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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Invited By Local Denny's
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The local Denny's where I got glutened has asked me to give a 5 minute presentation to their staff next Wednesday at 7 am. Any suggestions on things that I should cover would greatly be appreciated.

Armetta

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The local Denny's where I got glutened has asked me to give a 5 minute presentation to their staff next Wednesday at 7 am.  Any suggestions on things that I should cover would greatly be appreciated.

Armetta

<{POST_SNAPBACK}>

CROSS CONTAMINATION!!! How if a spatula is used to flip a bun, then is used to do a gluten-free burger, the burger won't be gluten-free anymore. I have order things that I know are naturally gluten-free (omlettes) but have always wondered if maybe the food wasn't really gluten-free. Or that putting a piece of toast on the plate, then taking it off, the plate isn't gluten-free anymore. Explain to them what the body does to people with celiac disease when gluten is introduced to their system. Explain that it is an autoimmune disorder that won't kill us (not if treated correctly) but there isn't medicine to counter -act the trigger (gluten) like there is with allergies (anti-histimines) Get graphic if you want on how sick we get and how long it can last. Ask them if they have ever swam up a molasses river in January. Or had your head stuffed with cotten. Felt really weirded out. Or have wild mood swings. How fun it is to know that if you aren't careful and keep contaminating your body with gluten, you are at a much higher risk of colon cancer and other goodies. I'm sure celiac3270 or richard have lots of ideas. I don't think celiac disease can be compressed into 5 minutes, not when it has 200 symptoms, but at least you are getting a chance to educate some more of the general public.

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It might be helpful to compare celiac disease with a peanut allergy. Alot of people understand the severity of a peanut allergy, ours is just as serious to our long term health. Another thought is an analogy. Kati had a great one with pizza. Friends wanting her to just eat the cheese. She put liquid soap on the pizza and then wiped it off. Would you want to eat the pizza? They did not want the pizza! We do not want the gluten, not even a crumb. I think it is exciting that they are interested in knowing about celiac disease. Good luck!

Hez

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Ha...I like the soap analogy...funny.

I would agree - cross contamination issues - they need to be careful about what food they've touched prior to preparing a gluten-free dish, watch where they cut their fruit and veggies (was bread just sitting on that counter on that exact spot??), make sure that they mix a gluten-free salad seperately from others, etc. Mention that it is easy to prepare gluten-free foods b/c ultimately everything is ordered simply or plain - that is, chicken breast with no spice/breading; salads without lots of extras like meats, croutons, and bacon bits; plain rice or potatoes, etc. Ultimately, there is less preparation (though more thought) put into our food.

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Wow, what a great opportunity! Let us know how it goes and what you end up doing.

Definitely cross contamination. Things I hypothetically think about at diners are - can my eggs be prepared in their own pan, not the griddle where the pancakes are? Is the bacon gluten free? Is there a mix used for omlettes and scrambles, and does that egg mix use gluten at all? Is it dipped or poured, and if dipped, does that dipper dip anything else? (like pancake batter).

Any fillers in the hamburger, etc?

I am helping a local organic food restaurant with this kind of stuff, too. They already have gluten free bread but were toasting the sandwiches on a panini press that regular bread was used on - uh, no-no. I told them to wrap the sandwich in foil first, then grill it. They make perfect panini now.

Good work, I hope it helps out and makes for some positive change!

Stephanie

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The local Denny's where I got glutened has asked me to give a 5 minute presentation to their staff next Wednesday at 7 am.  Any suggestions on things that I should cover would greatly be appreciated.

Armetta

<{POST_SNAPBACK}>

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<{POST_SNAPBACK}>

As you can see I am not to good at using the quotes. LOL. Sorry about that.

I went to Denny's this morning and passed out to the morning employees 3 page condensed information sheets about Celiac, responsibilities of the wait staff and cross contamination issues for the cooks and managers. I also left with the morning manager many extra copies for the staff that were not working. I disucssed the disease and the cross contamination issue with the staff. I showed them the cards that a Celiac or gluten intolerant person might show them, the Denny's gluten free list they had sent me. I also passed out several green bracelets to the wait staff that wanted to become more knowledgable on the disease so that they could better serve their customers. They were all kind and seemed receptive for the information. Even asked a few questions. They have a weekly trivia question and one waitress suggested that one week they use "what is Celiac Disease". The morning manager thought that was a very good idea.

Armetta

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That's great! Thanks for representing our needs to a new group of people!

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Great job Armetta!!

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Thanks so much! I am so glad you got the information out there! :)

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    • Good advice Ennis!  I would add baking and freezing some gluten-free cupcakes to have on hand, so that she is never left out.  Be sure to read our Newbie 101 tips under the coping section of the forum.  Cross contamination is a big issue,  If the house is not gluten free, make sure everyone is in board with kitchen procedures.   Hopefully, your GI talked about the fact that this AI issue is genetic.   Get tested (and your TD1 child).  TD1 is strongly linked to celiac disease.  About 10% of TD1's develop celiac disease and vice versa.  Get tested even if you do not display any symptoms.    http://www.cureceliacdisease.org/screening/ https://celiac.org/celiac-disease/understanding-celiac-disease-2/diagnosing-celiac-disease/
    • What does weak mean?  Like you squat down and and you can not get back up?  Or are you fatigued?  When you said blood panel, was your thyroid tested?  Antibodies for thyroid should be checked if you have celiac.  So many of us have thyroid issues.  
    • We are not doctors, but based on the results you provided, you tested negative on the celiac screening test.  You could ask for the entire celiac blood panel to help rule out celiac disease.  The other IgA that was high?  It normally is given as a control test for the TTG IgA test (meaning if the celiac test results are valid).  In your case, the TTG IgA test works.  Outside of celiac disease, you might have some infection.  Discuss this with your doctor as he has access to your entire medical file.  I would not worry about it though over the weekend!  
    • See: http://www.cureceliacdisease.org/faq/can-a-skin-biopsy-for-dermatitis-herpetiformis-dh-confirm-celiac-disease-or-is-an-endoscopy-still-needed/ Take a copy of that with you or mail it to the doc. How many endoscopic biopsies did they take? Those with dh tend to have patchier damage than "normal" celiacs.
    • Ironictruth, I think that is a very insightful thought. since different antibodies present for different body systems all the ways gluten affects the body is still not well understood. Here is a case of presumably someone who had the gut damage of a celiac but also had neurological damage. http://www.nature.com/nrneurol/journal/v3/n10/full/ncpneuro0631.html entitled "A case of celiac disease mimicking amyotrophic lateral sclerosis" so it has happened in the literal but since this is not well understood people don't make the connection today. I would also point you to this hindawi article on the "Lesson's learned from Pellagra" but I am afraid we haven' learn't yet. https://www.hindawi.com/journals/cggr/2012/302875/ notice specially the 2.1 section clinical feature of pellagra and all the neurological symptom's once associated with a Pellagra patient. quoting "The neurological manifestation did not stop there because other degenerative conditions, such as an amyotrophic lateral sclerosis-like picture, were described, with fasciculation of the tongue and upper and lower motor neuron signs. Cerebellar syndromes occurred and vertigo was frequent. Headaches, sensory and pain syndromes, epilepsy, and involuntary movements were noted as well as sleep disturbances. Cord lesions were also seen, as was optic atrophy, so there were multiple sclerosis (MS), like variants." which tells me doctor's don't recognize pellagra today when they see it because they haven't seen it in 75+ years. ***this is not medical advice but read the hindawi journal on lesson's learned and I think you will see yourself in their many descriptions of all the way Pellagra presents itself to doctor's and patients still suffering today and you can see why it (like celiac) is hard to pin down today because it presents in so many ways it can be soo overwhelming and since vitamins are not a focus anymore today (especially b-vitamins) that today I believe we are doomed to repeat history's lessons unless the current generation learns again all the ways pellagra presents itself today. good luck on your continued journey. posterboy by the grace of God,  
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