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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.
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Are any of you members of the Celiac Disease Foundation? And is it worth paying the membership fee? I assume it probably would be but thought I'd get some Opinions before spending the extra cash. Thanks! :)

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Are any of you members of the Celiac Disease Foundation? And is it worth paying the membership fee? I assume it probably would be but thought I'd get some Opinions before spending the extra cash. Thanks! :)

Go out to their site and choose the option along the top called "local support" and send an email to the representative in your area and see what they have to say...

At least that's what I'm going to do and see what kind of response the person gives me.

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You might also wish to check out the Gluten Intolerance Group of North America--they're very active and have chapters throughout the U.S. They also have great outreach for children and teens, if you know of any who need support with celiac. The Website is www.gluten.net. They also have a program that certifies gluten-free products and restaurants.

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Another one to consider is the CSA. They also have local chapters in many areas.

CSA Celiac Sprue Association

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    • mnburis, I'm concerned about your symptoms, especially the diarrhea being so frequent.  I experienced pellagra after prolonged diarrhea.   The symptoms are diarrhea, dermatitis, dementia and death.  Pellagra is a deficiency of niacin (B 3).  With your vitamin D and B 12 already diagnosed as low, you're very likely to be low in all the other vitamins and minerals as well.  The eight B vitamins are water soluble and need to be replenished every day.  The B vitamins all work together.  All should be supplemented if one is low.  Large doses of B 12 by itself can cause folate deficiency anemia if you're low in folate (B 9) already.  Ask your doctor about other vitamin deficiencies.  The easy ones to test for are D and B12.  Tell your doctor how severe your diarrhea is.  Ask about pellagra.  Here's some more information. https://www.celiac.com/articles/24658/1/A-Differential-Diagnosis-How-Pellagra-Can-be-Confused-with-Celiac-Disease/Page1.html https://www.dermnetnz.org/topics/pellagra/ I really hope this helps.  
    • thats so exciting! let me know if you need any help with finding gluten-free products or brands when you move here
    • I have had NO breath tests done. Just  blood, stool, colonoscopy and endoscopy. I'm sorry. I'm feeling so discouraged. I just know its going to be put down to IBS. And I personally feel  that IBS is a throw away diagnosis when no one wants to investigate further. 
    • Also, have you been tested for H. Pylori infection?  I think I have seen that many ulcers can be attributed to that. It is also diagnosed with a breath test.  Hang in there. Many people have been in your shoes.  I wish it were easier.  
    • Another thing to investigate is SIBO (small intestine bacterial overgrowth). It can cause all of these symptoms. There is a breath test to check for it which any GI doctor should know about, although you have a better chance of knowledge at a teaching hospital.  There's a lot of new research in this area. Here is more information: http://www.siboinfo.com/overview.html The current thought is that many IBS cases are actually SIBO. The treatment requires antibiotics (standard or herbal, both work) and dietary adjustments to reduce fermentable carbs so as not to feed the bacteria.  If it is very advanced, it can take multiple courses of treatment and for some people it seems to be chronic. There is always an underlying cause. Food sensitivities and malfunctioning migrating motor complex are the two big ones. Also structural problems with the intestines that slow motility is another.  There is a high prevelance of SIBO in gluten intolerance. My theory is that it is the neuro toxicity of gluten in susceptible individuals that slows gut transit and sets up a perfect condition for bacterial overgrowth.  But I'm not a doctor  I just have a daughter with chronic SIBO and gluten intolerance that manifests itself in neurological symptoms.   You might want to look into it.  The above website is a treasure trove of information. 
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