• Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

12 Year Old
0

Rate this topic

4 posts in this topic

Recommended Posts

I have a 12 year old that is scared to eat anything not prepared by me. If we go to a restaurant that offers gluten free options she will not eat for fear she will get gluten which results in nausea, pain and hours of throwing up. I cant blame her but we like to travel. Any suggestions?

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


I know the feeling. Gluten isn't an issue for me but I can't tell you how many times I have gotten food in a restaurant only to find something in it that I can't have. Even after I thought I was clear to the wait person.

It might help if you could have the wait person or the manager have a talk with her. At The Old Spaghetti Factory, the manager came to our table, told us she would prepare our food herself and that they used a special pan to cook the pasta. This after my dad told us that the pasta couldn't possibly be gluten-free because they cooked it in the same water. Turns out my dad is wrong about a LOT of things but he talks like he is an expert so people tend to believe him. Actually the gluten-free food there is prepared in a separate area of the kitchen even.

At home we tend to frequent the same restaurants. Ones that cater to people with food allergies and have no problems making special meals for us.

But for traveling? Ah, that can cause a problem. The restaurant is unknown and even though they do have a gluten-free menu, you have no way of knowing how well they get it. We also tend to really limit what we get in a restaurant. Fresh or canned fruit, cottage cheese (for my daughter, not me), hamburger patty, bacon, maybe some form of potato. Potatoes sometimes aren't safe.

One thing you might consider is packing some food and having your daughter eat in the car before or after the restaurant and while in the restaurant only ordering some small thing that is most likely to be safe. Like a fruit cup.

What we always packed when we traveled were small cans of green beans, canned kidney beans, canned refried beans and tortilla chips. That way we could make a meal if we needed to. We also always looked at every stop for things like individual packs of cheese, meat, fresh fruit and veg.

  • Upvote 1

Share this post


Link to post
Share on other sites

This is exactly the same as my 13 yr old daughter! While 3 of us have celiac, she is the one who reacts worst to cc, and so she refuses to eat anywhere but home, and it IS a challenge. What we have gotten in the habit of doing is packing snacks for her (kind bars, fruit, gluten-free pretzels, etc- and her trusty pb &j sandwiches. Yes, it is not as good a meal as the rest of us, but it is her choice and what makes her comfortable!

Share this post


Link to post
Share on other sites

my son is the same way, but with tree nuts. we have slowly talked to him about it, and have had people we know and people he can trust make him meals....then we were able to move to other places once he knew it was safe...it can be scary for them.

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,156
    • Total Posts
      939,969
  • Member Statistics

    • Total Members
      66,141
    • Most Online
      3,093

    Newest Member
    Victoria Zoey
    Joined
  • Popular Now

  • Topics

  • Posts

    • So... his gp did a genetic test - positive - and has referred him to a gi. His paed and diabetes educator have ordered the genetic test and another coeliac screen for 3 months and then they will decide if he needs to see a specialist because they're still convinced its most likely a false positive. Why test at diagnosis of diabetes if they don't believe the results anyway? Why is this disease so confusing for the medical world?  Anyway we're sticking with the gp and hopefully it won't be too long before he gets into a gi.  It seems that blood tests don't matter in any situation. If they can find any excuse to invalidate them they jump at it.  Makes me so infuriated I just laugh about how I already seem to know more. 
    • Thank you! I have been considering lactose, though I'm reluctant to remove more things from her diet. She has not had the classic lactose intolerance symptoms of diarrhea, gas, or bloating, though I know she could still have trouble with it. She's been on the medication for less than a week, so it's not the cause of her symptoms. I did not call the manufacturer but it is listed as safe on glutenfreedrugs.com (under the brand name periactin). It was prescribed by a pediatric GI who specializes in celiac. The first question my daughter had for the doctor was whether the medication is gluten-free, and she told us it was.   
    • cyclinglady, I think Joseph is hoping to exclude celiac disease.   I feel for him, as I also had a hard time accepting my daughter's celiac.      I had this gene test done hoping our GI doctor made a terrible mistake.   But now I have triple prove that my daughter really does have it! I agree with you and others, that if biopsy confirmed celiac disease, you do have celiac disease. (But on occasion, doctors can be wrong, right?) However, I have a distant relative (not related by blood) who thought she had celiac diease for 10 years (no biopsy done), lived a strict gluten free life style, but still suffered from health issues, ended up in the mayo clinic, and found out that she did not have celiac.    She did not have the celiac gene.
    • Our doctor ordered the Prometheus Celiac Plus test for us.   It is some sort of in depth celiac blood test.   This test report showed  which celiac gene my daughter has.   I think you can ask your GI for a celiac blood test with EMA.   When I asked for the EMA test, we got this Celiac plus results back.   I believe Prometheus is the name of the lab. Our insurance paid for this test.   If your insurance won't pay for it, I know there is a lab in Colorado that offer this test for a few hundred bucks.   You have to google for it.   I forgot their name.
    • Why?  Some 35% of the population carries the genes that could develop into celiac disease.  But only a few actually develop it.  It is used to exclude celiac disease and not to diagnose it.  There are some outlier genes too that have been discovered recently, so the gene test is not perfect.   My daughter has tested negative on the antibodies test.  She will have to get retested in the future. But we will not get the gene test.  It may impact her ability to get life insurance or maybe even health!  Just something to consider.  
  • Upcoming Events