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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

Fibromyalgia And Chronic Pain - Anyone Else?
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Hello,

I'm 5 weeks new to having Celiac Disease. For over 3 years I've had crippling chronic pain over my body and was diagnosed with Fibromyalgia. I've gotten shots in my hips and spine, been on Neurotin, Cymbalta, pain meds, you name it. Nothing worked. Does anyone have experience or clear info on whether Celiac can mimic Fibromyalgia? I also have horrible stiffness and pain in my hands and my feet. I am hoping and hoping that a gluten-free diet will help but I don't want to get my hopes up too much. I would love some feedback/encouragement. 5 weeks on the diet and I haven't noticed anything yet.

Thanks!

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Hello,

I'm 5 weeks new to having Celiac Disease. For over 3 years I've had crippling chronic pain over my body and was diagnosed with Fibromyalgia. I've gotten shots in my hips and spine, been on Neurotin, Cymbalta, pain meds, you name it. Nothing worked. Does anyone have experience or clear info on whether Celiac can mimic Fibromyalgia? I also have horrible stiffness and pain in my hands and my feet. I am hoping and hoping that a gluten-free diet will help but I don't want to get my hopes up too much. I would love some feedback/encouragement. 5 weeks on the diet and I haven't noticed anything yet.

Thanks!

Certainly have no advice to give on Celiac and chronic pain, but have you been evaluated for other rheumatic diseases, Lyme disease, lupus, spinal arthritis, or Crohn's and ulcerative colitis which can and do present with musculoskeletal complications? Fibromyalgia, while there is a lot of evidence that it's a real disease, is a diagnosis of elimination, rather than inclusion. Wondering if you have all your chronic bases covered. =)

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Hi!

I've had some of the same problems. Back in January I started seeing one of the top Fibro docs in Calgary. She has it as well. The first thing she made me do was toss out all my toxic cleaning chemicals and personal care products. Anything with a fragrance was now off limits...even unscented because it was created to cover up chemical smells. She made me switch to fragrance free and all natural products like using Seventh Generation fragrance free detergent, fabric softener, dish detergent and using vinager for everything else. I found a gluten-free and fragrance free shampoo at the health food store and deodorant. Guess what? I started feeling better. From her experience the medications on the market may only work for a year or so. She wants to find out the why behind a person's symptoms. She also made me switch my table salt. Apparently, the one I was using contained a chemical which was grandfathered in and was never tested. It is toxic to humans. So read the label on the type of salt you buy. Pick one that says "Salt" only.

Next she took me off dairy. From her research 90% of her patients are intolerant to dairy. She was thrilled that I was already gluten-free. From my own experience getting off the dairy helped me with my stiffness (aprox. 50%), but when I took the "Now" Brand of Borage oil my stiffness in my hands and feet vanished. I take two of those a day. I also take a Caltrate. Gluten free only helped me a bit, but when I went gluten-free, Dairy Free and chemical and fragrance free...I noticed that I finally felt human for the first time in years. My doctor is a true healer, not a pill pusher.

I hope some of this information is helpful to you.

Many smiles,

Paula

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Hello,

I'm 5 weeks new to having Celiac Disease. For over 3 years I've had crippling chronic pain over my body and was diagnosed with Fibromyalgia. I've gotten shots in my hips and spine, been on Neurotin, Cymbalta, pain meds, you name it. Nothing worked. Does anyone have experience or clear info on whether Celiac can mimic Fibromyalgia? I also have horrible stiffness and pain in my hands and my feet. I am hoping and hoping that a gluten-free diet will help but I don't want to get my hopes up too much. I would love some feedback/encouragement. 5 weeks on the diet and I haven't noticed anything yet.

Thanks!

Ciao from a fellow chronic pain and FMS sufferer for 4.5 years. My chronic pain is so widespread, from my neck to my ankles. Always. No reprieve. Much of it is due to herniated discs, degenerative disc disease, myofascial syndrome and IT band syndrome as well as fibro. I feel like I have been beaten with an iron rod all over my body. It hurts to lie down. I can hardly sit. It hurts just to change my clothes and have a shower. So, I understand where you are coming from. I've been on Neurontin, Cymbalta, Lyrica and a host of painkillers and nothing has helped even a smidgen. I've had the shots as well with no relief. I go for weekly massage, have had physio, acupuncture, laser, etc.

I was diagnosed with celiac 15 months ago and have been strictly gluten free and to my knowledge have only been accidentally glutened once. Being gluten free has not helped my pain much, sadly. I've tried eliminating dairy (didn't help) and soy (also didn't help).

The only thing that does help me is that I completely changed the way I look at things. Pain used to have such a firm grip on me. Not only that but fear avoidance - what ifs. What if I go to my sister's and...what if I travel on a plane and... It was horrible. But now I control the pain and no longer plan according to it. I just go ahead and do whatever it is. The worst that can happen is more pain but I am used to pain. Distractions are huge with me. Thankfully my hobbies are many and varied. Though cooking, my favourite hobby other than travel, hurts I do it because I love it and it takes my mind off pain temporarily. I read about 250 books a year. I look for ways to constantly improve my brain function (right now I am learning Croatian). My husband spoils me but doesn't coddle me because I do not want him to. He is such a support it is unreal. He just holds me when I cry without saying a word. He has taken time off work many times because of my pain. Not any more! Why? I am coping and managing better.

Extremes in temp really hurt. This heat is causing serious spikes in pain.

I'd like to encourage you to learn to control your pain and not rely on meds. I was doing that for awhile but they didn't help, anyway. It is easier said than done. When my chiro first told me chronic pain is very mental as well and that I had to stop giving over to pain, I thought he was insane. Now I get it. It has turned my life around, actually. If you need to talk please PM me. I know what you are going through and how you feel. Some days are good, some are bad. All have pain. But I've kicked that pain to the curb! Well, mentally.

Oh, another thing that helps is not thinking ahead. I used to often think that if I am this bad when young, how the heck will I be when I am 50? 60? 70? That through me into a panic wondering what kind of life I would lead. But I travel to Europe (after praying for a miracle each time) which still amazes me because most Sundays I cannot even sit in church - I must stand, so sitting on planes? Wow. That causes excruciating pain. But I still do it because it gives me such a feeling of accomplishment.

I understand and am here for you. :)

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I forgot to mention..I'm taking one of these at bedtime: 100mg of 5-Hydroxytryptophan (Griffonia source). It really helps with your sleep. Got mine at the health food store.

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I forgot to mention..I'm taking one of these at bedtime: 100mg of 5-Hydroxytryptophan (Griffonia source). It really helps with your sleep. Got mine at the health food store.

You bring up a good point. Sleep is crucial. I rarely sleep well due to pain (must get up and walk around because the tenderness nearly drives me mad). I have been taking Zopiclone for years when I need to and thankfully have not grown dependent on them. I limit myself to once per week and try even less than that. Wonder if I should try 5-HTP.

Chronic pain doctor has me on magnesium glycinate, B12, B complex, D3 and Zinc.

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Certainly have no advice to give on Celiac and chronic pain, but have you been evaluated for other rheumatic diseases, Lyme disease, lupus, spinal arthritis, or Crohn's and ulcerative colitis which can and do present with musculoskeletal complications? Fibromyalgia, while there is a lot of evidence that it's a real disease, is a diagnosis of elimination, rather than inclusion. Wondering if you have all your chronic bases covered. =)

Thank you for your advice. I have been checked out for everything that is why we are at Fibromyalia. But I've heard hopeful stories that Celiac's often have the same type of pain that can go away with the gluten-free diet...

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Hi!

I've had some of the same problems. Back in January I started seeing one of the top Fibro docs in Calgary. She has it as well. The first thing she made me do was toss out all my toxic cleaning chemicals and personal care products. Anything with a fragrance was now off limits...even unscented because it was created to cover up chemical smells. She made me switch to fragrance free and all natural products like using Seventh Generation fragrance free detergent, fabric softener, dish detergent and using vinager for everything else. I found a gluten-free and fragrance free shampoo at the health food store and deodorant. Guess what? I started feeling better. From her experience the medications on the market may only work for a year or so. She wants to find out the why behind a person's symptoms. She also made me switch my table salt. Apparently, the one I was using contained a chemical which was grandfathered in and was never tested. It is toxic to humans. So read the label on the type of salt you buy. Pick one that says "Salt" only.

Next she took me off dairy. From her research 90% of her patients are intolerant to dairy. She was thrilled that I was already gluten-free. From my own experience getting off the dairy helped me with my stiffness (aprox. 50%), but when I took the "Now" Brand of Borage oil my stiffness in my hands and feet vanished. I take two of those a day. I also take a Caltrate. Gluten free only helped me a bit, but when I went gluten-free, Dairy Free and chemical and fragrance free...I noticed that I finally felt human for the first time in years. My doctor is a true healer, not a pill pusher.

I hope some of this information is helpful to you.

Many smiles,

Paula

Very interesting information, thank you. I'll try anything at this point. I own and run two stores and a design loft so I can't stop for pain, no matter how crippling. So that has resulted in pushing my body beyond the beyond. I have trouble staying on my feet (they really hurt) and I can't get into the shop until 11 in the morning because it takes so long to get my body going. I never do anything after work but go straight home. I never have food in the house because I'm too tired to shop. I will try all those ideas! Thanks again. Penny

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Ciao from a fellow chronic pain and FMS sufferer for 4.5 years. My chronic pain is so widespread, from my neck to my ankles. Always. No reprieve. Much of it is due to herniated discs, degenerative disc disease, myofascial syndrome and IT band syndrome as well as fibro. I feel like I have been beaten with an iron rod all over my body. It hurts to lie down. I can hardly sit. It hurts just to change my clothes and have a shower. So, I understand where you are coming from. I've been on Neurontin, Cymbalta, Lyrica and a host of painkillers and nothing has helped even a smidgen. I've had the shots as well with no relief. I go for weekly massage, have had physio, acupuncture, laser, etc.

I was diagnosed with celiac 15 months ago and have been strictly gluten free and to my knowledge have only been accidentally glutened once. Being gluten free has not helped my pain much, sadly. I've tried eliminating dairy (didn't help) and soy (also didn't help).

The only thing that does help me is that I completely changed the way I look at things. Pain used to have such a firm grip on me. Not only that but fear avoidance - what ifs. What if I go to my sister's and...what if I travel on a plane and... It was horrible. But now I control the pain and no longer plan according to it. I just go ahead and do whatever it is. The worst that can happen is more pain but I am used to pain. Distractions are huge with me. Thankfully my hobbies are many and varied. Though cooking, my favourite hobby other than travel, hurts I do it because I love it and it takes my mind off pain temporarily. I read about 250 books a year. I look for ways to constantly improve my brain function (right now I am learning Croatian). My husband spoils me but doesn't coddle me because I do not want him to. He is such a support it is unreal. He just holds me when I cry without saying a word. He has taken time off work many times because of my pain. Not any more! Why? I am coping and managing better.

Extremes in temp really hurt. This heat is causing serious spikes in pain.

I'd like to encourage you to learn to control your pain and not rely on meds. I was doing that for awhile but they didn't help, anyway. It is easier said than done. When my chiro first told me chronic pain is very mental as well and that I had to stop giving over to pain, I thought he was insane. Now I get it. It has turned my life around, actually. If you need to talk please PM me. I know what you are going through and how you feel. Some days are good, some are bad. All have pain. But I've kicked that pain to the curb! Well, mentally.

Oh, another thing that helps is not thinking ahead. I used to often think that if I am this bad when young, how the heck will I be when I am 50? 60? 70? That through me into a panic wondering what kind of life I would lead. But I travel to Europe (after praying for a miracle each time) which still amazes me because most Sundays I cannot even sit in church - I must stand, so sitting on planes? Wow. That causes excruciating pain. But I still do it because it gives me such a feeling of accomplishment.

I understand and am here for you. :)

You are wonderful to reach out, thank you. I have lived with pain most of my life but 4 years ago it became crippling. I push through because I have to but much of the time I'm too sore and tired!!! Fatigue is awful. I have absolutely no social life as I can't even imagine doing anything but go straight home to the couch after work. My life is severely limited. It is depressing and I try and fight that but I am, as they say, sick and tired of being sick and tired. The Celiac is the added bonus I got two months ago after being sick all winter. I hear the gluten-free diet can help all this pain but I hope to find someone who can attest to that. It was great to hear from you, I hope you feel better. Penny

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Penny - I lived with chronic fatigue and low grade pain, mainly in my back, for 25 years, following the sudden onset of what I now know to be celiac-like symptoms when I was a student. The doctor called it post viral fatigue, but with hindsight I doubt it was that. Over the years the pain worsened and I gradually developed chronic headache/migraines, severe neck, shoulder and back and hip pain.

18 months ago I developed systemic inflammation and I felt so stiff I could hardly move. I felt like the proverbial michelin man, unable to move in a large inflexible body suit. I had other symptoms too. I was so tired and ill-feeling I was struggling severely at work. I could hardly walk anywhere, let alone go to the gym, and was doing the bare minimum to get by at home.

I went gluten free nearly a year ago, and the worst of the pain disappeared quite quickly. The stiffness resolved, the migraines, neck, shoulder, back and hip pain went away, the tingly or sometimes numb arms and fingers normalised, and the generalised body aches reduced. The fatigue didn't go though. In fact it got much worse for a while, to the point I thought I might yet have to give up work. It did gradually get better, but it took over 6 months before I felt anything other than horrible on waking each morning, and being able to bounce up the stairs rather than stagger. The main recovery factors were probably just time and patience, but I think being as grain free as I could reasonably bear, avoiding processed foods, taking vitamins and probiotics, and being very vigilant about cross contamination helped speed things along.

Because I was still struggling with some abdominal symptoms, and to try to get a formal diagnosis via endoscopy etc, I did a gluten challenge of just 2 weeks about 2 months ago. It was really horrible, as the all the body pain, fatigue, migraines and abdominal pain came back with a vengeance. Since going gluten free again, my recovery pattern has been the same as before, and after 2 months I still have some minor residual pain, and am still significantly fatigued. Things are still improving slowly though.

I hope you feel better soon. From reading other people's stories here, I suspect my improvement was reasonably quick. I've seen some say it took a year or two to feel significantly better.

PS It's early days for you yet, but have you considered that other intolerances might also be contributing to your pain? For me dairy is a big no-no for abdominal symptoms, soy seems to be a trigger for body aches and migraine, and coconut gives me burning skin. I am trying to be vigilant for any other triggers, and remain suspicious of eggs and nuts.

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Love2travel - I admire your attitude so much. It takes great strength of mind to push severe pain to one side and get on with living life to the full. I am really sorry to hear that you still haven't experienced any improvement in your pain. For me, gluten seemed to cause systemic inflammation which then squeezed any weak or damaged areas of my body (I have some dodgy discs and had widespread soft tissue damage to my neck and spine after a car accident some years ago). Removing the gluten reduced the inflammation, which in turn reduced the pain hugely. Improving the flexibility of my spine and the strength of my core neck, spinal and abdominal muscles via therapist-guided pilates also made a massive difference. I had to stop my "maintenance" routine when I fell ill (I was so sore and stiff, it just stopped working!), and haven't got back to it yet, but I hope to so soon, to complete my recovery.

I have a colleague who suffers in a similar way to you, and who has a similar tough "mind over matter" attitude to her pain. She smiles and jokes while walking slowly and stiffly with a cane. You can see the pain in her eyes, but she ignores it. I do wonder if removing gluten from her diet might help reduce her pain at least a little, particularly as she has a son who seems to have classic celiac symptoms. I have talked to her about the effect of gluten on my less severe pain, and she is interested, but hasn't as yet pursued it.

I met a young girl and her mother at a youth event recently. The girl had started using a wheelchair 6 months earlier, and the mother was frantic trying to find out why. Her doctors (from a major hospital) were clueless. Apparently she could just about move her legs, but it was extremely painful for her to do so. I asked her Mum if she had been tested for celiac. The Mum said no, she hadn't thought her symptoms could be celiac-related, but that her other daughter had celiac...... Neither the Mum nor the girl's doctors seemed to have any idea that gluten could cause anything other than abdominal symptoms. I gave her references to a few medical papers to show the doctors, to try to hurry along an appropriate referral for investigation. Apparently she is following them up.

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Love2travel - I admire your attitude so much. It takes great strength of mind to push severe pain to one side and get on with living life to the full. I am really sorry to hear that you still haven't experienced any improvement in your pain. For me, gluten seemed to cause systemic inflammation which then squeezed any weak or damaged areas of my body (I have some dodgy discs and had widespread soft tissue damage to my neck and spine after a car accident some years ago). Removing the gluten reduced the inflammation, which in turn reduced the pain hugely. Improving the flexibility of my spine and the strength of my core neck, spinal and abdominal muscles via therapist-guided pilates also made a massive difference. I had to stop my "maintenance" routine when I fell ill (I was so sore and stiff, it just stopped working!), and haven't got back to it yet, but I hope to so soon, to complete my recovery.

I have a colleague who suffers in a similar way to you, and who has a similar tough "mind over matter" attitude to her pain. She smiles and jokes while walking slowly and stiffly with a cane. You can see the pain in her eyes, but she ignores it. I do wonder if removing gluten from her diet might help reduce her pain at least a little, particularly as she has a son who seems to have classic celiac symptoms. I have talked to her about the effect of gluten on my less severe pain, and she is interested, but hasn't as yet pursued it.

I met a young girl and her mother at a youth event recently. The girl had started using a wheelchair 6 months earlier, and the mother was frantic trying to find out why. Her doctors (from a major hospital) were clueless. Apparently she could just about move her legs, but it was extremely painful for her to do so. I asked her Mum if she had been tested for celiac. The Mum said no, she hadn't thought her symptoms could be celiac-related, but that her other daughter had celiac...... Neither the Mum nor the girl's doctors seemed to have any idea that gluten could cause anything other than abdominal symptoms. I gave her references to a few medical papers to show the doctors, to try to hurry along an appropriate referral for investigation. Apparently she is following them up.

It's so good to hear that someone has had success with gluten-free and chronic pain. Your pain areas sound so much like mine. Going gluten-free is really my last hope right now. If I have full-blown Fibro AND Celiac, that will really through me. Here's hoping!

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It might just take more time than you think. When I saw a rheumatologist I think he was minded to diagnose fibromyalgia, as I leapt in the air when he tested the fibro sensitive points, all of them. I think he saw that I was underwhelmed by this idea. Ditto IBS with a gastroenterologist. Apparently I don't have celiac....They were both right that I dislike both these diagnoses in anyone, as they are just a label to show that doctors understand that there is a significant problem, but don't know what is causing it, or suggest a decent treatment. If I hadn't had the confidence to insist that gluten was quite likely to be the enemy thanks to a strong familial history of confirmed celiacs, I would still be eating gluten, still be sick, still using expensive healthcare resources, and probably wouldn't be working either. Anyway, both doctors were happy to accept that I am gluten sensitive as my inflammatory markers and some minor antibody tests and nutritional deficiencies normalised on going gluten free and my response was confirmed by elimination/challenge diet.

You might also want to look at Irishheart's content as she deals with major neurological pain, but is improving slowly.

Good luck!

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    • Pain wise a glutening celiac gets me more central gut pain and much worse with sharpness, urge to vomit, gurgles etc. UC is more along the the outside edges of your abdomen from the sides, lower area around the belt line, and upper area right under the rib cage, and is more of a boat and pleasure pain like your intestines are huge feeling.  UC triggers alot more gas, and makes you want to lie down I get the urge to massage and press on the pressure areas as it seems to help.
      Timing wise Celiac glutening I notice within 20-60mins and main vomiting starts in 1-3hours after eating it. UC flare you get it like 4-18hours or later depending on transit time of your food. A glutening will normally result in both a celiac reaction and a later UC reaction. For me a gluten CC or consumption issue also causes neurological symptoms, this is not true for some people but for me I also have a gluten ataxia, so the anxiety, panic, fog, mind looping, numb hands, loss of coordination or straight up motor loss is definite sign for me. Others will have to keep track with a food diary to nail down there own as every person can have a slightly different reaction.

      I also find with UC I do not directly vomit, Sometimes with UC it can trigger constipation and if not remedied in 12-24 hours leads to m system backing up and vomiting. Celiac can also cause me constipation but there is a slight difference in where it seems to get stuck at first. Hard to explain but you can sort of feel it. Also I find a gluten celiac response will result in a week or more of constipation issues. Starting mid section then moving to the outside gut area and  but some people do not get these and get D instead. So this is not very reliable.

      UC flare ups for me with my damage also always have bloody stools, worse flare ups its not just streaks but clots. Red and Dark red show it is in the large intestines. If you get tar like black  and red it is either a sign it is way back in the large intestine or in the stomach or small intestine. This makes my Anemia SOO much worse. Imagine how you feel with the loss of blood coupled with inability to efficiently absorb nutrients like iron and magnesium

      Thing to recall is UC is mostly the large intestine while celiac is mostly the small, so symptoms and trying to get the feeling of where the problem is can help.  Also if you get a glutening expect to have the UC flare up right after the celiac flare up.

      NOTE it is hard for me to say still, on the exact details and clarity, it has been since june of last year that I had a major gluten consumption issue. UC I get more regular but without the direct comparison in a while my memory is a bit iffy. Just trying to recall those exact pains and feelings from that last time. Also UC seems to wax and wane in and out while almost always being present for months in the background you just feel a bit off in the gut. SO many triggers, I felt that for years I swear til I went to this keto diet and dropped all fruit, sugar, carbs, and grains. Could have been the anemia, but I think it was more of a combination of the inflammation, bleeding, gas, and just being uncomfortable.
    • Hi!  I wasn’t sure where to post this inquiry so I’m sorry if it is in the wrong place!  My blood work was negative for celiac although biopsy was suspicious.  I have severe joint pain and GI issues so have decided to eliminate all gluten to see if that helps. I hear I may need to supplement my diet with vitamins to make up for what I’m missing, but I don’t know what vitamins they are!  Can anyone help? Thanks, Sarah
    • Hello everyone Thank you so much for all your contributions and tips, I'm sorry for my absence but I've had a big project deadline to complete. Over all, I think things are on the mend for me too.  I was quite cynical at the doctors' approach at first. I'd have much rather had a scope to find out what was happening, instead of being prescribed three months of omemprazole or zantac to see if it helped.  Unfortunately the gen on the zantac contraindictaions list stipulated that zantac should only be prescribed if your doctor is sure what is wrong with you, as it might otherwise be covering up cancer!  Those aren't the things a hypochondriac wants to read!  Anyway,  during this that time I've taken one months of omeprazole (20mg) and as that gave me D I changed to two months of zantac (most days only 75mg a day, but doubling the dose on odd occasions when the burn seemed to come back).  During much of this period I've tried to keep my diet low in fat, spicy food, drinking very little caffeine, drinking strong camomile and slipper elm, and I think a key help has not eating for a 12 hour stretch overnight because I think that really helps the stomach heal.  I hope my system is finally recovering and hope to come off the zantac towards the end of this month.  It is hard to phase these things out slowly when you are already on the minimum dose, but all the tips about marshmallow, licorice and slippery elm etc will no doubt come very helpful then!   I have come to the conclusion that this is a new weakness in my system and I'll have to be very careful to avoid gastritis in the future, by no longer taking asprin (unless the doctor ever tells me I have to), not over doing fat, greasy food, etc.  The last time I drank some sparkling wine or fizzy drinks was awful, so I shall avoid them too. Throughout this time probiotics have helped me with the C, upper left quadrant pain  and wind that the zantac seems to have produced! And of course all the help from you guys. Will keep you posted Whitepaw on life post-zantac!
    • Ennis, can you tell us how to tell the difference between a UC flare and a glutening? It must be confusing for folks diagnosed with both to know at first which it is that is happening.
    • i ended up with dairy intolerance over 10 years ago, and celiac over 4 years ago, then this year got ulcerative colitis diagnosis.

      Dairy issues are caused by the fact the enzymes to digest it are produced by the tips of your villi, these are damaged first and most by the disease and you end up with dairy intolerance. Some people can add it back after a few years of healing. Other allergies and intolerance issues will also develop the longer your on gluten.....it will really just shorten the list more, as damage ramps up, digestive issues arise, and your body starts confusing other foods as a culprit and developing allergies.

      Your UC complicates things and is honestly going to make you much madder then the Celiac as per its flare ups. UC common triggers are gluten, soy, dairy, and in some cases like mine it is triggered by carbs and sugars like glucose and fructose.....yeah I had to go grain free and change to a nut, seed, leafy low carb veggies and egg white diet.
      Since you can not have nuts but do not mention meats I can say your lucky. I developed a issue where I can not digest meats due to my damage. I might suggest you look into a keto/paleo diet. Where you eat meats, eggs, leafy greens. a higher fat/protein diet.

      Now after 8 months on this diet I am seeing even more improvement and had have several issues resolve and am putting on weight.
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