This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.
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What are the major symptoms of celiac disease?
Celiac Disease Symptoms
What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic)
Celiac Disease Screening
Interpretation of Celiac Disease Blood Test Results
Can I be tested even though I am eating gluten free?
How long must gluten be taken for the serological tests to be meaningful?
The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free
Is celiac inherited? Should my children be tested?
Ten Facts About Celiac Disease Genetic Testing
Is there a link between celiac and other autoimmune diseases?
Celiac Disease Research: Associated Diseases and Disorders
Is there a list of gluten foods to avoid?
Unsafe Gluten-Free Food List (Unsafe Ingredients)
Is there a list of gluten free foods?
Safe Gluten-Free Food List (Safe Ingredients)
Gluten-Free Alcoholic Beverages
Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?
Where does gluten hide?
Additional Things to Beware of to Maintain a 100% Gluten-Free Diet
What if my doctor won't listen to me?
An Open Letter to Skeptical Health Care Practitioners
Where can I buy gluten-free stuff?
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I can converse at a basic level but relatives who are Okinawan and live here were supposed to help me (they do not speak English). I also have a printout in kana and kanji explaining my dietary restrictions. Relatives intentions are 100% good but clearly do not understand cross contamination and that even if they cannot see the "mugi" it will still make me sick despite repeated explanations. I also need to be very careful not to offend relatives as this is a very sensitive time (I am here for research & also due to a recent death in family). So I am on my own. If I knew it was going to be this nightmarish eating gluten free I would have packed a week worth of canned food and shipped in a checked luggage bag. I will try to see if I can go to relatives house and boil eggs myself but that probably won't be until Thursday at the earliest. Packaged foods are scaring me at this point as I don't know what is safe to eat - i know that just because the word "mugi" isn't in the label doesn't mean it necessarily is gluten free.
Ugg I feel you there huge japan fan here, normally I would suggest nordicware, microwave cooking ware, and buying raw fish, egg,s and veggies then cooking in the steamer, grill plate, and omelette maker for these kinds of trips or bringing meal bars. I have carb issues also and eat ketogenic, while they might not taste that good julian bakery make protein bars that are dairy, gluten free and ketogenic diet approved with low carbs, they also make a grain free granola mix , breads etc.
Hmm are you good with Japanese? I can get you some romanized phrases for medical terms, food, and gluten related questions so you can try to talk them over with people. I have not been up there in years but I have a old friend up there who used to be a navy medic and lives near there who I would have help me out with issues and finding stuff. Wish I could offer more help, this last minute kind of thing there is not much I can do.
while "Mugi" Refers to barely gluten is referred to pronounced as "guruten" my japanese is a little odd and rotational. I will sometimes use a polite term of oneself as watashi other times and inopportune use other terms, SOO teaching someone phrases is a bit of a issue for me. I can try to words it as cute and polite as I can think with terms funny how using third person and detaching oneself in speech is considered polite.
I'm in Okinawa for a week to visit family and for research-related reasons, and despite research on eating gluten-free in Okinawa, things have been unexpected and going wrong from the start. I've been here for 24 hours now and have already ingested at least 3 items with gluten
(I just got over what doctor was pretty sure was refractory celiac and was recovering well even after a big scare with eating barley after mix-up with a specifically prepared meal for an academic banquet). Now after the past 24h appear to be developing severe neurological symptoms. lymph nodes around neck are palpable and neck is extremely painful. Arms are weak and semi-numb on left side, clumsiness, arms and feet are burning in areas, balance issues, myoclonic twitching, visual impairment on left side (have confirmed optic neuritis), brain fog, EXTREME thirst (drinking 3-4 L water and still thirsty), and fibromyalgia -like symptoms. I took prednisone that my doctor gave me but doesn't seem to help much at all. I have contacted my doctor in states but don't think she can do anything until I am back and with lack of understanding for celiac here I don't think going to hospital is a good idea (not to mention have no idea costs with US health insurance),
Stomach is growling but I currently am nauseated, feeling extreme fullness and have absolutely no appetite but will have to force myself to eat something in AM as i have to somehow make a professional research presentation. Is there ANYTHING i can do to lessen symptoms? Has anyone been in Okinawa and able to eat gluten free? -if so, can you please suggest what to eat from what store - I can read hiragana and katakana and a few kanji but am not fluent in Japanese. I have a small fridge but no stove in this hotel. I am in Naha and can't travel far, especially more so with symptoms. I can't eat fruit (fructose malabsorption), asked relative to boil eggs (she bought store pre-boiled eggs which I am scared to eat despite the lack of the kanji for "mugi" on the label), when I am having neurological symptoms any carbohydrate exacerbates symptoms, and I'm concerned that something like nuts or beans may worsen inflammation and symptoms if there is recent GI damage
So here's my adderall report.... I take it in the am, after my other melds and coffee. It's the XR version so it lasts all day for me, but the most helpful part is the first 4 hours. It takes a little while to kick in, and then I notice a calming effect. I'm usually very anxious so this is nice. I notice I'm more positive, and feel actually pretty happy, although I've got some major things pressing down on me I feel like I can think about them straight and get them taken care of, instead of panicking. I'm not starving all the time like I usually am. I felt hungry since I started taking my thyroid med and am worried I started gaining a bit of weight due to eating more. Now I don't feel like I need to eat between meals. I'm back to making every bite count towards nutrition. I've been better at taking care of more adult type duties. I'm happy to say that it's been a very good experience so far and I don't feel like I'm taking so much that I get a high from it. A decade or more ago I took double the dose I'm at now and I can tell you I was feeling that super happy high when it first kicked in, and although it felt great, it scared me as that is so on the path to some major addiction issues, you know? I can tell you that the current dose makes me feel like I did in my 20's, and I was pretty kick a$$ then, lol!