• Ads by Google:

    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:

       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

New And Needing Some Help :(

Rate this topic

8 posts in this topic

Recommended Posts

Blah...here goes...

I was VERY recently deemed "gluten sensitive". I was sick with a pretty bad virus which left me running fever for 6 days. This led to a lot of bloodwork, which indicated that my c-reactive protein was high. (marker of inflammation) Doc suggest I get tested for food allergies...and hello gluten sensitive. I am not allergic to wheat according to the allergy screening. He said the gluten test was a 'pass/fail' type thing and my test came back 'positive'. On the bloodwork it simply says "Gluten Sensitivity Test TTG/DPG". No idea. Also, my thyroid came back a bit out of whack, which he said was probably the gluten. He told me to eliminate gluten and we'd test my thyroid and CRP in a few months. The end.

I have an inquiring mind, so I made an appointment with an allergist for next Thursday. They said to re-introduce gluten back into my diet for the tests.

I don't even know what my question is here - just help. In my perfect world, it was a false positive and I can enjoy a big slice of pizza with a beer at the end of all this...but I don't believe that will be true. I've never had any symptom of any kind of intolerance. No fatigue, or any GI weirdness.

Does anyone know what the allergist will do? Please tell me no intestinal biopsy...

I just don't know where to go from here. HELP!!!

Share this post

Link to post
Share on other sites
Ads by Google:
Ads by Google:

Ok, first of all...

TTG and DGP are both celiac blood tests. You need to ask your doctor for the actual results, along with normal ranges, and post them on here. There is no reliable testing method for gluten sensitivity or intolerance currently. It is trial and error.

Now, if you have positive TTG and DGP then you have celiac disease. The DGP in particular is highly sensitive for celiac.

Celiac is an autoimmune disorder, not an allergy. Now, you can have a wheat or gluten allergy, in addition to celiac...but one has nothing to do with the other.

An allergist can only test for IGE allergies, not celiac. Not gluten sensitivity. No matter what they might tell you.

What I can tell you is that right now you have no real answers.

Start eating gluten again, immediately, and do not stop until all testing is done to rule out celiac disease. If you are not eating gluten, you will get a false negative.

Now, if it turns out your bloodwork was positive for celiac, you don't necessarily need an endoscopy. A lot of doctors adhere to it being the "gold standard" for diagnosing celiac, but the newer blood tests are so specific that it isn't always necessary, though it can be beneficial to know what state your intestines are currently in. If you do have an endoscopy, don't sweat it. It is an easy out patient procedure, not a big deal at all.

As for your thyroid...yes, gluten can certainly affect it. When all of your testing is done, whether you are dx with celiac or not, you should definitely go gluten free and see what happens.

Gluten sensitivity or intolerance is extremely common, and at least your doctor is aware of the fact that it is a real issue. Many do not. But you need to definitively rule out celiac disease before you accept a dx of "gluten sensitivity." Celiac is genetic, and if you have it, your other family members need to be tested. Because it is autoimmune, you will be at increased risk for other ai disorders as well.

Welcome to the boards. Please take your time looking around. You will learn a lot here.


Share this post

Link to post
Share on other sites

Thank you...very much. I feel completely blind in all of this.

Do you think it is worth going to see the allergist? Should I be seeing a GI doctor? I haven't a clue who to see at this point.

A nurse at my doctor's office is gluten intolerant and she went and had genetic testing done and recommended that. She said she learned she could also not eat corn, which is something they don't usually test for? She also said she learned she had a genetic predisposition for celiac...but that she did not get tested for it, since she already knew she couldn't eat gluten. Not sure if I should go ahead and do the allergist thing or not.

My grandmother's sister has celiac, and so does her son. So, I would say it's in my family, but no one in my immediate family has it...that we know of. My aunt and brother are both considering getting tested as they have some issues that could be related.

Thanks again for your help.

Share this post

Link to post
Share on other sites

Right now, get a complete copy of your labs, post them here. It is difficult to advise you without knowing for sure what they say. If the labs are negative for celiac...the allergist might be worthwhile. Commonly, celiac and gluten intolerance will trigger other food intolerances. Once you remove gluten from your diet, many food sensitivities will likely go away. Not always, but often.

With celiac in your family, I would say there is a high likelihood that is what you are looking at though.

Share this post

Link to post
Share on other sites

My grandmother's sister has celiac, and so does her son. So, I would say it's in my family, but no one in my immediate family has it...that we know of. My aunt and brother are both considering getting tested as they have some issues that could be related.

Thanks again for your help.

You have celiac in your family and you have had positive blood work including one of the tests that are the most reliable. I would ask the allergist what testing he wants to do that requires you to keep eating, or go back to eating gluten. Celiac is not an allergy and will not show up on allergy testing. If you are not going to have a biopsy done then personally I would just get on the diet. It sounds like you have a good doctor but you should get your test results to have for your records.

Share this post

Link to post
Share on other sites
Ads by Google:

Welcome Adrienne! :)

Celiac disease is an autoimmune condition. The blood tests they do measure antibodies to gluten (gliaden).

There is an autoimmune thyroid condition that is often associated with celiac disease called Hashimoto's Thyroiditis. You can get a test for thyroid antibodies done, I believe it is called TPO antibodies. We have quite a few threads on Hashimoto's here. An endocrinologist is a specialist in endocrine function and could test you for Hashimoto's if your regular doctor won't.

As you may realize now, celiac can affect many parts of the body besides the gut. People get arthritis, diabetes, and many other auto-immune diseases that are associated with celiac. Dermatitis Herpetiformis is a skin rash that only people with celiac get, So it can affect any part of the body including joints, hair, skin, brain, nerves muscles etc. Celiac also can cause mal-abosorption of vitamins due to gut damage. That leads to a whole slew of problems in various areas of the body since it can't maintain itself without the vitamins it needs.

This all sounds pretty scary but the good news is that with a strict gluten-free diet the problems can be prevented in many cases or even eliminated in some cases. But the gluten-free diet is very important to prevent additional damage to the body.

Here is some reading material that may help.

FAQ Celiac com


Newbie Info 101


What's For Breakfast Today?


What Did You Have For Lunch Today?


What Are You Cooking Tonight?



How bad is cheating?


Share this post

Link to post
Share on other sites

I had my testing ordered by my allergist after doing some research. She was happy to order the lab tests (Celiac panel), but she couldn't do anything for me beyond that. I would go see a GI doctor. He has been the most knowledgeable for me! After my lab results came back positive, I did have the intestinal biopsy. It was a VERY easy procedure!!

Good luck!

Share this post

Link to post
Share on other sites

Ads by Google:

It sounds like you may have had a blood screening for Celiac Disease and you tested positive.

celiac disease is much more serious than a "gluten sensitivity" in that cheating on the diet is NOT an option. (If you were just intolerant, you could cheat and just suffer the uncomfortable consequences) With celiac disease, you have an autoimmune condition that is triggered by gluten. Continuing to eat gluten can result in permanent damage, developing other AI conditions, and even cancer.

I would FIRST try and find a good celiac doctor in your area (google to see if there is a celiac disease support group or somewhere you can get advice) and start there. You may or may not need an endoscopy, so don't change your diet just yet.

The chance of a "false positive" is unlikely. While you are waiting for further testing, start learning about the gluten-free diet and scope out your grocery stores for products you might like.

All first degree family members need to be tested - even if they have no symptoms.


Share this post

Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now


  • Forum Statistics

    • Total Topics
    • Total Posts
  • Member Statistics

    • Total Members
    • Most Online

    Newest Member
  • Popular Now

  • Topics

  • Posts

    • We were in Santorini and Athens in August 2015.   We found eating gluten free easy in Greece.   Their cuisine involves fairly simply ingredients, olive oil, salt, and herbs.   My celiac daughter can eat almost all the grilled meats and vegetables.   Obviously you have to avoid the pita.   Also, be careful of the gyro meat, because some places threw beer in their marinade.   My daughter enjoyed lots of grilled fish, seafood, and meats there. We found the Greeks very friendly and accommodating, when we explained that we have to avoid gluten, the servers knew what that is, and were happy to accommodate us. Airport is different.   I have the habit of calling the airline a couple of week before the flight to make sure they have gluten-free meals for my daughter.   But I always pack backups for long flights.
    • You'll get to the point where you can eat other things, you just have to give it time. Can you do eggs? Hard boiled eggs. They make fast snacks and are highly portable. If you make nut butters, you can just eat it by the spoonful.  I don't like "normal" coconut macaroons, too wet for me, ick! I found this recipe though which drives me insane --- sooooooo good I about swallow my tongue. http://www.foodnetwork.com/recipes/alton-brown/toasty-coconut-macaroons-recipe-1912139 Don't know if you like them or not but re-fried beans. I NEED my carbs!!!!! If I don't get carbs, I will get weak & shaking 30 minutes after eating. I can't eat every 30 minutes!!! So I eat a lot of re-fried beans. I make a big vat & then portion into containers & freeze. If you have or get a stick blender, it will make super fast work of mashing those beans up. Only takes 2 minutes or less. I use olive oil in mine & lots of it -- need that fat. 
    • Coconut, almond butter, and cocoa nib fat bombs...I use plant fats to do it. You can make some great snacks out of fresh almond butter, shredded or coconut flour, and cocoa nibs. Sweeten with stevia for little dough like balls of goodness. Oh you miss potato chips, two options here I like to make my own protein chips with pea protein, or I can have 2-4 protes chips (vegan pea protein  chips made by a company) but they have to be eaten in moderation. Coconut chips....yeah I get Lets' Do Organic ones I can snack on a hand full of them or throw a handful of cocoa nibs in my mouth for snacks. If you like meat, try making jerky. get a dehydrator season your own and just do it.....lucky you can eat meat. I miss making roast in a crock pot....I used to make some of the best shredded meats. My old smoker.....I could make some of the best ribs and roast EVER. The jerky can be made and taken for snacks on the road or while out, crack open a can of spinach (canned unsalted delmonte does not bother me) or pack some stewed greens and have some jerky tear it up stir it in canned keto on the go. Other lovely thing are tuna and salmon if the canned bother you I often find them too salty to enjoy I have taken some and smoked it or dipped it in liquid smoke then cooked in a baking dish then loaded in to the dehydrator. I find doing this I can have that little bit of fish when I want without worry of spoilage (sucking on it and chewing it for a long time make it really satisfying for me) ....SOO doing this next week to try the fish again. Speaking of fish...since I perfected keto bread in my bakery this month......I think I might try making a tuna sandwich with avacado mayo....not had a tuna sandwich in over 5 years.....
    • I am a newly diagnosed celiac and am traveling abroad for the first time since starting the diet. I will be going to Greece in the spring. I was wondering if anyone had any tips for eating gluten free abroad or at airports? Thanks! 
    • Yeah I've wondered a bit if I'm not getting all the other B vitamins from food alone and if they'd do me well. Magnesium content in the keto vitals isn't a lot. I try to get some more through food but I doubt it's optimal. I might have to look into that stuff. Interesting about the meats. Unfortunately I need the fat, especially if I'm gonna continue trying this keto thing for awhile, give it a chance to work. I did know about the difference in omega content, but since starting this diet I've been supplementing with fish oil to offset the omega 6's. Hope you'll be able to eat meat again soon, even if in small amounts. So much this. Every day I want to get up and do anything, and can't and it sucks. I want to climb the walls, get away from myself... Ugh, this takes too long, and I'm too impatient. Yeah, looks like I have to cook everything. I figured I'd at least be able to eat raw baby spinach. I need SOMETHING I can just grab and eat, but it gives me the same slightly itchy mouth that fruit gives me. I've been allergic to fruit forever... Don't have this problem with my steamed broccoli and cauliflower. I already cook everything else I eat. (and it's all organic, real food) So annoying to have to spend half my day cooking, not that I have anything else I can do. But what do I do when (or if) I get healthy again and am like, out somewhere? Damn I miss potato chips. I'll tweak a few things here and there and keep trying.
  • Upcoming Events