy tuna and my son shared some of his roll with me that was a california roll with tuna on top. woke up the next day to a rash all over my belly. looked online and the imitation crab in the california roll is full of gluten. As far as eating out, I try to call ahead when going somewhere new to see what they offer and knowledgeable they are. Last weekend I was out with my family and we tried a mediterrain cafe on a whim. I asked the owner what she would recommend for me, and she has another customer that is gluten free, so told me the exact plate I should order and knew that her rice, hummus and all salad dressing were gluten-free. I didn't even look at the menu. It seems the best way to eat out is to ask the waiter/waitress what the chef recommends that is gluten-free. when I don't do that, I usually get sick. Hope that helps with eating out.

0

Share this post


Link to post
Share on other sites

Being fearful of eating out will be there- there are good safe places to eat, so long as the person taking care of you knows what they are doing! I have been to Outback and PF Changs each once, both fabulous experiences, great knowledge and super nice and helpful. I also eat at Chipotle once a week, no problem, I order a bowl, they wash hands and change gloves, and get fresh cheese from the back for me. Never had a problem there, I do lots of homework, ask questions, and know how comfortable I feel at a particular place, I stick to dedicated gluten free menus and eat out not very often, but I also want to learn to live with this diet the rest of my life, keep being social, but not being sick in the process.

When I went to PF Changs, I felt like I was being treated special, my own gluten free sauce, a special plate, the manager even bought me a gluten free dessert which was yummmmy!!!

Do your homework, I don't eat anything new without reading a label- I have made probably 20 calls or emails about products, medications, etc to determine if they are gluten free. It takes work, but you will learn to be an investigator!

0

Share this post


Link to post
Share on other sites

Being fearful of eating out will be there- there are good safe places to eat, so long as the person taking care of you knows what they are doing! I have been to Outback and PF Changs each once, both fabulous experiences, great knowledge and super nice and helpful. I also eat at Chipotle once a week, no problem, I order a bowl, they wash hands and change gloves, and get fresh cheese from the back for me. Never had a problem there, I do lots of homework, ask questions, and know how comfortable I feel at a particular place, I stick to dedicated gluten free menus and eat out not very often, but I also want to learn to live with this diet the rest of my life, keep being social, but not being sick in the process.

When I went to PF Changs, I felt like I was being treated special, my own gluten free sauce, a special plate, the manager even bought me a gluten free dessert which was yummmmy!!!

Do your homework, I don't eat anything new without reading a label- I have made probably 20 calls or emails about products, medications, etc to determine if they are gluten free. It takes work, but you will learn to be an investigator!

I LOVE going to PF Changs!!! Its a place I can go to and actually feel comfortable and normal!

There's a couple apps for smart phones that will help you locate gluten free restaurants in your area. They also include reviews and other people will post their experiences at those restaurants. Its been very helpful for me - the apps are "Gluten Free Registry" which is free and "Find Me Gluten Free."

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      107,035
    • Total Posts
      933,941
  • Member Statistics

    • Total Members
      64,607
    • Most Online
      3,093

    Newest Member
    BSJOT
    Joined
  • Popular Now

  •  

  • Topics

  • Posts

    • hey i've been vegetarian for 8 years and gluten free for almost a year. its difficult since they are kind of opposites. i actually just noticed the advertisemnts from the cancer counil here is australia now has meat listed next to alchol, cigarettes and the sun. a few years ago when i read about it, it seemed hot dogs and super processed meats like salami were the only issue. which i only remember when i see a sausage sizzle to raise money for cancer lol  but it surprised me that now the guidelines are including red meat as well and smaller amounts. https://www.cancercouncil.com.au/1752/cancer-prevention/diet-exercise/nutrition-diet/other-foods-nutrients/meat-and-cancer-3/ so i would reccomend easing into it and slowly replace meat with alternatives to make sure you are getting enough protein etc get your iron and b12 levels checked every now and then. buffalo cauliflower and eggplant schnitzels are two of my favorites. you can also make alot of cheeses and sauces out of nuts and tofu. i also eat alot of falafel, hommus and tahini. i can send you some links to recipes if you like
    • I'm going to guess the additive effect of a few months of mystery CC glutenings (since resolved), plus heavy training load. The last time I had my antibodies/iron checked in Feb 2016, both were good. Since diagnosis to that point, I'd been taking iron supplements only sporadically, but stopped altogether at that point as my ferritin was quite high (hemochromatosis runs in my family, so some concern about taking too much iron). Unfortunately, my DH is only speculative - I've seen a dermatologist in an attempt to get it biopsied/prescribed Dapsone, but she was convinced it had to be acne as it "did not look exactly like in her textbook." My protestations that this was because it she was looking at the remains of a rash that I'd picked the heck out of were sadly ignored. I do have a GI appointment coming up in a few weeks though.
    • I'd love to visit! I'm half Irish and half English and would so adore to see Ireland. I loved England when I visited a million years ago. People were so kind.
    • Whatever you do,  run to the store now and eat donuts and bagels. Because I think when your endoscopy is done and over with you're not going to see them again. There are a lot of really good gluten-free cookies, cupcakes, brownies, etc.  Donuts and bagels... not so much. Hope you feel better soon after you get some answers! 
    • Thank you! Im going to check them out now
  • Upcoming Events