• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Do You Think Everyone Has Celiacs?
0

7 posts in this topic

I say that tongue in cheek of course. I have a friend who has Lyme disease. You can tell her any symptom and she will tell you that you should get checked for Lyme disease. It seems we kinda do that in the celiac community, too! I don't even have it myself but my daughter does. But I find myself telling people they should get checked.

"My joints hurt in the morning." --- Oh...you should get checked for celiac. It can cause joint pain. (or old age can do that, too)

"My daughter has a belly ache."----Oh you should get her checked for celiac. (Or she might just not want to take that math test)

"I have an itchy rash." --You should get tested for celiac. Oh wait...it just started after you opened the pool. Oh, it was the chlorine? Oh, ok. My bad." HA HA!

"I am depressed." ----seriously, I told my aunt to get checked for celiac but honestly it could be that her SON has not talked to her in over 3 years and with holding her only grandchild.

I say all of this because I wonder if I am the only loon that does this. I don't want to be THAT person like my Lyme friend. I don't want everyone to have celiac. I know everyone does not have it. I just read on this forum where someone asked about neck and jaw pain. I have been tested and negative but have had a crick in my neck for 8 days. Ohhh....do I have celiac or maybe it was my new pillow? Please tell me I am not alone!

2

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


I hope I don't do that but I have studied a lot about health. I find that people seem to find me. I talk about eating gluten free on facebook a lot and now get messages from people asking questions.

I always send them to good places to get info and tell them to get educated.

Celiac has a myriad of symptoms so it can be a good thing for more people to look into it if they are struggling with their health.

There is always a balance with being healthy. No one has all the answers.

Doctors who do all the schooling and make the Big Bucks still only call what they do "PRACTICING"

I got myself checked completely on a whim of my Mother-In-Law. Who casually mentioned a friend who had it and ... my agony better because of a casual conversation.

It is worth it, just to educate one person at a time.

0

Share this post


Link to post
Share on other sites

Yeah, I have a co-worker with stomach issues and terrible frequent migraines. Another co-worker with lactose intollerance with a sister who gets rashes when she eats wheat. A friend's mom with fibromyalgia. And a family friend with grave's disease. I just tend to think all problems are caused by wheat now haha.

0

Share this post


Link to post
Share on other sites

I only do that to my sister to torment her, because..well..she is my sister. :D

I have had a lot of it going the other way "Do you think I have Celiac?" for everything.

Usually my outwardly-directed comments are along the lines of a lot of people have food intolerances, allergies, and other issues like Celiac and do not even know it. These can become quality of life issues, so it makes sense to test for allergies and try elimination diets if things are abnormal in the GI department. You just never know.

0

Share this post


Link to post
Share on other sites

I'm still telling everyone to get checked for Celiac...2 years into the gluten-free diet. But then I was sick for 7 years and I would have been grateful if anyone ever suggested it might have been Celiac. I don't think you are wrong to do that. If 90% of Celiacs are undiagnosed it makes the odds pretty good that you will alleviate someone's misery by telling them about Celiac. I have 11 people now who are gluten free and greatly relieved of their symptoms. None of them were told by a Dr. If I ever hear my sister has fibromyalgia or my friend does...I tell them to go to celiac.com and check the symptom list. I usually end my speech with if you know anyone with fibromyalgia please tell them about Celiac disease. I write celiac.com on little notes when I get into a conversation with someone about Celiac, or their symptoms, I can grab a note from my purse and tell them to check it out. We have to get the word out. I think I am an evangelist about it because it stole so much of my life and it is doing that to other people too. Most people are extremely grateful for any avenue to follow up on to hopefully feel better. Some of those 11 people are children whose mom's listened to me. I feel very good about that. No, not everyone is Celiac, but those who are cannot ever get well unless they hear about Celiac and what gluten can do to you. So I say, keep it up! I'm going to!

2

Share this post


Link to post
Share on other sites
Ads by Google:


Guilty. I think gluten causes everything in myself and others. I try and keep my mouth shut.

In all fairness, I do have friends who are struggling like I was a few years ago, and I do say to them, why don't you just try? My MIL actually listened and last I heard she's committed to gluten/dairy free (after symptoms got so much better)

There is also a friend of mine from church who so clearly has a DH rash (well...In my "expert" opinion) but he doesn't want to hear it. I've become the freaky food lady. I need to just keep my mouth shut!

0

Share this post


Link to post
Share on other sites

I've done that a little but mostly with relatives because of the increased chance that they could have it. Unfortunately the two I think most likely to also have it are rather flakey and I don't think have done anything about it. On the other hand my immediate family got tested after I was diagnosed and my brother's doctor (a rather prominent guy) said he would bet money my bro didn't have it - he had no symptoms, or so he thought. And yep, you guessed it my brother was positive and had more extreme intestinal damage than me! It just shows that EVERYONE should be tested!!

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,748
    • Total Posts
      932,163
  • Member Statistics

    • Total Members
      64,201
    • Most Online
      3,093

    Newest Member
    CRReid
    Joined
  • Popular Now

  • Topics

  • Posts

    • After their seven-month-old baby died weighing less than 10 pounds, a mother and father in Beveren, Belgium, are standing trial on charges that they starved the child by negligently providing an alternative gluten-free diet, with no medical supervision. The couple, who ran a natural food store, put their son Lucas on an alternative gluten-free, lactose-free diet, which included quinoa milk, despite doctors describing it as unsuitable for developing infants. View the full article
    • At least in Caucasian Irish people!
    • Thank you so much for the reply, the book recommendations and the link. Really useful and I appreciate it.  Will definitely look into them.  Thanks again. 
    • an allergy test for tap water sounds quite suspicious, i've never seen any type of water listed as part of a food allergy test panel. i can't imagine how that is possible to test for, sounds like it would be a extremely rare allergy also doesn't tap water vary depending where you are. do you have a reaction to drinking water? what are your symptoms when you eat those foods?
      if it was an IgE allergy test, i believe the blood test more commonly has false positives than the skin scratch test but false positives are very common for both thats why there is usually a disclaimer saying that it may not be nesscessary to cut out all positive results especially if you have no allergic reaction after eating it. you allergist may be able to offer you some kind of allergen immunotherapy or a dietician referral.
      if you had the IgA/IgG food intolerance/ sensitivity testing, the same type of testing that is promoted a lot on instagram, it is not scientifically accurate. the positive results just indicate food you have been exposed too which are then wrongly interpreted as meaning they are allergies. so i definitely wouldn't make any significant diet chances based those results. other than an elimination diet there is no accurate testing for food intolerances although it would be great if there was. its possible that you could coincidently be intolerant or allergic to some those positive foods or you may have no problem with them.
      https://aacijournal.biomedcentral.com/articles/10.1186/1710-1492-8-12  
    • Are you sure TTG IGA was 1? Anyway, a high on any one test should lead to a gastroenterologist doing an endoscopy to confirm celiac. Your not supposed to go gluten free until after all testing is done. Your results show high for dgp iga and dgp igg. Not a doc, my opinion only.
  • Upcoming Events