• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

4 Year Old Won't Eat
0

43 posts in this topic

And he keeps going, and going, ....geesh, how much did this boy eat?! Does anybody who has done a clean out before know about how long until everything generally passes? He wants food now and I feel bad telling him to wait.

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


what consistency are his stools? we were told to keep our kids on a full dose til their poop had a softer consistency then to back off to half a dose...we were never told to not give them anything to eat but they don't have the same problem as your child(dysmobility?) what about just giving him a small amount of something to eat?

0

Share this post


Link to post
Share on other sites

Oh, they have hit runny stage now! We haven't given anymore Miralax since the bowels started moving yesterday. This might be TMI, but at least I know that we have hit the food from 5 days ago. We had corn on the cob and apparently corn kernels don't digest all the way. ;)

0

Share this post


Link to post
Share on other sites

I'm so glad! I haven't contributed to this thread because I haven't had any answers, but I can tell you that this poor little boy has been on my mind so much that I actually dreamed about him last night. No matter how much WE suffer when we are sick, the thought of a sweet little child suffering is too much to bear. Give him a hug from me and give yourself one too. God bless you both!

0

Share this post


Link to post
Share on other sites

you might want to give him half a dose...in my experince once I stopped giving the miralax the constipation started. :( the runny stage sucks, but that's the new poop that's getting pushed around the old poop that is stuck in his colon..I think he has alot more to get out! it will be runny for awhile, then might come out in chuncks, then finally will have the softer formed poop.

0

Share this post


Link to post
Share on other sites

Bartfull, to put your mind at rest, here is our happy boy today! http://s1053.photobucket.com/albums/s464/lauriefrost/Fun%20in%20the%20sun/

And thank you so much for your kind words and your concern :)

Momof2boys, It is so hard to think of giving 'Mr. Runs' even a 1/2 dose, but yes you are right. We have done Miralax before and gone right back to constipation! The idea of the runs being pushed around the blockage makes sense. He went from pebbles to runs literally within less than an hour, so that would make sense.

Thanks again, everyone. His sister has now 'tentatively' joined him in the pool...ready to jump out should our boy have an urge to let loose! LOL

0

Share this post


Link to post
Share on other sites

He's ADORABLE!! My friend Wendy has a boy his age and they look so much alike they could be twins. I guess all four year olds with blond hair look sort of alike.

You know, it's funny, when I was young enough to have had kids I wanted no part of them. Couldn't stand to be around one! Now that I am past the "danger" of having one of my own, I LOVE kids. I had never even HELD a baby, but now whenever someone comes into my shop with a baby I have to hold it and talk to it and tell the mother if she ever needs a babysitter she can call on me.

I guess it's one of the compensations of getting old. :D

0

Share this post


Link to post
Share on other sites

For us, but remember my son isn't typical in the pooping dept....it can be 48-36hrs before we see a truly cleaned out child and have the MtDew colored liquid stool. For *us* though this is what we have to do since we have *a lot* of motility issues.

0

Share this post


Link to post
Share on other sites

Is the Mt. Dew colored stool going to be liquid, too? The boy's poor bum is hurting right now from the liquid poops. We have been putting A&D on it.

0

Share this post


Link to post
Share on other sites

Poor thing! And yep, liquid Mt Dew...our GI actually said it would be like looking in the toilet and seeing a 2L of Mt Dew poured into it. We were never able to get this at home (like I said a lot of intestinal dysmotility) and it took 3 days of inpt clean out to get it even remotly close to this. We were not 100% certain the colonoscopy could even be done, but thankfully they were able to see what they needed to.

If his stool is liquid and his tummy is soft, I would guess that he is much better off than he was before. I personally do not know if I would go the entire way like we have to without a GI involved. Many parents whom have a child like mine can give their GI a call and get a KUB (KidneysUrterBladder) x-ray ordered as it also shows the intestinal tract. I wish you were able to get into a GI like we have been able to! 2wks for the first and that was at Nationwide's in Columbus (one of the best in the country) and then our current one-2 days! Again, I am not certain how much more I would push things since you do not have a GI or a ped that can help you right now. Dehydration is a real thing to worry about when doing something like this. (((hugs)))

0

Share this post


Link to post
Share on other sites

Thank you. We did get an appointment with an allergist, but not until the 17th. I called my human resources department for my work to see if we need a referral to a GI, but she hasn't gotten back to me, yet.

I have been doing more research and the more I do, the more I think we need to get him in to a GI. I mentioned before that what started us on allergy testing was the fact that he started vomitting each morning for a month straight. When we found his allergies, I thought that was it. The weird thing was that his vomit actually smelled like poop. Now I read that that means SEVERE constipation. Even doing this 'clean out' it makes me worry that we might be dealing with a blockage of some sort. So, we see his 'doctor' on the 11th and the allergist on the 17th. Between the two, someone better get us an X-ray, or better yet, a GI! I am debating just taking my boy up to urgent care (even though there isn't anything so 'urgent') to see of we can get referred!

0

Share this post


Link to post
Share on other sites

I Just wanted to update everyone. The poops are thickening (no accidents today) and my son ate a great breakfast, asked for a snack between breakfast and lunch, and is currently devouring his lunch. His bum is also no longer sore. He says his tummy does not hurt and he is doing great.

Who would have thought he could make such a turn around after a day of the runs! :)

I just wanted to say thank you again for all of the support, concern, and advice. I cannot stress enough how great it is to have people out there who not only care, but listen and just get it!

0

Share this post


Link to post
Share on other sites

I have a quick question about poop if anyone is still following this thread. :)

So now that is has been 4 days since we fed Colton all of the Miralax, his poops are soft, but more solid (no longer liquid the last couple of days). My question is, his poop is still pencil thin. Is this because of the Miralax, or is this suggestive of continued blockage?

His doctor did feel his stomach and said it was soft and he could feel a 'normal amount of stool' in there (which was interesting because Colton's poop was all liquid up until that point), but if you have followed my posts then you know how highly I think of our doctor (sarcasm intended).

0

Share this post


Link to post
Share on other sites

I have never heard of Miralax causing pencil thin stools to pass unless there was still a blockage somewhere. Can you get someone to oder a KUB (KidneyUrtersBladder) x-ray? This will also show the intestinal tract and see what and/or how much "stuff" is in their.

0

Share this post


Link to post
Share on other sites

Can you get someone to oder a KUB (KidneyUrtersBladder) x-ray? This will also show the intestinal tract and see what and/or how much "stuff" is in their.

That is one of the things that I am hoping to get through our GI referral. I hope the process does not take too long. Our doctor 'handles it from their end', so I don't have a number for a GI. We are supposed to wait for a call from the GI doctor. How long do you think we should wait before I start hounding the doctor?

Thank you for answering all of my questions! I didn't think pencil thin stools were a result of the Miralax, but I have never given him that much before. I do know that he still has a hard time even passing the 'pencil stools'. I have had to make a game of it with him of getting him to try to 'toot' on the pot (which causes him to pass the stool, too) and we make a big deal of belly laughing when he can make a noise. It is quite strange the things we find ourselves doing to make our kids feel better, you know?! LOL

0

Share this post


Link to post
Share on other sites

That is one of the things that I am hoping to get through our GI referral. I hope the process does not take too long. Our doctor 'handles it from their end', so I don't have a number for a GI. We are supposed to wait for a call from the GI doctor. How long do you think we should wait before I start hounding the doctor?

Thank you for answering all of my questions! I didn't think pencil thin stools were a result of the Miralax, but I have never given him that much before. I do know that he still has a hard time even passing the 'pencil stools'. I have had to make a game of it with him of getting him to try to 'toot' on the pot (which causes him to pass the stool, too) and we make a big deal of belly laughing when he can make a noise. It is quite strange the things we find ourselves doing to make our kids feel better, you know?! LOL

We had to wait for a while for our referral to go through. My ped's office told me the process should take a week, so if I didn't hear anything, call. So I did and somehow my referral had been "lost". After yet another week of waiting, I had to call again to find my referral had been "lost" for a 2nd time. I guess I should have taken it as a sign not to go to this GI's office. But they called me the next day with an appointment finally. I hope your offices are more organized than mine.

0

Share this post


Link to post
Share on other sites

We had to wait for a while for our referral to go through. My ped's office told me the process should take a week, so if I didn't hear anything, call. So I did and somehow my referral had been "lost". After yet another week of waiting, I had to call again to find my referral had been "lost" for a 2nd time. I guess I should have taken it as a sign not to go to this GI's office. But they called me the next day with an appointment finally. I hope your offices are more organized than mine.

Oh my gosh! How frustrating!

0

Share this post


Link to post
Share on other sites

We have always been told a week but I never wait that week and give them 5 instead. I don't want them thinking that this can wait, I don't think they like me much ;)

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      107,354
    • Total Posts
      935,654
  • Member Statistics

    • Total Members
      65,034
    • Most Online
      3,093

    Newest Member
    angelaemely
    Joined
  • Popular Now

  • Topics

  • Posts

    • I'm in Okinawa for a week to visit family and for research-related reasons, and despite research on eating gluten-free in Okinawa, things have been unexpected and going wrong from the start. I've been here for 24 hours now and have already ingested at least 3 items with gluten (I just got over what doctor was pretty sure was refractory celiac and was recovering well even after a big scare with eating barley after mix-up with a specifically prepared meal for an academic banquet). Now after the past 24h appear to be developing severe neurological symptoms. lymph nodes around neck are palpable and neck is extremely painful. Arms are weak and semi-numb on left side, clumsiness, arms and feet are burning in areas, balance issues, myoclonic twitching, visual impairment on left side (have confirmed optic neuritis), brain fog, EXTREME thirst (drinking 3-4 L water and still thirsty), and fibromyalgia -like symptoms. I took prednisone that my doctor gave me but doesn't seem to help much at all. I have contacted my doctor in states but don't think she can do anything until I am back and with lack of understanding for celiac here I don't think going to hospital is a good idea (not to mention have no idea costs with US health insurance), Stomach is growling but I currently am nauseated, feeling extreme fullness and have absolutely no appetite but will have to force myself to eat something in AM as i have to somehow make a professional research presentation. Is there ANYTHING i can do to lessen symptoms? Has anyone been in Okinawa and able to eat gluten free? I have a small fridge but no stove in this hotel. I am in Naha and can't travel far, especially more so with symptoms. I can't eat fruit (fructose malabsorption), asked relative to boil eggs (she bought store pre-boiled eggs which I am scared to eat despite the lack of the kanji for "mugi" on the label), when I am having neurological symptoms any carbohydrate exacerbates symptoms, and I'm concerned that something like nuts or beans may worsen inflammation and symptoms if there is GI damage
    • So here's my adderall report.... I take it in the am, after my other melds and coffee. It's the XR version so it lasts all day for me, but the most helpful part is the first 4 hours. It takes a little while to kick in, and then I notice a calming effect. I'm usually very anxious so this is nice. I notice I'm more positive, and feel actually pretty happy, although I've got some major things pressing down on me I feel like I can think about them straight and get them taken care of, instead of panicking. I'm not starving all the time like I usually am. I felt hungry since I started taking my thyroid med and am worried I started gaining a bit of weight due to eating more. Now I don't feel like I need to eat between meals. I'm back to making every bite count towards nutrition. I've been better at taking care of more adult type duties. I'm happy to say that it's been a very good experience so far and I don't feel like I'm taking so much that I get a high from it. A decade or more ago I took double the dose I'm at now and I can tell you I was feeling that super happy high when it first kicked in, and although it felt great, it scared me as that is so on the path to some major addiction issues, you know? I can tell you that the current dose makes me feel like I did in my 20's, and I was pretty kick a$$ then, lol!
    • Thanks, I'll look into these. This is what I'd seen re: lanolin in d3.  http://www.livestrong.com/article/414363-difference-between-vitamin-d-from-fish-oil-lanolin/
    • Found this article about a 11 year old with celiac who was forced to eat outside after being told he could not bring and eat his own "Safe" food into Shields Tavern. Biggest point was the social impact it had on the kid and the way it was handled. I think this will bring up a new perspective and in the end perhaps open more restaurants to understanding that some of us have to bring own food to a gathering for our own safety and that ousting us for it is actual discrimination with legal implications. I personally bring my own food when I eat out, I tip big for it if they are understanding and normally order a 1 ingredient side to simplify it with the least chance of contamination. This is something many of us do to meet a compromise and interact in a social environment, and feel normal. While it really depends on person to person and how sensitive/comfortable you are eating out, heading out to accompany and eat with family, friends, and coworkers should be a option, even if we have to bring our own food as a compromise. http://wydaily.com/2017/07/20/family-of-disabled-11-year-old-sues-colonial-williamsburg-for-discrimination-nws/ On a side note remember not every chain and store are the same, always talk to a manager, or call ahead before bringing in your own food, or eating out with special requirements, dietary restrictions, or extreme food allergies/intolerance.
    • Lanolin to my knowledge is used in skin based applications only, if your needing D3 the best way is to get a sublingual in a dropper you can use there are many available. I personally use Liquid Health and just add it to a drink once or twice a week. https://www.luckyvitamin.com/p-95099-liquid-health-vitamin-d3-drops-1000-iu-2-03-oz BTW while your looking Liquid Health also makes a Stress & Energy Supplement, and a Neurological one I swear by. They have many other liquid based formulas if you wish to avoid pills (I already take a bunch anyway for other health issues)
  • Upcoming Events