• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Celiac/lactose - Breastfeed Vs. Bottle
0

6 posts in this topic

I am a diagnosed Celiac-Lactose Intolerant. My Doctor does not have much experiece with my condition. Has anyone else received medical advise about a Celiac-Lactose Intolerants breast milk nutrients? I am debating if my nutrient levels will be inferior to formula. Since pregnancy, I have developed low levels of calcium and become Hypo-thyroid.

Or does anyone know where you could find this medical information? There is a lot of information on the web, but I haven't found any medical journals or etc on the topic.

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Kellymom.com has the information you need, and cites all of their sources in their articles.

Unless you are *severely* malnourished (think famine in a third world country), your body prioritizes your baby and your milk over you. With the exception of a few things (vitamin D, for instance), milk levels do not change in any significance without serious deficiency. Not to mention it is COMMON for some nutrient levels to go down during pregnancy (as is developing hypothyroid).

Keep taking your supplements, keep eating a well rounded diet, and your milk will be absolutely, totally fine. Not to mention it will have the antibodies, probiotics, and other micronutrients that your baby cannot get anywhere else.

1

Share this post


Link to post
Share on other sites

I agree. There is some decent research that providing breastmilk can help delay the onset of celiac disease in children who are genetically predisposed. Make sure that you take a prenatal vitamin and vitamin D and that your thyroid levels stay stable while you are breast feeding. Good luck with your pregnancy!!

0

Share this post


Link to post
Share on other sites

I was undiagnosed Celiac while pregnant and had an awful time. My husband started making me smoothies with extra silky tofu, fruit & calcium OJ, that got me through it!! I also received help from a homeopathic doctor/nurse/midwife long distance~ a friend of a friend kind of thing. She had me eating rice noodles with broth & ginger to settle my stomach. In the end I gained only 7 pounds and had a low birth weight baby. That was almost 21 years ago :D! He was difficult to breastfeed, but I perused and I do not regret it at all. He is a healthy college man now (I can't believe I just called my baby, a man :o ) He is a little slower on physical growth, but doing very well otherwise!! My other pregnancies were better because I learned how to eat and demand better care for myself. You may want to call around and look for a doctor who has experience with celiacs. I wish I knew then, what I know now. Lots of luck & happiness to you!!

0

Share this post


Link to post
Share on other sites

And remember all the antibodies and bonding hormones that breast milk has that are not in formula.

0

Share this post


Link to post
Share on other sites
Ads by Google:


Even in Third World countries, it's better to breastfeed than not. Bubs get all they need from it. My daughter showed no symptoms of coeliac disease until about 7, and was breastfed until she was 3, so I'm really glad she had that to start with.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,810
    • Total Posts
      932,606
  • Member Statistics

    • Total Members
      64,308
    • Most Online
      3,093

    Newest Member
    Mollie Grant
    Joined
  • Popular Now

  • Topics

  • Posts

    • Hello and welcome I don't have celiac. I do have several symptoms in common with you and I do have a problem with gluten, so NCGS for want of a better term.  A celiac response to gluten involves the immune system so there certainly can be a delay between ingestion and the body producing the antibodies. That would correlate with your tongue aching progressively through the week. Some of the weirder symptoms of celiac occur because those antibodies that have identified gluten proteins as a problem then attack different parts of the body, maybe that's the more delayed reaction in your case. Last time I was glutened definitely I noticed some reaction in a few hours but it was a couple of days before I was certain. After effects can last for weeks or months even.  Wheat allergy is the one with the instant response, it's IGE mediated and so you can have an immediate surge in histamines and in extreme cases anaphylaptic reaction. NCGS is less well understood, some dispute it's existince or question if gluten is the cause. The symptoms however are similar to celiac as far as I know and that includes response time.  You've been through a miserable time but your still young and you need to decide whether you want to pursue a diagnosis or not. If you do, then it will require a gluten challenge of probably 6-12 weeks. See the links below for more details.  If you don't I suggest you go strictly gluten free, keep a food diary and see if the improvements you noted before continue. I think you've probably found your answer. Best of luck!   Further reading https://www.celiac.com/gluten-free/announcement/3-frequently-asked-questions-about-celiac-disease/
    • This is why many of us stick to our own "Trusted Brands" of things we know are safe, and only buy stuff with the offical certification for gluten free. NOTE also in the US they do not HAVE to tell you their facility also processes wheat on the label, just if the actual product contains it in the ingredients. But many will just to avoid legal mumbo jumbo if they somehow have CC issues. Saying the facility also contains/processes wheat is just them covering themselves if people get sick from it.
    • I make my own mini loafs of a simple almond,coconut,apple sauce blend for dense, bland bread gluten free, and have my pastor bless them. I then keep them in the freezer and bring a piece with me for communion.
    • I don't have milk in liquid form any more, so I switched to coconut flavoured milk (rice based) for cereal, really like it. Then I take coffee black which I've also adjusted to. For an occasional treat I'll have a soy latte, tastes a bit nutty but I'm used to it now and it's as much about the visual treat of sitting in a coffee shop with a big milky coffee anyway. The last time I had a real milk latte I got some huge spots a day or so later on my chest and that was the clearest signal that milk and my skin weren't a good mix. What I haven't done is stop eating products that have milk listed as an ingredient. If I do that I lose so many of the nice gluten-free replacements  biscuits ice cream etc. I know I could try and get dairy free, but it's expensive and difficult to find. So maybe I should try doing that and see how I go... It's funny, a few years ago I used to have a 'healthy'  breakfast of porridge, milk, with a big spoon full of wheat bran for fibre which I convinced myself I needed for digestion. I used to feel pleased with myself for having a good start to the day when I subsequently found it was the worst combination of foods I could possibly have devised. I think If I ate that right now I'd explode!
    • I and many others here have been there and sympathise! Keep on keepin' on, it won't be long now before you can start feeling better. In the meantime, if there's a cheesecake, pastry etc that you want to say goodbye to, now's the time...
  • Upcoming Events