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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Discouraged About My Diet - Need Support Please
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16 posts in this topic

Hi everyone,

I think I know why I am not feeling as well as I expected to by now.

1. I ate some chips ALL last week that I just learned are not gluten-free. I thought I was doing so well avoiding gluten, and now I am back at square one :(

2. I haven't been eating as many WHOLE foods as I should be. I am having a really hard time changing my eating habits from "processed" to "whole". I have always had a sweet tooth, and I have always eaten a lot of processed foods. I am having a hard time changing that habit. But I bet if I did, my gut would start healing a lot faster.

I am really discouraged because I am just having a really hard time with this diet, and I feel like I am back at square one.

Thanks for listening,

Sunny

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If you allow yourself to fill up enough on the real foods, you will have less cravings for the processed ones. If you are eating lots of chips, try instead putting a potato in the microwave to bake it (few minutes, big results) and then loading it with everything you can, as a snack, such as salt, olive oil, yogurt, shredded cheese, etc. The potato, loaded, will still have less calories and more bulk and fiber than chips, and be more satisfying after you eat it.

I also take and boil 6 to 8 hard-boiled eggs at a time, to keep in the refrigerator, for breakfast, snacks, and for making quick potato salads. My husband frequently bakes extra potatoes, because he knows that they can turn into small batches of potato salad very quickly, if there are potatoes and eggs already cooked and waiting in the refrigerator. I put carrots and sweet red bell peppers in that a lot of times, instead of celery. So now there is a bit of sweet taste naturally.

You also need to shop for, and keep in the house, all the stuff that is good for you to eat as snacks. People eat what is convenient to them.

If I do not take gluten free vitamin and mineral supplements, and am eating enough fats and vegetables besides fruit, I am wanting a lot of junk food. The other thing to be careful of is that you drink enough WATER, especially in the summer time when it is hot.

p.s. we all have been there, eating something we shouldn't have, and discovering it wasn't safe after all when we reacted to it. throw it out and get a natural replacement.

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If you allow yourself to fill up enough on the real foods, you will have less cravings for the processed ones. If you are eating lots of chips, try instead putting a potato in the microwave to bake it (few minutes, big results) and then loading it with everything you can, as a snack, such as salt, olive oil, yogurt, shredded cheese, etc. The potato, loaded, will still have less calories and more bulk and fiber than chips, and be more satisfying after you eat it.

I also take and boil 6 to 8 hard-boiled eggs at a time, to keep in the refrigerator, for breakfast, snacks, and for making quick potato salads. My husband frequently bakes extra potatoes, because he knows that they can turn into small batches of potato salad very quickly, if there are potatoes and eggs already cooked and waiting in the refrigerator. I put carrots and sweet red bell peppers in that a lot of times, instead of celery. So now there is a bit of sweet taste naturally.

You also need to shop for, and keep in the house, all the stuff that is good for you to eat as snacks. People eat what is convenient to them.

If I do not take gluten free vitamin and mineral supplements, and am eating enough fats and vegetables besides fruit, I am wanting a lot of junk food. The other thing to be careful of is that you drink enough WATER, especially in the summer time when it is hot.

p.s. we all have been there, eating something we shouldn't have, and discovering it wasn't safe after all when we reacted to it. throw it out and get a natural replacement.

Takala,

Thanks for the advice. That is a good idea about the baked potatoes. I think you hit the nail on the head - the key is not buying all that processed junk in the first place and stocking up on good, whole foods! Easier said than done, but I am going to have to try. ;)

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Apple slices with peanut butter on top deliver the crunch and a bit of the saltiness of chips.

I keep a bag of broccoli in my fridge for quick snacks. Also raw pumpkin seeds, carrots, celery sticks, blueberries and strawberries.

I agree with Takala. The more you eat the whole foods, the more your body wants less of the processed stuff. At first, you have to be really mindful about what you are reaching for but as you get more into the habit, it will be easier. Plus, your body starts to crave the whole foods.

Oh yes, red bell peppers are awesome for just snacking on.

Hope it goes well and if you need more encouragement, keep us posted!

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When I first quit eating gluten I felt the same way. I craved food all the time and after about a three months of not eating gluten I was feeling great, but I still craved bread like it was nobodys business and one day I caved and I went and got myself a huge sub to eat. Needless to say I got very sick and regretted it almost immediately after I consumed it. I felt awful, like an addict who had just relapsed. Every time after that when I had a craving for anything with gluten in it I just told myself that it sucked and I couldn't have it because of how physically ill it made me. Letting myself feel bad for myself made it easier for me to get through all the cravings. I've been gluten-free for four years now and occasionally I get cravings still but I just go find something that I like that's similar to what I'm craving and that I can eat without being ill.

You're still new to this and I promise it gets easier. It's ok to feel down about it every once in awhile. It's hard to completely change what you're allowed to eat very suddenly when what you're not allowed to eat and is delicious and known is still all around you. You'll find a way to cope and I wish you luck with it.

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It takes some time to get used to a completely new way of eating. I think most of us eventually reached that point where we just about gave up eating because we were relying on a few gluten-free processed foods. (You can only eat Cheetos and Hershey Bars so many days in a row!)

Eventually it sinks in that this is your LIFE now...not a temporary thing, and so you need to make a change and learn to cook. It was a bit traumatic for me, I admit. But I survived, and you will too. Start small and simple, as recommended. Baked potatoes, hardboiled eggs... the more your tastebuds become accustomed to whole foods, and the more you get away from the habit of easy convenience junk food, you really will develop new tastes. You will likely be pleasantly surprised, as many of us were, to find out there is a whole world full of delicious food that doesn't come in a package!

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Hi everyone,

Thanks all for the support! I appreciate it. I am just now realizing that I am going to have to learn how to cook so that I don't rely on packaged stuff all the time. The thought of cooking is daunting to me LOL.

But I am still having multiple food intolerances, which I never had before getting sick. Is this common? Sometimes I wonder if there is something else going on besides gluten intolerance...

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Tosca Reno's Eat Clean Diet is a good book for advice on how to prepare and pack healthy food so you don't slip back to bad habits. It's not a gluten-free book, but it is REALLY low on grains and has lots of healthy whole food ideas.

I hope your other food intolerances calm down once your body heals.

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Crave chips? You can easily make your own with no added fat on a microwave thinger called a Chipster. You can season as you wish. I bought a thing bigger than a Chipster and it's actually quite nice. Usually I am unimpressed with such gadgets but this thing is very cool. My favourite flavours are sour cream and chive/salt and vinegar.

Hope you soon have better days! :)

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Sunny,

You have been gluten free for 3 weeks or so, right?

Hon, do not expect a "quick fix".

NO ONE --I repeat NO ONE !----I know feels great in such a short time.

You have to be patient. :)

Sorry, but this is the truth.

Stay the course and eat plain, whole foods. Dump dairy at first.

Hang in there!

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Sunny, this is soooo fast & easy!

Peel an apple & cut it up into a microwavable bowl. Add just a touch of water. Sprinkle the top with dark brown sugar & cinnamon & drizzle with safflower oil or oil of your choice. Nuke it for about 1 minute. YUM! And when you can tolerate dairy then you can pour some milk in it. Tastes like baked apples but didn't take an hour in the oven.

You can do the same with pears.

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Sunny,

You have been gluten free for 3 weeks or so, right?

Hon, do not expect a "quick fix".

NO ONE --I repeat NO ONE !----I know feels great in such a short time.

You have to be patient. :)

Sorry, but this is the truth.

Stay the course and eat plain, whole foods. Dump dairy at first.

Hang in there!

Thanks IrishHeart! I am hanging in there and trying to be patient. I just never knew how much damage gluten could cause! Many people (not on this site) said I should be feeling better after a month on the gluten-free diet, but obviously, that's not the case for all of us!

Sunny

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And for a whole month I thought I was eating gluten free when I began the diet. Then at the end of Nov. my hubs said, "Hey, this says it has wheat in it". Grrrrrrrrrrrr, one thing in the kitchen cabinet I thought I had checked but obviously hadn't! So, my first month totally down the drain. Start at day one again. Boy, was I ever depressed!

We all do it in the beginning.

Lighten up on yourself. You'll get there. I did.smile.gif

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Thanks IrishHeart! I am hanging in there and trying to be patient. I just never knew how much damage gluten could cause! Many people (not on this site) said I should be feeling better after a month on the gluten-free diet, but obviously, that's not the case for all of us!

Sunny

Sweetie,

The "norm" is 6 months to a year for recovery.

As for cooking, what did you eat BEFORE the DX?

Meat, potatoes, veggies, rice, fruits, nuts, eggs, beans, stews, soups, right?

You can still Eat THOSE. :)

In place of bread or pasta, choose ONE Certified gluten-free product.

Maybe Canyon Bakehouse or Rudy's bread and Tinkyada Pasta or BiAglut corn Pasta.

Avoid dairy. Try So Delicious Coconut Milk.

Hope this helps.

IH

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Sweetie,

The "norm" is 6 months to a year for recovery.

As for cooking, what did you eat BEFORE the DX?

Meat, potatoes, veggies, rice, fruits, nuts, eggs, beans, stews, soups, right?

You can still Eat THOSE. :)

In place of bread or pasta, choose ONE Certified gluten-free product.

Maybe Canyon Bakehouse or Rudy's bread and Tinkyada Pasta or BiAglut corn Pasta.

Avoid dairy. Try So Delicious Coconut Milk.

Hope this helps.

IH

IrishHeart,

Thank you for all the info and advice. I would really be lost without this site. I am sticking to those foods you mentioned - meat, fish, veggies, potatoes, fruit, etc...and trying to be patient! ;)

Sunny

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IrishHeart,

Thank you for all the info and advice. I would really be lost without this site. I am sticking to those foods you mentioned - meat, fish, veggies, potatoes, fruit, etc...and trying to be patient! ;)

Sunny

I know it is not easy when you feel so lousy, believe me!

Hang in there, kiddo ;)

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