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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Weight Loss..constant Struggle
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5 posts in this topic

Hi everyone,

New to the board, fairly recent diagnosis (November 2011). I assume there are many people struggling with so many symptoms, so i was happy to find this forum. In my case the brain fog and weight loss is the most difficult to manage. Looking for suggestions from others with celiac disease. Thank you.

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Hi Amy. I'm new myself. The only advice I can give is to stay strictly with whole foods, naturally gluten free. No processed foods at all. This will also make sure trace gluten is not getting to you thru food (thinking of the brain fog) Also is Dairy or another ingredient causing you trouble?

Just things to think about. Good luck to you. :)

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Hi Amy. I'm new myself. The only advice I can give is to stay strictly with whole foods, naturally gluten free. No processed foods at all. This will also make sure trace gluten is not getting to you thru food (thinking of the brain fog) Also is Dairy or another ingredient causing you trouble?

Just things to think about. Good luck to you. :)

Thank you. Not sure about dairy. Im thinking i am not doing such a great job in managing this. I just avoid food. I was a 3000 a day eater and loved food and snacking. When i became sick last fall, my biopsy showed a raging case, yet i had no pain, and very few symptoms. It was quite strange, and docs were a little baffled as well. It seems this forum will be very helpful.

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I was just recently diagnosed (in May of 2012) and I was putting on a lot of weight before my diagnosis. All throughout college I was about 120lbs and just before diagnosis I topped out at 155lbs (I'm 5'3"). Just like you, never had any GI symptoms and the diagnosis was a total surprise. Diets and exercise never worked and I just kept packing on weight slowly but surely. Since going gluten free, exercising more, and being more conscious of what I eat, I've lost 15 pounds since May and I hope to lose some more! I also started seeing a nutritionist who is experienced with Celiac and that helped me a lot too. It seems that before I went gluten free, even though I ate a good amount of food (most of it contained gluten) my body went into starvation mode because it wasn't able to absorb any of the food I was consuming. Now that my body can absorb more, I think my metabolism has gotten much better and I'm able to start losing the weight.

My suggestion to you is eat whole foods - meats, fish, poultry, fruits, veggies, and nuts. I eat some gluten free substitute foods but I try to stay away from having too much because they often have too many carbs and calories which don't make the weight loss any easier. Drink a lot of water - I have about 12 cups per day, and that should hopefully help too....best wishes and let us know how you're doing!!

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You might also 'test' yourself for other foods your body cannot tolerate. I learned that here, at this site, and found many that I reacted to. When I keep those things out of my diet, I can drop 2 lbs a week, easy. I found I am extremely sensitive to corn in any form. A "contaminated" pill or a bit of citric acid (which is usually corn based in the USA, and seldom even listed on a label!) will shoot the scales right back up 5-10 lbs. And I am back to where I started in weight loss.

It can't hurt to test yourself, then you will know for certain.

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    • I can not help you except to offer some emotional support.  You are not crazy!  You can get glutened on a farm.  Here is a study: http://www.nejm.org/doi/full/10.1056/NEJMc063112#t=article This topic has come up before: Hugs!      
    • I know I got glutened after handling some straw last year helping out decorating at the farmers market then going to eat something without washing my hands. I later learned it was wheat straw, some of them still had the heads on them and everything. Gave that area wide walk around after that, I did not have much issues with inhalation with it. But if your there with a thrasher running, down wind during the harvest.......I imagine it might be hell if your super sensitive. If you get skin reactions that easily from it I guess taking a vacation during harvest? Try staying indoors, dust mask, long sleeves and pants hope for the best.......I am just throwing some ideas out there. Maybe someone can help a bit more.
    • Hi i haven't been diagnosed yet. Bloodwork was negative (on gluten free diet) and I'm awaiting skin biopsy results  I have DH on the front of my thighs. The dermatologist says DH only happens on knees and elbows therefore I don't have it. It's itchy as hell, blisters, purple scans as It heals, migrates around but always in that spot on both legs. It takes 5 days after exposure to gluten for it to show up and it can last for a month. I throw up 24 hours after exposure, GI symptoms 36 hours after that last for about a week. I also will have a panic attack somewhere in that time.  I've been gluten free since December. Rash went away after a week of no gluten but came back after a few months (I ate a rice Crispie square)  My problem is this. I live in a farming community. I just filled my dogs kennel with straw not even THINKING about gluten. This was last week. All symptoms happened in order and now the DH is back. How the hell am I going to survive? I can stop using it on my property but what if it's in the air during Harvest time? I thought I had a mental handle on this but I'm devastated and terrified. My husband doubts it's possible the straw Glutened me but I know it did. What if this summer the air literally kills me? Has anyone dealt with this? I feel like I'm going insane, I'm so obsessed with this and now I'm itchy and sick too 😥 
    • It's good to be aware isn't it. Medical research has verified airborne particles can be problematic and hopefully there will be greater refinement in the research to establish greater understanding over time.  The site manager at the construction site informed me that my symptoms starting coincided with when the work with cement started. As I got sick from plaster in my house I am thinking this could be related. I was honest with my doctor about my symptoms and said I thought it had something to do with working next to a construction site. He said it sounds like an allergice response and said that it could be related to gluten symptoms but that these things are poorly understood.  The cement work nearest my window is finishing this week and I'm due to return to my job. Relief! X 
    • Dairy is definitely the thing to put on hold for a while -  you may eventually like to introduce some hard cheese like cheddar which I could tolerate for months before I went back to drinking milk again. Best to avoid tight waistbands if you can because even four years after diagnosis I find that I still get quite bloated at times and tight belts are painful in a way they never were before. Peppermint tea helps some people if they are suffering from trapped wind. Walking helps too, I find.
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