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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

For Those Who Are Bedridden And Can't Cook Or Afford gluten-free Products
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7 posts in this topic

As I mentioned in my last post, I am on and off bedridden with multiple chronic conditions and am going to be tested for gluten sensntivity in the near future. With that said, I have no energy to cook (barely have the energy to type these posts) and I also cannot afford premade gluten free foods...I feel like my finances and current state of health is going to make it near impossible for me to follow a gluten free lifestyle. I would like any advise from those who are in the same predicament. While the recipes look yummy i have noone to make them for me and cannot buy many gluten free products.

Thanks for any advise you can give me. I used to belong to a gluten free support group when i tried gluten free years ago and unfortunately the people on there was not very sensitive to my situation and said you either cook gluten free or you buy the premade stuff..they either had someone to cook for them or were not as ill as i was unable to cook for themselves (or they were made of money ;) so i was not successful in going gluten free. My situation is pretty much the same right now but I am hoping for a miracle that will allow me to get around these issues.

blessings

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I'm wondering, if you are that ill. maybe your insurance or Medicaid would pay for some household help?

What have you been eating? There are simple things that are gluten-free. Beans and rice, chicken and rice, hamburger without bun, frozen or canned veggies and fruit, cheese, yogurt, Chex cereal, etc. Make a bunch at once to eat all week. Put it in a crockpot to cook itself.

Read around, we have threads about gluten-free on a budget.

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In then upper right corner, is a google search. Use budget or cheap. There should be quite a few. A few I found:

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Who helps you grocery shop? If you have someone, would they be willing to help you out some in the kitchen? Do you have any family or friends that would be willing to come by say, once a week to help you make up some snacks/meals for the week? What about inquiring with a local Meals on Wheels program to see if they could provide gluten free meals? Do you belong to a church that may be able to help shut ins etc.? What about contacting some charitable orginazitions or the food bank in your area?

Some food ideas that I can think of off the top of my head:

-Craisens

-fresh fruits/veggies

-gluten free Rice Krispies

-rice, corn, chocolate, honey nut, apple cinnamon Chex cereals

-cocoa and fruity pebbles cereal

-Underwood deviled ham

-Armour vienna sausages

-Spam

-Dinty More beef stew

-certain varietes of Progresso soups

-rice

-canned fruits/veggies

-Bush's baked beans

-eggs

-corn tortillas

-prepackaged deli meat(Hormel, Buddig, Hilshire Farms, Land O Frost, Applegate Farms)

-prepackaged cheese and cheese slices

-Jell O

-apple sauce

-hamburger patties/hotdogs/smoked sausage

-potatoes

-Nature Valley roasted nut crunch bars(almond and peanut)

-salsa

-Lays Stax

-Sam's Mill pasta(my favorite and for a 16 oz. package is around $2.50 or less which is pretty cheep for gluten free pasta)

-Classico pasta sauce

-Mary's Kitchen and Hormel corned beef hash.

-canned tuna

-canned chicken

-there are some Taste of Thai quick meals in a box that are gltuen free

-Thai Kitchen instant rice noodle soups

-popcorn

-peanut butter

-Quaker rice cakes(big ones only and are labled on the package gluten free. They make a great base for all kinds of toppings)

-pepperoni

I really hope you find a way to make it work. You deserve to feel better. Thinking of you.

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Just curious what "testing" you are doing? There is no accurate test for gluten sensitivity. You do need to be tested for celiac disease though BEFORE you begin a gluten free diet. If you are already gluten free you will have a false negative.

Many normal foods are already gluten free- you don't need to buy specialty items other than bread. Chex, pebbles cereal, kix are all safe to eat. Nuts are usually fine (just check to make surre they aren't processed with wheat) pretty much all plain, unseasoned rice (zatarains does have some mixes that are gluten-free, but not all are) all fruit and veggies are fine. Assuming someone must cook something for you, or you are able to cook a little? Plain meat is fine, just watch your seasonings. Canned beans and corn taco shells and tortillas (takes awhile to get used to the taste, but now I love them) dairy products are generally safe as well.

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Chronic conditions forcing you to be bedridden are horrid - I understand how that is. I was bedridden with a back injury and nearly five years later have constant back pain. I totally understand that you do not have energy and that with chronic pain there is muscle wasting involved due to inactivity. All sorts of serious pain meds did absolutely nothing but make me feel worse so I am finished with them. As I love cooking I do it but I do it in spurts. I do my prep then lie down. Then something else, lie down. But it is that passion that draws me to it. Without that passion it would be doubly difficult. My pain is no longer acute nor does it keep me in bed for days on end as it used to. That can and will happen to you, too. Don't give up hope! :D

Do you have a slow cooker or crock pot? Someone else mentioned that idea. Is it possible to make large batches of things that last for several days such as chili con carne, all sorts of chicken, meatballs, soups and so on? When I have rough pain days I make something like potato leek soup that lasts for about four days. Lentils and other pulses and legumes are very inexpensive and go a long way.

And it is true that many foods are naturally gluten free, thankfully. Gluten-free snacks are often expensive and soooo not worth it in my opinion. Do you have the inclination to make hummus (inexpensive) or vinaigrette (also inexpensive) to go with your veggies? Can a friend prep vegetables for you?

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The prospect of cooking when you are entirely ill is daunting. I was there. Keep it very simple. I had about two things I could make and it was only because I had to.

#1

1 or 2 Cartons of Chicken Broth (no gluten or msg),Chicken Breasts, A package of frozen vegetables that you tolerate,Put them in a pot and simmer until the chicken falls apart.

#2

1 or 2 Cartons of Beef Broth (no gluten or msg), Beef(ground beef or a roast)Package of frozen peas and carrots, Package of diced frozen potatos.

Simmer until the beef falls apart. Ground beef takes less time.

I did cook rice too....so that is #3 I guess.

You just need simple food.

I wasn't up for cutting anything up, dropping any spices in, or gluten free baking for many months.

It might not sound great, but if that is all you can do, then that is all you can do.

Hoping the friends or fiance' can help you, but if they can't....these might be helpful.

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    • Feeneyja and Captain NCGS, and Ironictruth It could be SIBO or it could be NCGS as Captain NCGS pointed out. see this research that matches your 84% of SIBO patients. https://www.celiac.com/articles/24058/1/Large-Number-of-Irritable-Bowel-Syndrome-Patients-Sensitive-to-Gluten/Page1.html Below I summarize their findings I quote “nearly 84% of the gluten- free placebo group showed a significant improvement in symptoms compared to just under 26% for the gluten consuming group.  This study confirms that a large number of patients diagnosed with irritable bowel syndrome are sensitive to gluten.  The team (of doctors) suggest that the term of IBS might be misleading (you think) and may change or delay an “effective and well-targeted treatment strategy in gluten sensitive patients”. “ This is in IBS patients already who fulfilled Rome III (lesion) criteria.  They should at least be considered Non-Celiac Gluten Sensitivity (NCGS) but that would be to admit NCGS is a real condition. If you are having NCGS symptom’s (Marsh Lesion) aka Rome III lesions then why is the diagnosis not NCGS instead of IBS?  The problem is most NCGS (apparently 84%) is misdiagnosed as IBS in a large number of cases or possibly SIBO in your case Feeneyja. Even when 84 % of those with IBS show sensitivity to gluten the diagnosis of Non-Celiac Gluten Sensitivity is not confirmed by a simple gluten antibody test and people  consider Non-Celiac Gluten Sensitive (NCGS at least in the medical community apparently) a myth rather they diagnosis someone’s digestive problems with IBS of an unknown cause instead of admitting gluten is the trigger thus allowing them to avoid what is considered a mythical diagnosis to some in the medical community. By all means if  you have been given an IBS or SIBO diagnosis insist at the least on a gluten antibody test and you may save yourself many years’ of suffering before the doctor’s figure out that Gluten is the trigger then you have hope for recovery if you get the right disease. And I don't mean NCGS. Because even this too is confusing low stomach acid I believe with IBS, NCGS and even SIBO. See my posterboy blog post about why  I think this is. JMG aka Captain NCGS I referenced the Columbia University Medical Center (CUMC)  research on NCGS that I think proves your point and mine. here is the care2 article that I think summarizes it well. http://www.care2.com/causes/new-study-confirms-existence-of-non-celiac-gluten-sensitivity.html NCGS is on the "Celiac Spectrum". quoting dr. hyman from the huffpost 5+ years ago and still people seem them as different diseases (or at least deny the existence of the one over the other) http://www.huffingtonpost.com/dr-mark-hyman/gluten-what-you-dont-know_b_379089.html "When you get these tests, there are a few things to keep in mind. In light of the new research on the dangers of gluten sensitivity without full blown celiac disease, I consider any elevation of antibodies significant and worthy of a trial of gluten elimination. Many doctors consider elevated anti-gliadin antibodies in the absence of a positive intestinal biopsy showing damage to be “false positives.” That means the test looks positive but really isn’t significant. We can no longer say that. Positive is positive and, as with all illness, there is a continuum of disease, from mild gluten sensitivity to full-blown celiac disease. If your antibodies are elevated, you should go off gluten and test to see if it is leading to your health problems." and the columbia research bears this out. ironictruth you want to catch it at the NCGS stage before it becomes full blown (villi burned to the ground) Celiac disease. You are right to run from the burning house (antibodies) causing you a weak but "positive" diagnosis. This concept of the biopsy "proven" diagnosis is archaic at best and barbaric at worse in this age of serology proven diagnosis of NCGS before the villi burns to the ground so to speak. see this online article by dr. rodney ford that discusses why this is today. http://drrodneyford.com/extra/documents/236-no-gold-standard.html and he too (though in minority) is forward enough thinking to diagnose his patients with serology alone. Why would we use a standard 60+ years old when modern medicine can diagnose the disease much better and much, much sooner than what till there is stage 3 marsh lesions. The dgp test you had can diagnose it the intraepithelial lymphocytes (IEL)  stage. That is good news.  The villi are already smoking (using my analogy) of a burning house from antibodies attacking the body. Problem is and I mean this as a complement to SIBO girl and Captain NCGS (I was this in an article about the ZIKA outbreak patients talking how much more they (those affected by the disease) knew than their doctor's who where treating them at the time) we (us) have become doctor's without diplomas'. One of us each has become an expert at recognizing SIBO, NCGS and Pellagra. The question is which one is right??? Maybe we are all right by degrees. I believe NCGS can be confused for SIBO. But I also believe and the research confirms it in my mind that low stomach acid mimics many of the symptom's of both SIBO and NCGS. So that tells me there is still a disease not yet correctly identified. To me the disease that answer's the most questions in my mind is Pellagra. Ironictruth, Freneyja, JMG taking a b-complex can disprove or prove this theory. here is the full paper by Prousky. http://orthomolecular.org/library/jom/2001/articles/2001-v16n04-p225.shtml decide for yourself but people routinely get better in 3 months time of taking  niacinamide 2 to 3 times daily or a b-complex and niacinamide 3/day for 3 months. The dosage does not matter.  It is the frequency. And a month will be enough to see improvement (100 count bottle).  I used to recommend to my friends a 100 count bottle because it was the most common way to find either Niacin/Niacinamide or a b-complex but when I found out your body could store 3 months worth in the liver and my experience with b-2 (riboflavin) and angular cheilitis (look it up on google images if you don't know what it is) for years probably 5+ I could not get rid of it for nothing. And I took b-2 (for a 100 count round) once before but learned b-vitamins needed to be taken frequently for best effect. So I bought a 300 count bottle (3 months worth) and took them (b-2/riboflavin) 2 to 3 day and the angular cheiliitis (leaking lips, cracked fissures at the side of the mouth) and it was nice and crusty went away and they have never come back since. but this was after I took the B-3 Niacinamide for a couple months firsts then I was able to absorb the b-2 (riboflavin) now and I put this condition in remission (i did not say cure) because if I get low again it might come back but remission. The same thing happened to my GI problems associated with NCGS (serology positive celiac diagnosis) without a biopsy proven (thank God) diagnosis. And that is my story. I would suggest jmg, feeneyja and you too too ironictruth buy a b-complex and see if a couple three months regimen might help put your GI symptom's in remission. we already know from research 5+ years ago that b-vitamins help celiac's with their well being. https://www.celiac.com/articles/21783/1/B-Vitamins-Beneficial-for-Celiacs-on-Gluten-Free-Diet/Page1.html quoting "For 6 months, patients received daily doses of either a placebo, or of B vitamins in the amount of 0.8 mg folic acid, 0.5 mg cyanocobalamin and 3 mg pyridoxine." They summarize quoting "These improvements, the normalization of tHcy levels, together with the substantial increase in well-being, led the research team to conclude that people living gluten-free with long-term celiac disease do indeed benefit from daily supplemental doses of vitamin B, and that doctors should consider advising the use of B vitamins supplements for these patients." So I am just saying what the doctor's recommend when recommending Niacinamide for your GI problems that Pellagra could be mimicking (masking the true cause) hence the 58% of celiac also have pellagra (that a majority) of Celiac's also are known to have. I am not a doctor.  But You can be a professor though with a masters so while I do preach Pellagra as a co-morbid condition of NCGS/Celiac disease it is only because the doctor's with diploma's research bears this out. So I try and make more people aware of this fact. (no I do not have  a master's either though a friend once said who has a masters said my research would qualify me if I had taken the courses) (And yes I know B-3 was not studied in this paper) but maybe now is the time to point out it should bee! Or SIBO girl, and Captain NCGS you can try it (B-3) for yourselves and see if it helps you the way it did the Pellagra kid/posterboy. If you want to study this topic more I summarized many of thoughts in this posterboy post https://www.celiac.com/gluten-free/blogs/entry/2103-why-and-how-pellagra-is-often-confused-with-celiac-disease-andor-other-gidigestive-problems-the-science-of-pellagra-a-hidden-epidemic-in-the-21st-century-presentingrevealing-as-ncgs-andor-possbily-celiac-disease/ I wrote a blog post that also said "I had Celiac disease but developed Pellagra" but I really think it is the other way around. (it is linked in the above post) if you want to read it there so I won't post it again. I was a pellagrain who was diagnosed first as a celiac.  The same way a SIBO might first be diagnoses as a IBS or NCGS patient.  Or the way a NCGS is first diagnosed as a IBS patient 84% of the time. Remission is possible I believe if and when you find the right/correct disease. And any of these GI conditions can be confused for the other and SIBO girl and Captain NCGS makes good points. But it seems to me Pellagra can be confused for not only the SIBO, NCGS, but if the research is right 58% (the majority) of Celiac's and it is easily reversible in 3 months time. You will not know if you are not willing to try it. **** this is not medical advice just deep research and my own experience with taking Niacinamide. But I will say  I am not the only one who has been helped on this board taking Vitamin B-3. I want you Iroinctruth, Feeneyja, Jmg to be the next ones. I know this post is way too long as usual but I had a lot of ground to cover. quoting a friend 2 Timothy 2: 7 “Consider what I say; and the Lord give thee understanding in all things” this included. posterboy by the grace of God,
    • After my crash and burn gluten challenge of 2016, I wander off yet again Into the land of eastern and alternative medicine to heal. While I am grateful to many (not all) western medicine  Dr s of the past , for the past 2 decades the ones who give me relief for my lifetime ails are the alternative/eastern practitioners. I'm not starting a debate as both branches have their strengths, often the shame is they are seperated in healthcare, for likely humanity and public health imo would be best served by their encouraged collaboration/mutual recognition,but alas not my problem to solve. Much bigger then me and quite frankly, I'm too busy healing to tackle that mountain. Regardless, I now have "shoes that fit my carpet bag " of decades of multiple misdiagnosis /undiagnosis collection. They can be combined and labeled celiac and fibromyalgia. I was shocked at first at the news, I consider those really serious. Is AWOL really that ill? I've read up more  on both disciplines descriptons etc for these conditions, I'm in shock for the "shoes" fit perfectly . I know based on western test results I'm far from textbook/ gold standard celiac (but I failed to get past day 6 of my gluten challenge -likely speaks for itself) and fibromyalgia is quite demeaned/dismissed from my past knowledge amongst the western medicine world and greater society. (Friends /family in western medical fields) Is this still the case? My lifetime gi issues, the 30 plus years multiple chemical sensitivities ( go back to childhood-I keep very close to the vest), 20 plus years symptoms of muscle issues / myalgia, now have the names of celiac & fibromyalgia. Mixture of feelings of relief to be recognized, but also knowing my named illnesses are likely not recognized or are minimised by my western medicine trained family and friends and greater society. Can anyone offer some encouragement to help me cope at this time of healing? My accupuncture visits have been truly helpful, but my last visit is giving me a lot to process chemically, biologically, and spiritually. It's like someone unleashed the flood gates of all the symptoms of both illnesses at once in a combined package for me to experience in a one transparent package.  Very enlightening and to be blunt I feel like crap. So it's time to accept the package names and all, the curtain was lifted and the waxing and waning symptoms of fibromyalgia we're released. Please share any positive support or stories you have on coping with celiac recovery, celiac/fibromyalgia, and  healing by accupuncture. It will be much appreciated. As it is abundantly clear AWOL is here to stay on the celiac.com forums. Thanks  
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