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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Did I Finally Find An Answer?
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9 posts in this topic

Would like some advice regarding my symptoms. As a reference so you know how long this has been going on I'll tell you I am 25 years old now. To me it sounds like Celiac Disease is the answer I've been looking for.

This is probably going to be long, so please bear with me.

Since about age 10 I've had what looks like a rash with bumps on my arms and legs. It itches too. Have tried numerous things to get it to go away with no luck.

At about 13-14 I started have digestion problems. Sometimes when I ate I would get horrible diarrhea, abdominal cramping, gas, bloating, urgency, the works. This has continued to this day.

At 15, after years of chronic strep throat infections, I had my tonsils taken out. This has curbed the infections.

Starting at about 17-18 I was gained wieght fast in spite of having little appetite. Around that time I also started getting bad heartburn and needed prescription meds for it. Had severe depression to the point of suicidal thoughts.

Sometime around 20 I was diagnosed with IBS. This GI doc was not very good, took one look at my chart, saw the history of depression and came up with this diagnosis. About a week after that I was hospitalized with gallbladder attacks and almost had to have it removed.

Around the same time as the gallbladder issues, I started having what sounded like symptoms of fibromyalgia with the painful spots upon touching.

Currently, I have all the symptoms I've listed plus over time I've developed fatigue, my hair falls out, very minor scratches don't heal. I currently have ones that are about 3 months old and are still visible. My skin is very dry also. I'm sure I'm forgetting other things too. Even though I have no appetite, and eat very little, I gain weight. I've even been on Weight Watchers in the past and exercised with no results.

Also, my mother has many of the same symptoms I do. Some of them are even worse. I also have a cousin on my mom's side of the family that has digestive issues as well and has been tested for autoimmune disorders, but I don't know what the outcomes of those were.

What do you guys think, have I finally found what has made me miserable for so many years? Thanks so much for your time.

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For what it's worth, I think it sounds like you could well have celiac. It would be worth it to get tested. Sorry to hear you are having so many health problems, and such an unhelpful doctor...

Pauliina

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Would like some advice regarding my symptoms.  As a reference so you know how long this has been going on I'll tell you I am 25 years old now.  To me it sounds like Celiac Disease is the answer I've been looking for.

This is probably going to be long, so please bear with me.

Since about age 10 I've had what looks like a rash with bumps on my arms and legs.  It itches too.  Have tried numerous things to get it to go away with no luck.

At about 13-14 I started have digestion problems.  Sometimes when I ate I would get horrible diarrhea, abdominal cramping, gas, bloating, urgency, the works.  This has continued to this day. 

At 15, after years of chronic strep throat infections, I had my tonsils taken out.  This has curbed the infections.

Starting at about 17-18 I was gained wieght fast in spite of having little appetite.  Around that time I also started getting bad heartburn and needed prescription meds for it.  Had severe depression to the point of suicidal thoughts.

Sometime around 20 I was diagnosed with IBS.  This GI doc was not very good, took one look at my chart, saw the history of depression and came up with this diagnosis.  About a week after that I was hospitalized with gallbladder attacks and almost had to have it removed. 

Around the same time as the gallbladder issues, I started having what sounded like symptoms of fibromyalgia with the painful spots upon touching. 

Currently, I have all the symptoms I've listed plus over time I've developed fatigue, my hair falls out, very minor scratches don't heal.  I currently have ones that are about 3 months old and are still visible.  My skin is very dry also.  I'm sure I'm forgetting other things too.  Even though I have no appetite, and eat very little, I gain weight.  I've even been on Weight Watchers in the past and exercised with no results. 

Also, my mother has many of the same symptoms I do.  Some of them are even worse.  I also have a cousin on my mom's side of the family that has digestive issues as well and has been tested for autoimmune disorders, but I don't know what the outcomes of those were.

What do you guys think, have I finally found what has made me miserable for so many years?  Thanks so much for your time.

<{POST_SNAPBACK}>

If you and your Mom aren't celiac I'll eat my hat.  You sound just like me before diagnosis.

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Got the quote last try let me try again, You do sound celiac. Both you and your Mom, don't waste any more time wondering and get it checked out either with a new doctor or by eliminating gluten from your diet. Good luck

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Celiacs certainly sounds possible to me. Definitely worth checking into.

I'd also get your thyroid checked. Hypothyroidism could account for some of the things you describe too.

Good luck!

Susan

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It could well be celiac. I would encourage you to:

1. get the skin rashes biopsied for DH

2. get a doctor to run the full celiac panel of blood work on you

3. regardless of the results, after all testing is complete, try the gluten-free diet (strictly) for three months

You have nothing to lose by being tested, and potentially, quite a bit to gain.

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I agree that there is a very strong liklihood that you could be celiac, but I do think you definitely need to get your thyroid checked also. Hypothyroidism could cause some of those symptoms as well (also, hypothryoidism is linked to celiac so there is a very good possibility it is a combination of the two that you have - like me!! :P )

If getting tested by a doctor is problematic, I would highly recommend Enterolab. I have heard many good things about their testing and results from posters here.

Either way, you definitely need to get tested to find out one way or another....

Welcome to the board!!! ;)

Karen

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What do you guys think, have I finally found what has made me miserable for so many years?  Thanks so much for your time.

<{POST_SNAPBACK}>

Hate to tell you but I think you came to the right place. Do an internet search for Dermatitis Herpetiformis - a skin disorder that is the sole property of celiacs. That is what you seem to be describing. Good luck namesake.

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Your symptoms very well could be celiac disease. Have you been to other websites looking for info? A good one I found in very simple to understand terms is:

http://digestive.niddk.nih.gov

I would find a printout of all the symptoms of celiac disease, highlight all that you have and take it to a dr. Or try the gluten-free diet. That's how I was dx with celiac disease. And the diet challenge is a valid dx tool. Hope you get better soon!

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