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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Could Celiac Disease Be Causing My Other Health Issues?
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6 posts in this topic

Hello all,

I am new to posting in forums about Celiac Disease but I am very excited to begin. My name is Danielle and I am a 21 year old recent college graduate. I was diagnosed with Celiac Disease in early 2009. I was also diagnosed with GERD, Chronic Migraines, Carpal Tunnel Syndrome and Cavus Foot Deformity before and after my Celiac diagnosis. Recently, I lost my health insurance through the government when I turned 21 and of course I had several tests and procedures scheduled afterwards. In addition to gluten, I try to stay away from dairy too.

My symptoms of Celiac include cramps, gas, bloating, diarrhea, easy bruising, iron deficient anemia, fatigue, weakness, fluid retention, nausea, vomiting and others. Some of the other symptoms I am experiencing may not be caused by Celiac.

I graduated in May 2012, just a few months ago. Since I moved back home after graduation, I have been the sickest I've been in my life. I feel anxious and somewhat depressed all the time; resulting in loss of sleep and I am overwhelmed with everything. My sleeping habits are completely screwed up. Going to sleep at 4am and waking up at 1pm seems like my natural sleep/wake cycle. Each day when I wake up, I feel like a took a sedative in my sleep. I can barely keep my eyes open and I sleep through my alarms and wake ups. Then when I wake up, sometimes I have headaches and I always have diarrhea, bloating, nausea and just and overall feeling of being sick. It takes me hours of going to the bathroom and laying down until I feel better to even start getting ready for the day.

I had been applying for jobs and trying to volunteer but I have been so sick every day. I still have all of my Celiac Disease symptoms and now even more. I am hoping to see if anyone has similar stories and what they did to overcome this. Also, could all my issues be caused by Celiac? I have been eating a careful gluten free diet and I should have some improvement in how I feel...

Thank you and I appreciate responses!!!

-Danielle

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You said things got worse "Since I moved back home"....are you are getting cross-contaminated somehow?

There could be a number of reasons why you feel worse, but let's start with this one.

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Hello all,

I am new to posting in forums about Celiac Disease but I am very excited to begin. My name is Danielle and I am a 21 year old recent college graduate. I was diagnosed with Celiac Disease in early 2009. I was also diagnosed with GERD, Chronic Migraines, Carpal Tunnel Syndrome and Cavus Foot Deformity before and after my Celiac diagnosis. Recently, I lost my health insurance through the government when I turned 21 and of course I had several tests and procedures scheduled afterwards. In addition to gluten, I try to stay away from dairy too.

My symptoms of Celiac include cramps, gas, bloating, diarrhea, easy bruising, iron deficient anemia, fatigue, weakness, fluid retention, nausea, vomiting and others. Some of the other symptoms I am experiencing may not be caused by Celiac.

I graduated in May 2012, just a few months ago. Since I moved back home after graduation, I have been the sickest I've been in my life. I feel anxious and somewhat depressed all the time; resulting in loss of sleep and I am overwhelmed with everything. My sleeping habits are completely screwed up. Going to sleep at 4am and waking up at 1pm seems like my natural sleep/wake cycle. Each day when I wake up, I feel like a took a sedative in my sleep. I can barely keep my eyes open and I sleep through my alarms and wake ups. Then when I wake up, sometimes I have headaches and I always have diarrhea, bloating, nausea and just and overall feeling of being sick. It takes me hours of going to the bathroom and laying down until I feel better to even start getting ready for the day.

I had been applying for jobs and trying to volunteer but I have been so sick every day. I still have all of my Celiac Disease symptoms and now even more. I am hoping to see if anyone has similar stories and what they did to overcome this. Also, could all my issues be caused by Celiac? I have been eating a careful gluten free diet and I should have some improvement in how I feel...

Thank you and I appreciate responses!!!

-Danielle

I had typed up a reply earlier, lost in ...

1) When did you start you gluten free life? did you see any improvement at that time?

2) Do you presently live in a mixed household?

3) Who does your food prep? and are they cognizant of what you require?

4) Have you checked all your personal care items and meds/supplements?

5) Totally unconected to celiac, are depressed r/t lack of employment?

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Gluten can cause all of what you are experiencing. At my sickest that was how every single day was....

Only being 100% gluten free will fix it.

That means traces and cc need to be watched for and avoided carefully.

You can get better, but your food is your lifeline...so be sure it is gluten free.

Severe and profound depression and anxiety can be caused by Celiac. If I fet any gluten at all, I feel that way too.

good luck and I hope you figure this out soon, it's a miserable way to live.

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I do not think there is any cross contamination at my house. My mom eats mostly gluten free too. She does have some gluten items but we are sure to have our own butter and condiments and everything so we eliminate a lot of the possibiltities.

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1) When did you start you gluten free life? did you see any improvement at that time?

I began eating gluten free almost immediately after being diagnosed in 2009. I relapsed back to gluten during my 3rd year in college but then started back up on it after a few months. My mom says she saw improvements especially in my bathroom usage but I dont feel dramatically better ever. I feel like there are slight improvements but I expected to feel much better in a few months as my doctor informed me I most likely would.

2) Do you presently live in a mixed household?

Yes I live with my mo who does not eat fully gluten free all the time.

3) Who does your food prep? and are they cognizant of what you require?

My mom and I do our food prep and she also mostly eats gluten free. We are very careful about cross contamination.

4) Have you checked all your personal care items and meds/supplements?

I have checked the medications and some cosmetics. I am still working on my shower items to see if they contain any gluten.

5) Totally unconected to celiac, are depressed r/t lack of employment?

It definetly could be related. I also think that being so illl has made me stay home more and not do the things I enjoy. I only hang out with a few friends because I feel anxious. Not sure why but I just don't want to see anyone.

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