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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

What Am I Supposed To Eat?
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10 posts in this topic

I'm 14. I've been a semi-vegetarian since I was 12 (my mom forces me to eat fish) When I was 13 I found out I was gluten intolerant (non celiac).

If Thats bad enough, I just found out I was semi allergic to corn and dairy. I can eat yogurt and frozen yogurt. Can't tolerate ice cream or chocolate. I can tolerate hard cheese but not any others.

What am I supposed to eat???? Waah help me. Recipes? Suggestions?

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Your dairy intolerance sounds like lactose intolerance. Hard cheese ls low lactose, and yogurt is lower than ice cream because the bacteria break down some of the lactose. Try some Lactaid next time you have ice cream, milk or other fresh dairy.

A lot of people find they have to re-evaluate their decision to be vegetarian if they have multiple food intolerances like you do. It sounds like you can have nuts, eggs, and beans so maybe there are enough sources of protein. Lentils and rice are always good, or split pea soup with chunks of carrot and potato. Have eggs and hash browns for breakfast. You should be able to make corn-free/gluten-free bread for peanut butter sandwiches too.

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If you are open to eating more meat, I would get some books from the library about the Paleo Diet. It is grain free and dairy free - but sort of centers on meat (along with vegetables, fruits, nuts, etc.)

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I refuse to eat any meat except for fish and seafood

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There is a lot you can eat but much of it you will have to cook. A rice cooker is helpful. You can make rice in the bottom and they will have a steamer basket you can load with things like Chi-Chi (garbanzo beans) or any other kind of drained and rinsed bean, veggies, fish or shrimp etc. Most will come with a lot of recipes. If you make a good quantity it the leftovers would be good for lunch or dinner another day.

You should still be able to find some gluten free breads and crackers that you can have. There are a wide variety of nut butters and jellies you can try.

Some of the Thai kitchen products should also be suitable. Just read the labels. They can be found in the Oriental section of many grocery stores. I like the real thin rice noodles and often have those with veggies for supper. I use frozen veggies and put them in the water and when the water boils add the noodles. They cook really fast and then can be drained and buttered. (Butter is very low in both lactose and casien so even though it is dairy it may be tolerated.) The single serve Pacific Foods gluten free broths are also good to use. You just eat as a soup without draining.

The important thing when you are not eating meat is to make sure you are getting complete protein when you eat. Like eating beans along with rice for example. Your body needs ample protein to heal as quickly as possible.

Do check out the recipe section. We have vegetarians on the board that may be able to give you some good recipes. Also check out your local libary for cookbooks or even local thrift stores.

I like the old cookbooks in thrift stores because they give 'from scratch' recipes. Rather than saying to add a can of soup or a sauce they tell you how to make it. Cooking that way can be a lot of fun.

Do also look for Enjoy Life chocolate chips. They are allergan free and not bad at all. Great for adding to peanut butter cookies. In case you haven't got the recipe for flourless nut butter cookies it is really simple.

1 cup peanut butter

1 egg

1 cup sugar

about 1/4 cup chocolate chips (optional)

Mix ingredients. Line a cookie sheet with foil if desired. Form into balls and put on cookie sheet. Press a crosshatch pattern on the cookie with a lightly greased fork.

Bake in a preheated 350 oven for about 8 to 10 minutes depending on the size of the cookie. I start to check at 5 minutes and when the cookies are golden brown around the outside edges I pull them out. Let the cool for 5 minutes before taking off tin foil sheet.

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There is a lot you can eat but much of it you will have to cook. A rice cooker is helpful. You can make rice in the bottom and they will have a steamer basket you can load with things like Chi-Chi (garbanzo beans) or any other kind of drained and rinsed bean, veggies, fish or shrimp etc. Most will come with a lot of recipes. If you make a good quantity it the leftovers would be good for lunch or dinner another day.

You should still be able to find some gluten free breads and crackers that you can have. There are a wide variety of nut butters and jellies you can try.

Some of the Thai kitchen products should also be suitable. Just read the labels. They can be found in the Oriental section of many grocery stores. I like the real thin rice noodles and often have those with veggies for supper. I use frozen veggies and put them in the water and when the water boils add the noodles. They cook really fast and then can be drained and buttered. (Butter is very low in both lactose and casien so even though it is dairy it may be tolerated.) The single serve Pacific Foods gluten free broths are also good to use. You just eat as a soup without draining.

The important thing when you are not eating meat is to make sure you are getting complete protein when you eat. Like eating beans along with rice for example. Your body needs ample protein to heal as quickly as possible.

Do check out the recipe section. We have vegetarians on the board that may be able to give you some good recipes. Also check out your local libary for cookbooks or even local thrift stores.

I like the old cookbooks in thrift stores because they give 'from scratch' recipes. Rather than saying to add a can of soup or a sauce they tell you how to make it. Cooking that way can be a lot of fun.

Do also look for Enjoy Life chocolate chips. They are allergan free and not bad at all. Great for adding to peanut butter cookies. In case you haven't got the recipe for flourless nut butter cookies it is really simple.

1 cup peanut butter

1 egg

1 cup sugar

about 1/4 cup chocolate chips (optional)

Mix ingredients. Line a cookie sheet with foil if desired. Form into balls and put on cookie sheet. Press a crosshatch pattern on the cookie with a lightly greased fork.

Bake in a preheated 350 oven for about 8 to 10 minutes depending on the size of the cookie. I start to check at 5 minutes and when the cookies are golden brown around the outside edges I pull them out. Let the cool for 5 minutes before taking off tin foil sheet.

I actually just ate this for supper! Rice with stirfried veggies, shrimp and chicken, So yummy! You could easily leave out the chicken and it would be just as good.

I've also made the peanut butter cookies and they are to die for, but with chocolate chips that's a whole new level! Haha I have to try it! My brother just loves them, I'll have to make some and send them his way....cause I'll eat them all if I don't! Great suggestions, I love it when others give suggestions. Even though I've been doing this a while it's so nice to hear others ideas!

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I just remembered we had a thread on gluten-free vegetarian ideas. You might try adding a post to see if you can revive the thread again. You're definitely not the only vegetarian on the board! Here's the link. :)

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My best friend was gluten free/vegetarian for a while. There's a great cookbook out called The Gluten Free Vegan, by Susan O'Brien, which, while you may not be vegan, has great recipes than can easily be modified to simply vegetarian. But the others are right....you'll definitely have to cook. I know Amy's has some frozen vegetarian/gluten free burritos, but some people can't tolerate Amy's, though I haven't had a problem. They also have gluten free pizzas.

EDIT: and also, part of the reason my best friend started eating meat again was because she didn't get enough protein, as she had nut and tyramine intolerances. I was actually vegetarian when I went gluten free the first time. It's a really great diet, but sometimes it just doesn't work for your health. I know a lot of my friends who have moral issues with commercial meats stick with locally raised/pasture raised meats. I'm not trying to convince you to do anything or hate on your vegetarian diet, but simply offering alternatives if it gets too hard to cook/shop for the foods you need.

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Wow this is so awesome!!! Thanks everyone! Amazing suggestions

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I'm 14. I've been a semi-vegetarian since I was 12 (my mom forces me to eat fish) When I was 13 I found out I was gluten intolerant (non celiac).

If Thats bad enough, I just found out I was semi allergic to corn and dairy. I can eat yogurt and frozen yogurt. Can't tolerate ice cream or chocolate. I can tolerate hard cheese but not any others.

What am I supposed to eat???? Waah help me. Recipes? Suggestions?

i am gluten intolerant and allergic to dairy also :(

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    • I am very interested in this too. My daughter tested negative for celiac, but has terrible primarily neurological symptoms. Because she tested positive for SIBO at the time and was having some GI symptoms, I was told it was just a Fodmap issue.  I knew better and we have been gluten free for 2 years.  Fast forward to this February. She had a SIBO recurrence that I treated at home with diet and herbal antibiotics because I couldn't get the insurance referral. She was doing great. Then stupid me brought in gluten containing chick feed for the new baby chicks we got.   Feed dust everywhere. Total mess.  Really, no GI symptoms (she was SIBO free by then)...but the neurological symptoms! my daughter couldn't walk for three days. Burning down one leg, nerve pain in the foot. Also heaviness of limbs, headache and fatigue. Better after three days. But unfortunately she had a TINY gluten exposure at that three day mark and had another severe reaction: loss of balance, loss of feeling in her back and arms, couldn't see for a few seconds, and three days of hand numbness, fatigue, concentration problems.  Well, I actually contacted Dr. Hadjivassilou by email and he confirmed that the symptoms are consistent with gluten ataxia but any testing would require a gluten challenge. Even with these exposures, antibodies would not be high enough.  His suggestion was maintain vigilance gluten free.  I just saw my daughter's GI at U of C and she really only recognizes celiac disease and neurological complications of that. But my impression is that gluten ataxia is another branch in the autoimmune side of things (with celiac and DH being the other two).   At this point, I know a diagnosis is important. But I don't know how to get there. We homeschool right now so I can give her time to heal when she is accidentally glutened, I can keep my home safe for her (ugh, that I didn't think of the chicken feed!)  But at some point, she is going to be in college, needing to take exams, and totally incapacitated because of an exposure.  And doctors state side that are worth seeing?  Who is looking at gluten ataxia in the US?
    • Caro..............monitoring only the TSH to gauge thyroid function is what endo's do who don' t do a good job of managing thyroid disease.  They should do the full panel and check the actual thyroid hormone numbers.........T3 and T4. The importance of the TSH comes second to hormone levels. In order to track how severely the thyroid is under attack, you need to track antibody levels.......not the TSH. I did not stay with endocrinologists because I found they did not do a very good job and found much greater help and results with a functional medicine MD.  You should not have a goiter if your thyroid is functioning well and your TSH is "normal".  Maybe they should do a full panel? Going gluten free can have a profound affect for the better on thyroid function and that is something that is becoming more and more accepted today.  Ask most people with Celiac and thyroid disease and they will tell you that. My thyroid never functioned well or was under control under after I discovered I had Celiac and went gluten free.  It was the only way I got my antibody numbers back down close to normal and they were around 1200 when it was diagnosed with Celiac.  I was diagnosed with Hashi's long before the Celiac diagnosis.  I am not sure Vitamin D has anything to do with thyroid antibodies but who knows?  Maybe it does have an affect for the better. It is really hard to get Vitmain D levels up, depending on where you live. Mine are going up, slowly, even after 12 years gluten-free but I live in the Northeast in the US and we don't have sun levels like they do in the South.  I take 5,000 IU daily and that is a safe level to take, believe it or not.  I get no sun on my job so the large dose it is! Having Celiac Disease should not stop you from being able to travel, especially S. America. I travel, although I do agree that some countries might be very difficult to be gluten free in. You can be a foodie and travel with Celiac so no worries on that front. You may not be able to sample from someone else's plate, unless they are eating gluten-free too but I have had awesome experiences with food when traveling so you can too!
    • I don't know what you drank or where.... so here are a few thoughts. - sure, a dive bar might have dirty glasses and serve a cocktail in a beer glass?  But a nice reminder place, with a dishwasher, should be fine.  If it's a sketchy place, Stick to wine, then it's served in wine glasses that aren't used for beer or bottled ciders in the bottle.   - ciders on tap might, just a slight chance, have an issue.  Because of beer on tap, mixed up lines, etc. - you may have a problem with alcohol - you may have issues with The  high sugar content of the drink.  I know I have similar issues if I drink serveral ciders of extra sugary brands - are you positive it was a gluten-free drink?  Not this " redds Apple" pretending to be a cider - it's beer with apple flavor.  Or one of those " gluten removed " beers?  
    • Hi Stephanie, I'm also from the UK, I've found this site more helpful than anything we have!  As already mentioned above, in my experience it could depend on what and where you were drinking. Gluten free food and drink isn't always (not usually) 100% gluten free as you may know, maybe you have become more sensitive to even a trace of gluten that is probably in gluten free food/drink. Is it possible you have a problem with corn, particularly high fructose corn syrup that is in a lot of alcoholic drinks? This was a big problem for me and the only alcoholic drinks I can tolerate are William Chase vodka and gin. I contacted the company last year and all their drinks are 100% gluten and corn free, made the old fashioned way with no additives, so maybe try their products if you like the occasional drink and see how you get on. If you drink out, not many pubs sell their products but I know Wetherspoons do and smaller wine bars may too. l was never a spirit drinker but I must say their products are absolutely lovely! Very easy on a compromised gut too considering it's alcohol. I second the suggestion on seeing a natural health practitioner. I've recently started seeing a medical herbalist, as I've got nowhere with my now many food intolerances since going gluten free last year and I've noticed a difference in my health already. 
    • Sorry for the very late reply and thanks for the replies, I didn't get a notification of any. In case anyone else comes across this and has been wondering the same as I was, I did try a vegetable broth and I did react to it in the same way as if I'd eaten the vegetables.  As for the candida, I've been using coconut oil and am seeing a medical herbalist for this and leaky gut. It's only been a few weeks but I've noticed an improvement all round.
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