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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

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Greetings Patt-iAnn,

When I went to the doctor with my genetic test in hand my doctor said that I looked 5 months pregnant. Indeed I did. I had also been asked several times when my baby was due, when I was not pregnant. Now, I have a reasonable answer to that; I am just bloated by celiac.

I am 6 months grain free and am starting to deflate.

I went through times of intense hunger like you described. I also have times where I am not hungry for several days and force myself to eat. I treat my celiac with supplements, excercise, and sunshine. My diet is of notable importance. You mentioned B12 and a sublingual B12 has been working for me. I am improving and am so glad that I found out what the problem was and it can be helped.

Diana

thanks diana

i find now i only look pregnant after accidental gluten...then its right back to the way i use to be. i have been gluten free since beginning of april... and dealing with intense hunger now. i will try b 12 shots and see if that helps. i go threw days of coping and then days of depression but thats only when im out and about and cant eat on the go like the rest of my family and then find myself having to have my husband drive round and round trying to find something i can eat after everyone else has. just frustrated. i am happy though that i did find out what is wrong....even though it sucks. my life has improved so much....im happier for the most part and im not sleeping my life away i have energy again. my husband cant believe the difference. just had a bad couple days.......:(:)

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Sorry I've taken so long to respond. I've been out of touch for a while --- buying a house & the deal went south when the survey revealed the septic drain field was on the neighbor's property.

It's wonderful you are feeling so much better Patti-ann!

To answer your question, it took many, many months before I wasn't continually starving. We are each individuals so there is no set time limit & I can't remember exactly but I will say mine lasted 5 or 6 months. Now, I'm more back to normal except I eat lunch @ 11 am --- can't seem to make it till noon. Always, always, always carry safe food with you - always. That's a hard & fast rule. It's very hard to eat out & IMHO rather risky. You can always have a baked potato, just don't let them cut it before serving it to you. I didn't find anything that helped with the hunger except eating.

Try to get over the embarrassment. If people can't handle it that's their problem not yours. And as time goes on you will adjust as will your family. Especially as you become more confident & as your family learns the ropes too. And they are seeing the difference in you! That's a great sign! :)

Onward & upward!

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hey....there you are! lol

sorry to hear about the house :( ive had lots of let downs when it comes to buying houses...but i always think there will be another one and there always is!

and so the hunger pains do continue. one thing i have found to help a bit is i have switched to brown rice. seems to keep me fuller longer. question for ya..... had a bad friday night there was no food in the house and i broke down and ate half a jamaican patty. expecting to be extremely sick next couple days but wasnt that bad. bloated like 9 months pregnant, bowel irratbility and finally a bit of nausea. but nothing as bad as i use to get even with accidental glutening. do you know if the longer you are gluten free and the intestines heal does your body handle the gluten differently? not sure if im asking that question right? not that im gona start eating gluten occasionally at all but was really surprised i wasnt worse. usually i vomit my guts out next morning. just wonderd IF the body has healed quit a bit if it doesnt react so violently..as when it is extremely damaged and worn out? let me know your thoughts

welcome back!

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patti-ann, I'm the wrong person to ask about that. I have the skin presentation of celiac disease (dh) & we tend to have less GI symptoms & when we do they are less severe. But I will say once again that we are all individuals & react differently. I want to say that I have read on here where some people do like you did & had a mild reaction rather than a reaction like the days of yore. And I want to say that in those same readings the people have gone on & had more gluten & gotten the strong reaction again. You might have just gotten lucky.

Hopefully someone will come on & answer your question who knows better than I do about it.

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patti-ann, I'm the wrong person to ask about that. I have the skin presentation of celiac disease (dh) & we tend to have less GI symptoms & when we do they are less severe. But I will say once again that we are all individuals & react differently. I want to say that I have read on here where some people do like you did & had a mild reaction rather than a reaction like the days of yore. And I want to say that in those same readings the people have gone on & had more gluten & gotten the strong reaction again. You might have just gotten lucky.

Hopefully someone will come on & answer your question who knows better than I do about it.

patti-ann, I'm the wrong person to ask about that. I have the skin presentation of celiac disease (dh) & we tend to have less GI symptoms & when we do they are less severe. But I will say once again that we are all individuals & react differently. I want to say that I have read on here where some people do like you did & had a mild reaction rather than a reaction like the days of yore. And I want to say that in those same readings the people have gone on & had more gluten & gotten the strong reaction again. You might have just gotten lucky.

Hopefully someone will come on & answer your question who knows better than I do about it.

squimming itch.... you are very informative and i will look into other posts regarding my reaction....and you will not believe this....

my brother in law had been suffering from a blistering itching rash since last fall..... been to doctors had all kinds of diagnosis and prescriptions of which nothing helped.....THEN i remembered your post regarding your condition and talked to my sister and sent her your email...... they went back to docter who reluctingly sent him to a dermatoligist and had a biopsy done on the blisters and sure enough tonight they found out he has celiac.......... they have been through hell!!!!!! and back! he also has other problems like emotional sleeping etc..... all kinds of stuff that celiac affects but you think you must have a neological problem.... and because of you he got diagnosed..... i never heard of the rash before you!!!!! it sucks but is so awesome they found out... he been going crazy with the itch... and the pain!!!!!! and of course i gave them the heads up about the hunger as you did me lol thank you so much!!!!!! they so relieved to see an end in sight.....

THANK YOU!!!!!!!!!

patti ann

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Oh my! I don't know whether to be happy or sad. I'm thrilled that he got dx'd!!!!!!! And now he knows. Tell them to come on & join us --- there is a lot to learn about dh. There is a whole forum here for it. He may yet go through more hell as dh can present for up to (& maybe more) 2 years after being strict gluten-free. :( But at the end of the tunnel......

And maybe he will be a lucky one who gets over it pretty quickly. I sure hope so!

Here's the dh forum:

http://www.celiac.com/gluten-free/forum/26-dermatitis-herpetiformis/

YVW but I really can't take credit. This board is responsible. If not for celiac.com there would be multitudes of people floundering around suffering with no answers including myself. So let's give a big hand to Scott Adams who created this site.

Thank you Scott!

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