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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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GFceliacgirl

Ear And Jaw Pain Anyone?

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I need to go back to doctor about my ears and jaw. I'm a little burnt out on going to doctors. Anyone experience this along with severe neck and back spasms?

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I have had terrible neck pain for 3 years. My jaw clicks a lot too and is very painful. This all started when celiac did. I think it's all connected.

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I'm in agony from it. Neck, back, jaw, ear.... all my joints, muscles, tendons....I am in PT rehabbing right now.

It lessens as the inflammation goes down, but I have a long way to go. I was UnDXed for years.

You may see relief sooner!

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Have any (or all) of you yet tried taking silica and collagen? I've had problems off and on for many years with jaw and ear pain, and I've found that the following products have helped me: BioSil and NeoCell Super Collagen. I also take a number of natural products for joint pain that seem to work well for me and a few other celiacs that I know: Dr. Christopher's Joint Formula and Complete Tissue and Bone (these are VERY inexpensive online). Before I knew I had celiac, I controlled the pain with Calorad (bovine collagen), but it's a bit expensive.

Also, I've said it before--and I'll say it again--manganese is also very important for maintaining healthy connective tissues and muscles, and we are oftentimes low in this particular mineral. Chelated manganese is cheap...and could be a cheap fix if that is what you're lacking. Everything I've listed is inexpensive, except the BioSil, so you might consider trying the chelated manganese, NeoCell Super Collagen, and Dr. Christopher's products to see if you get any relief. These are all EXCELLENT products that I've used for years, and I'm rarely in pain now (pretty much only when I get glutened).

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BioSil and NeoCell Super Collagen.

(bovine collagen), but it's a bit expensive.

Chelated manganese

Dr. Christopher's products

I heard you sweetie!

and I have always appreciated your advice.

I have done the Biosil; I do take the Curaphen still--great product: I also tried Hyaluronic acid, upon the advice of my MT/PT and I just ordered the NeoCell Super Collagen. I also do flaxseed oil and L-glutamine.

Little by little, I reduce the inflammation and I am not ready to jump off a cliff anymore. :)

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Have any (or all) of you yet tried taking silica and collagen? I've had problems off and on for many years with jaw and ear pain, and I've found that the following products have helped me: BioSil and NeoCell Super Collagen. I also take a number of natural products for joint pain that seem to work well for me and a few other celiacs that I know: Dr. Christopher's Joint Formula and Complete Tissue and Bone (these are VERY inexpensive online). Before I knew I had celiac, I controlled the pain with Calorad (bovine collagen), but it's a bit expensive.

Also, I've said it before--and I'll say it again--manganese is also very important for maintaining healthy connective tissues and muscles, and we are oftentimes low in this particular mineral. Chelated manganese is cheap...and could be a cheap fix if that is what you're lacking. Everything I've listed is inexpensive, except the BioSil, so you might consider trying the chelated manganese, NeoCell Super Collagen, and Dr. Christopher's products to see if you get any relief. These are all EXCELLENT products that I've used for years, and I'm rarely in pain now (pretty much only when I get glutened).

Thank you for this info. I will check into it. I appreciate it. :)

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I suffered for 9 months with ear, jaw, shoulder and neck pain. (I am not celiac-the rest of the family is!) I was treated for ear infections, had CT scans but no one knew what was going on. I was in pain most of the day. It was the third ENT I saw that diagnosed TMJ (temporomandibular joint disorder). My jaw never had locked but I had been clenching my teeth and the muscles were tight. I saw a chiropractor that helped but the real relief came from the physical therapist. I still get occasional flare ups but have learned how to relax and the heating pad is my friend! :rolleyes: If you have been stressed it could be TMJ. Good luck!

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I had a migraine & sinus infection for 2 years.

I had 2 root canals, and it was suggested I have a 3rd root canal.

I was waiting for the new year insurance to roll around for the 3rd, and went gluten free.

The migraine & sinus infection were almost completely gone by the end of the first week!

About 3 months into being gluten free, I realized my 3rd tooth was no longer hurting!

All 3 teeth are on the bottom. I'm wondering if I really didn't need the first 2 root canals! :blink:

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7 years ago when I was in college, I had terrible TMJ where my jaw would click and become locked shut. I would be in so much pain and nothing relieved it - I was on Valium, had a mouth guard, and was going to the chiropractor which relieved some of the pain. I always struggled with sinus infections also. Hopefully it will start to go away now that I'm gluten free!!

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What is interesting about jaw pain (and, yes, I'm referring to TMJ pain) is that I believe it occurs when the joint is too loose rather than too tight. I came to this conclusion when I experienced horrendous TMJ pain starting in the fifth month of each of my pregnancies. This pain coincided with the my body's increased production of prolactin, which occurs when the body begins to prepare itself for giving birth. The prolactin causes the tendons and ligaments to loosen up so that tissues in the pelvis can expand to allow the baby to pass through the birth canal. During the release of the prolactin, I would also experience pain in a knee joint that had been damaged due to an earlier fall (soft tissue injury). When the TMJ pain and knee pain occurred beginning at the very same time with each pregnancy, I thought, "Okay, this is the result of increased prolactin, which is loosening my joints, including the TMJ."

Because of this "ah hah" moment, whenever I experience joint and TMJ pain, I start taking chelated manganese, because it is the nutrient that keeps our ligaments and tendons from becoming floppy or loose (just like with prolactin). It's a cheap fix if this is what is happening to you. People are oftentimes deficient in manganese, and, of course, celiacs experience deficiencies more than the general population. I hope you'll give chelated manganese a try.

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