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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

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StephanieL    74

I am so excited! After 2 years gluten free, DS's ttg's are FINALLY NORMAL!!!!

We have been strict and cold not figure out why there were still not WNL. I started poking around here and got some great leads and after demanding more testing and new Dr's we figured out DS also had hypothyroidism. This was in Jan/Feb of this year. So here we are in July with 5 months on synthroid and he's finally under 20!!! I am not happy they they didn't tell me what his number was (according to the Dr. they just say "below 20" which I am not sure I buy). Still thinking of doing more Dr. shopping. It was absolutely ridiculous that he couldn't have called me with the results since we are 2 years into this dx and DS is totally asymptomatic. That was annoying but hey, we know now that his levels are good and I am a happy Mama!

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beachbirdie    43

I am so excited! After 2 years gluten free, DS's ttg's are FINALLY NORMAL!!!!

We have been strict and cold not figure out why there were still not WNL. I started poking around here and got some great leads and after demanding more testing and new Dr's we figured out DS also had hypothyroidism. This was in Jan/Feb of this year. So here we are in July with 5 months on synthroid and he's finally under 20!!! I am not happy they they didn't tell me what his number was (according to the Dr. they just say "below 20" which I am not sure I buy). Still thinking of doing more Dr. shopping. It was absolutely ridiculous that he couldn't have called me with the results since we are 2 years into this dx and DS is totally asymptomatic. That was annoying but hey, we know now that his levels are good and I am a happy Mama!

You might ask the doctor's office what the reference range is for the test, even get a copy for yourself. Many labs have ranges similar to "<19", so if your DS is under 20, that is the limit below which they simply cannot detect an exact number.

So, sounds great, and that is awesome news to receive! Congratulations!

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StephanieL    74

Yes, I knot the reference range was under 20 but I have always heard numbers below that from people and was hoping I would as well. Again, it's within normal limits so I guess I shouldn't concern myself with it ;)

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MitziG    94

That is good news. Just a thought...really a theory I have...my DS was hypothyroid as well, but not on meds as it was minimal and I wanted to wait a bit to see if being gluten-free helped. 1 year gluten-free and it actually was a little worse. And his ttg remained elevated. Then we went casein free as well, and 3 mos later his ttg was normal and thyroid had fallen 4 points to well within normal.

Perhaps it is coincidence...but I know now when he gets casein he reacts badly to it, wheraxs before I thought it wasn't an issue for him. I am curious how many thyroid issues may be caused by food related inflammation.

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StephanieL    74

My son has had milk once in his life. He has an anaphylactic allergy to it so that is a good theory (and I know so much gluten and dairy issues go hand in hand) but that's not the case with him.

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