• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Getting Tested Friday
0

3 posts in this topic

Recommended Posts

iszler    0

Hi everyone,

I just found this website yesterday and was on it for a couple hours. I just put in a call to my doctor, to get tested for celiac. I have suspected it for sometime now. I feel a little weird about going in and saying I want tested for it without the doctor recomending it, and I'm a little nervous that he might blow me off and try something else. I made a list of all of my symptoms to take into him(fatigue, depression, irritability, dental enamel defects, diarrhea, Constant flatulence, Abdominal pain & bloating, Stomach rumbling, mouth sores (small), and headaches). I am a little discouraged because it seems like it is hard to get a diagnosis. Last month I did the South Beach Diet (no carbs except veggies) and my issues seemed to disappear. I hope this dosn't mess with the test results. I also was wondering if I should even tell him about the diet because then he might say well, just keep eating that way and then not do the test. It would be REALLY hard for me to stick to a gluten-free diet without a diagnosis. I hope this makes sense. I guess I just need some encouragement. Thanks, Adrianne.

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


KaitiUSA    7

Sounds like it could be celiac. Make sure the full panel is run. Also you need to be on gluten while testing. You should be on gluten for 3 months prior to testing and having equal to 2-3 pieces of bread a day. Otherwise tests could come back false.

Share this post


Link to post
Share on other sites
bmorrow    0

You need to be tested for Celiac with those list of symptoms. They are classic celiac disease symptons and the doctor should be more than happy to test you. Just remember that the doctor is working for you! I know how you feel about asking for certain tests. I was the same way. I was intimidated by doctors, but now if one doesn't want to listen, I will find another one.

Good luck!

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      107,919
    • Total Posts
      938,677
  • Member Statistics

    • Total Members
      65,843
    • Most Online
      3,093

    Newest Member
    chibody
    Joined
  • Popular Now

  • Topics

  • Posts

    • I'm confused. You don't have celiac? Have you had a blood test or biopsy? Have you been diagnosed with DH?  What were you diagnosed with 9 years ago? If it was celiac or DH why have you only been gluten-free for 6 months? We need a better picture of what's going on here to help you more successfully.
    • Okay good point. I did not know that about ketosis. Thanks for educating me.  
    • Okay good point. I did not know that about ketosis. Thanks for educating me. 
    • Enzyme Latiglutenase improves symptoms in some celiac patients, but which ones? Enzymes have shown some promise for treating celiac symptoms, but so far none has to improve histology or symptoms in celiac patients. There are currently several efforts underway to develop successful commercial enzyme treatments for celiac disease. Efforts include looking at the digestive enzymes in plants, such as the papaya and star fruits, including such predatory plants, such as the pitcher plant. View the full article
    • I am confused too.  I appears that your blood panel was indeterminate, but that your NP had you on a grain free diet for five weeks prior.  You went back on gluten for two weeks (recommendation is 2 to 4) for the endoscopy.  Maybe it was not enough time for your antibodies to build up and start attacking your small intestine.   Doctors can not say for sure that two weeks is enough.  Probably for most, but maybe not all.  I say this because I never even test positively on the TTG and EMA EVER (but my biopsies proved otherwise and my anemia resolved forever on the gluten free diet).  The number of biopsies taken (6 or more recommended) and the location should be determined.  I would ask for all medical and lab reports.    I think a second GI consult might be prudent.   Your symptoms?  If you have celiac disease it can take a few MONTHS to feel better.  Why?  Most often mistakes are made in the diet.  It happens.  There is a steep learning curve.  It flat out just takes time to heal.  I think most members will tell you that healing does not happen that fast even though science tells us that villi regenerates in just a few days.   There is usually a lot of collateral damage. Finally, something is wrong.  Maybe it is NOT celiac disease.  I though for sure my niece had it, but Crohn's was found instead on a pill camera.  She had consulted with four GIs!!!!  Maybe it is NCGI which is determined after celiac disease has been ruled out.  Then a gluten-free diet is in order to resolve the NCGI (Non celiac gluten intolerance or whatever they are calling it now.   So, keep advocating for your health.
  • Upcoming Events