• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

14 And Gluten Free... Making Others Listen
0

6 posts in this topic

Ads by Google:
Ads by Google:


I also use purell all the time (probably more than anyone is supposed to, but I don't like taking chances).

Just so you know, Purell has no effect on gluten. It is a disinfectant. To remove gluten, you need soap and water and scrubbing.

0

Share this post


Link to post
Share on other sites

Thank you so much for this information! I alway use soap and water before I eat and purell only to make sure Im still clean.....I guess I was just wasting a lot of time and purell on that....

0

Share this post


Link to post
Share on other sites

Do you know if wipes, like Wet Ones, would be a better option if I can't get to a sink?

0

Share this post


Link to post
Share on other sites

Hi rml,

I read your orig july5 post above which is now erased? I thought it was a good description of your situation, and well-written.

I know the "can't be too careful" mindset, and that there's plenty of times i'd go 'overboard' by someone else's definition, but THEY don't know what it's like, do they?

I say be as careful or overly careful as makes you comfortable, despite whatever else goes on in the house. As time goes by you might re-evaluate boundaries but family members that aren't affected (perhaps a "yet" belongs here) shouldn't be making the gluten-free rules for you. (Now I'm not certain how well I remember your post)

Everyone on the forum is rooting for you & will offer tips as much as possible.

Now, regarding the wipes if no sink around - I don't know. Would that be for if you for sure touched some bread, or more like "better safe than sorry"?

0

Share this post


Link to post
Share on other sites
Ads by Google:


Hi rml,

I read your orig july5 post above which is now erased? I thought it was a good description of your situation, and well-written.

I know the "can't be too careful" mindset, and that there's plenty of times i'd go 'overboard' by someone else's definition, but THEY don't know what it's like, do they?

I say be as careful or overly careful as makes you comfortable, despite whatever else goes on in the house. As time goes by you might re-evaluate boundaries but family members that aren't affected (perhaps a "yet" belongs here) shouldn't be making the gluten-free rules for you. (Now I'm not certain how well I remember your post)

Everyone on the forum is rooting for you & will offer tips as much as possible.

Now, regarding the wipes if no sink around - I don't know. Would that be for if you for sure touched some bread, or more like "better safe than sorry"?

Im not sure what happened to my original post.... I asked about the wipes and then it was gone with just "......"

Anyway, I really appreciate what you said about being too careful. I often don't listen to others and just do what makes me feel comfortable even if I know that I sometimes go too far. I dont like taking chance and even if others think my precautions are crazy I try not to listen and do them anyway. My parents are starting to think that Im being obsessive over how causious I am, thats why I had mentioned being unsure of my careful ways...

As for the wipes it would be for "better safe than sorry" perposes....I dont touch gluten at all (and in the rare occassion that I do, I scrub up to my elbows atleast 3 times with a lot of soap and water)

Thanks! :)

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,768
    • Total Posts
      932,300
  • Member Statistics

    • Total Members
      64,239
    • Most Online
      3,093

    Newest Member
    Linnitt
    Joined
  • Popular Now

  • Topics

  • Posts

    • Thank you so much!  I just called to make an appointment with Dr. Fasano, He is booked out till September I will try Maureen Leonard.  If I can't get appointments for awhile, do I keep my son on gluten?  At the moment, we are waiting for his 2nd test results (celiac panel) to come in.  (Should be within the next few days) to ensure it wasn't a false positive before.  My other child is being tested as well.
    • "This may come as a surprise but it’s true. The flour tortillas for this new dessert item are going to be made in the same fryer as the Chipotle chips..." http://www.glutenawayblog.com/2017/05/gluten-free-at-chipotle-new-desserts.html
    • Thanks Barry. It's just up the road from me and it's a place I know very well. Some of my family were there last week for a gig, it's a frightening thought.  You are most definitely not alone and you've found a good site. There are a lot of accounts on here which helped me join the dots and work out what was happening with my own reaction to gluten. The move to a new job may not be coincidental btw, additional stress is linked to changes in celiac presentation. In women pregnancy can bring it about. It makes it easy to dismiss it as stress related. If you've found the answer now you can look forward to healing and hopefully some unexpected health dividends if it's affecting you in multiple ways. I stopped eating gluten and found near immediate relief from brain fog and a lightening of depression. What I didn't count on was the disappearance of chronic back pain that I'd had off an on for many years. There were a lot more examples like that as my time on the gluten-free diet progressed.  The rheumatoid pain in my hand went too. I put together an faq for the diagnostic side awhile back which may be of some additional help. or at least offer some good links to further reputable info:  
    • Microwave potatoes are filling. 6 minutes on 50% power then turn and another 6 minutes . For large sweet potatoes increase the to 8  each side. Canned gluten-free salmon, tuna etc with minute rice ready microwaveable. Libbys makes peas and green beans gluten-free naturals canned. Arrowhead Mills makes instant breakfast rice and shine as well as quinoa rice and shine, just add water and microwave. Instructions say stove top but 1/4 cup with 3/4 water microwave 4 minutes, with paper towel over top to catch water overflow. Eggs are great scrambled in microwave too. Stir up 2 eggs. Put in ceramic mug. Cover microwave 2 minutes.  Look for gluten free rice crackers too. Fresh fruit or gluten-free dried fruit. gluten-free nuts and seeds.  Survival tip, eggs need no refrigeration if you coat them with mineral oil when raw. Can last month's this way, Google it.
    • Saturday was the symptoms I have been feeling amplified big time:  Terrible nausea, head ache, dizziness, stomach gurgling, fatigue. And the constipation/strange BMs.  Wasn't prepared for that one.  I sort of took Sunday off and felt a bit better, now the dizziness is ramping up again.  I'm planning on taking a break once a week. Hopefully that's ok.  I do have an appointment with a GI for June 7th. There were no openings until mid July when I called and while I was speaking to the nurse someone must have cancelled and so I grabbed the early June appointment.  But this is all like deja vu. This is exactly how I would feel growing up and most of my life.   Headache, dizzy, nausea.  And the sores on the roof of my mouth!  Ugh. 
  • Upcoming Events