• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Gluten Free Support Groups In Southern Ca?
0

14 posts in this topic

Does anyone know of any gluten free support groups in the Los Angeles/Orange Co area? There's one in San Diego, but that's too far. I'm in Long Beach. I'd like to find a group near one of the beach cities between Santa Monica and Newport Beach if possible. Haven't had much luck so far looking on the Gluten Intolerant Group site or the Celiac Foundation Site.

I've been gluten free for 3-4 months now, and I'm still healing, and sick off and on. I'm not even close to going out to eat yet, so gluten free dining groups are not an option at this point. I have experienced what happens with even slight gluten exposure :( and my diet is extremely limited, as I have other food sensitivities from Leaky Gut. I just found a great Naturopathic Doctor locally who has helpful information and is very supportive. She has me drinking a natural supplement powder to heal the damage. Can't tell if it's working yet.

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Yes. The Los Angeles group was more of a social/dining group, and pretty far from me, considering LA freeway traffic. I was looking for a meet weekly and talk sort of group, hopefully a bit closer. Unfortunately traffic is a huge consideration in these parts.

When I left two voice mails for the contact person in Orange County on the Gluten Intolerant Group site, and never heard back after two weeks,I was a little deflated.

I just looked at the main page list again on this site, and I'm going to try the contact numbers listed for the Orange County and Newport Beach groups. Less traffic in that direction. Thanks!

0

Share this post


Link to post
Share on other sites

check the celiac Disease Foundation site. I don't know what part of L.A. you are in but sthere is a very active group in Pasadena. Also one in Burbank/Glendale area.

0

Share this post


Link to post
Share on other sites

Thanks for the info. I'm hoping to say closer to the coast, but I may try those if nothing else turns up. Good to know.

0

Share this post


Link to post
Share on other sites
Ads by Google:


I'm in Santa Monica and have similarly had no luck finding a support group for my 2 year old who is celiac. I was hoping for a playgroup so she wouldnt feel like the only celiac kid out there. I emailed the Celiac Foundation and was told they'd forward my contact but still haven't heard anything. I'm surprised our area has so few groups when other areas (like NorCal where I used to live) have so many!

0

Share this post


Link to post
Share on other sites

I agree. I thought I would find lots of options anywhere in CA. I thought Santa Monica in particular would be one of the likely locations for a gluten free support group. I'm from both southern and central CA. I've always related more to central or northern CA mindsets. Sometimes it seems people in the LA area are too busy being happy to stop and think about reality. I'm happy, but also very down to earth. Sigh. I had the same problem years ago when I was looking for a divorce support group. Nothing.

I did just find a gluten support group in OC that meets for dinners about once a month. It's for adults though. If I hear of something for kids I'll let you know.

0

Share this post


Link to post
Share on other sites




What irks me is that these same neighborhoods are now full of restaurants serving gluten-free foods in contaminated ways to appeal to people avoiding gluten just to be trendy. So now I have to explain to friends that we can't just eat out because places claim to serve gluten-free when they use the same grill to make them. They probably think I'm being over-protective.

Thanks, I appreciate you keeping an eye out for groups tailored for kids. Good luck meeting fellow adults!

2

Share this post


Link to post
Share on other sites

Celiac Disease Foundation Southern California support groups:

Burbank-Glendale-Pasadena contact tenaya3@earthlink.net

East San Gabriel Valley contact travelynne812@yahoo.com

Inland Empire contact treshearer@aol.com

Los Angels-Santa Monica contactsfrieder@earthlink.net

San Fernando Valley contact

0

Share this post


Link to post
Share on other sites

What irks me is that these same neighborhoods are now full of restaurants serving gluten-free foods in contaminated ways to appeal to people avoiding gluten just to be trendy. So now I have to explain to friends that we can't just eat out because places claim to serve gluten-free when they use the same grill to make them. They probably think I'm being over-protective.

Well stated!!!!!!!!!!

That's what I just encountered upon emailing a restaurant.

I got an appropriate response from the GM, then the CEO of the restaurant group wrote back to me a little later and his response made me nervous. He talked about the gluten-free items in a "trendy" context, like low cal or organic context.

People can't grasp how little it takes for us to get a cross contact/contamination. I feel like many people must think since we aren't hospitalized because of it that it isn't that big of a deal.

Losing 3 productive days of our life (in many cases more) because of their trendiness is not what we need.

0

Share this post


Link to post
Share on other sites




Celiac Disease Foundation Southern California support groups:

Burbank-Glendale-Pasadena contact tenaya3@earthlink.net

East San Gabriel Valley contact travelynne812@yahoo.com

Inland Empire contact treshearer@aol.com

Los Angels-Santa Monica contactsfrieder@earthlink.net

San Fernando Valley contact

0

Share this post


Link to post
Share on other sites

I'm in South Orange County. Looking for one in this area!!

Cali

0

Share this post


Link to post
Share on other sites

I live near Orange in Southern California and am looking for a support group too. I had my first major flare ups recently, but have been trying to get a diagnosis for over 20 years. I am still getting sick, I had a salad I made myself for dinner and I don't have any idea which ingredient was wrong. It was walnuts, arugula, balsamic vinegar, tomato and olives.

0

Share this post


Link to post
Share on other sites

I live near Orange in Southern California and am looking for a support group too. I had my first major flare ups recently, but have been trying to get a diagnosis for over 20 years. I am still getting sick, I had a salad I made myself for dinner and I don't have any idea which ingredient was wrong. It was walnuts, arugula, balsamic vinegar, tomato and olives.

Here's a group that meets in Garden Grove.

 

http://www.occeliacs.com/index.html

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      107,328
    • Total Posts
      935,514
  • Member Statistics

    • Total Members
      64,989
    • Most Online
      3,093

    Newest Member
    Jaf
    Joined
  • Popular Now

  • Topics

  • Posts

    • First degree relatives of celiacs should be tested every 2 years in the absence of symptoms & immediately if symptoms present since celiac can present at any age. Celiac affects every cell in the body & inflammation is common. My inflammation began in my lower back and the bend of my leg (on the back side of the knees). It progressed to literally everywhere. You name it, back, neck, arms, legs, ankles, hips, wrists, fingers. Excruciating pain as well as swelling. So excruciating that opiates didn't even phase it. I just had to bear it. I would take ice packs & use them until the area was pure D numb. You're never supposed to leave ice on that long but if I hadn't then I would have shot myself. I can not begin to describe the intensity of the pain. The last year before diagnosis, I was sure that within a year, I would be confined to a wheelchair for the remainder of my life. Now, 5.5 years gluten free, I can't tell you the last time I took a Tylenol or any other anti inflammatory. In fact, I'm not on any meds at all. Nothing.
    • Thanks for all that info and the links.  It would be such a relief if I could know what is causing the fever, and that maybe it will go away as I stay gluten-free.  Both my gastro dr and rheum dr said to still stay gluten-free even though I apparently don't have celiac.  They are saying to give it 2-3 months to see how I feel then.  My fever has been down to around 99.9 the past two days, instead of over 100 and 101 like it's been since February.  That is the most exciting thing so far.  My stomach is not as severe or bad, but certainly not great, and I don't feel out of the woods at all concerning that yet.  I still hope to feel a lot better as more time goes by without gluten....I hope.  I seem to get bloat and also discomfort in my ribs more in the evening, even if I ate the same thing at lunch.   I started a food journal.  I guess I need to keep being patient. My rheum dr wants to see the journal in October when I see her again. She said she loves detective work.  It sounds like we all need to become food and symptom detectives when dealing with this.  Now if we could only get an NCIS episode where they investigate how gluten can "murder" our stomachs, and figure out a cure for gluten issues, besides going gluten-free.  It actually hasn't been too bad so far, other than foods that you are iffy or unsure about with all sorts of weird ingredients listed in it.  The internet and this site here helps a lot with some of that.  Luckily there is a whole lot we can still eat, but corn and corn products are an iffy for me too at the moment, and my dr suggested trying to avoid soy, and that xanthan gum, and a few things like that. Only thing that has shown in my bloodwork so far is chronic inflammation that may mean an underlying autoimmune disease.  Ya, I've been hearing "it seems like something autoimmune" for the past few decades.  It'd kind of be helpful to figure out exactly what.  I'm so tired of being tired.  I am sure you all can relate to that.  You just want to wake up and feel good.  
    • HEB organics does not bother me at all. Their plain one has to be boiled before I can drink it so I tend to use it in moderation in cooking...it also has xantham gum which explained that issue. MALK gives me no issues (Local Only Brand I think). Used to drink something called Mooala but could not find it unsweetened after my UC dia.  Almond Breeze is next up but I can only drink about a cup of it before I start getting burping issues, silk bothers me the least but still causes some issues. Silk cashew is alright and I use it all the time with NO issues at all...but I use it in cooking and do not think I have ever used it without boiling it first either in a icecream base or mixing it in a soup, cheese sauce, or adding a bit to eggs for fluff.   Hmm there is one other brand of macadamia milk that dose not bother me and Good Karma Flax milk I have NO issues with....been a good 6 months since I had any though. http://malkorganics.com/products/   https://www.heb.com/product-detail/h-e-b-organics-unsweet-vanilla-almond-milk/1741526 ^ Two that give me the least issues  
    • Oh goodness me so do you guys bother to get histamine level diagnosed or do you just treat it as you did the food diary ? taking note of high histamine time of year/ season and diet into your seasonal food diet? I'm pretty good at rotating foods I've done that longer than I've known about my issues from a nutritional standpoint I rotated which is why until the gluten challenge derailed my immune system entirely. it was challenging enough to do that gluten challenge I am not really up for more testing. I have symptoms of IC, POTS, fibromyalgia, and now you reveal that yes histamine threshold are part of the celiac autoimmune party bag too. how do all branches of medicine not find this group the most intriguing group of people ever? Really?Or Do you just all avoid them and go on your merry way? Ennis - what almond milk can you drink ? the almond milk 3 we tried/ bought prior to making my own (had unlabeled ingredient  fortified and thickeners corn derived added. ) I was shocked to call and discover it had it in (not labeled as it was corn not top 8) it finally explained why the right elbow joint hurt but it was a small enough derived amount of derived  corn not to trigger the Full blast corn intolerance symptoms. For this reason and now the orange juice incident I'm really leery of unidentified corn or corn derivatives or highly processed any additive for they are prevalent in processed land.  
    • Yeah I have 2 stationary pedal bikes. I use one on the desk sometimes while watching a show and work out my arms. I keep one under the desk and pedal on it for hours a day, really helps with my restless leg issues and stress (just gotta keep moving or I start feeling like a panic attack is coming on trapped by life like a rat in a cage. If you need to know were to find the ground cocoa nibs look up crio bru, they sell it as a coffee replacement for $23 for 1.5lbs they have different origin and different roast levels so you can get different flavored cocoa nibs I get several and mix them up.
  • Upcoming Events