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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

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To be honest... if they did not come out in EBook I probably still would not be reading them... to spoiled by my nook! :)

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I love non-fiction (any book that provides an opportunity to learn about something new!).

I'm currently reading "What a Plant Knows" by Daniel Chamovitz: http://www.whataplantknows.com/

 

 

What a Plant Knows is a rare inside look at what life is really like for the grass we walk on, the flowers we sniff, and the trees we climb. It is a true field guide to the senses for science buffs and green thumbs, and for anyone who seeks a greater understanding of our place in nature.

 
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I've got a few books on the go right now:

  • Fat Chance: Beating the Odds Against Sugar by Lustig
  • Good Calories, Bad Calories by Taubes
  • Sword of Truth series by Terry Goodkind (Naked Empire)
  • Beyonders: A World Without Heroes by Mull - I'm reading this one outloud to my boys over lunch time lately... A good time for reading fiction or for school - they are feeding and happy, and have to sit and listen until they're done.  LOL
  • Sea of Monsters by Riodan - We're listening to this one in the car. The Percy Jackson and Olympians books ae very well done - perfect for boys.

I'm a book junkie.  :D

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As usual, the vast and teetering piles of books in the house are growing and growing. At the moment I am immersed in food science and on the lighter side, some tame murder by Dorothy Sayers. Oh, and ancient Israelite history.

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How on earth did this thread get by me? I went to college in my 40s and, despite my science background, got a degree in English. I used to say that all I wanted to do was find a job where I could read all day. Trouble was... I forgot to say that I wanted a job where I could read good fiction all day!! I ended up working in medical publishing and read about orthopedics and ophthalmology all day!! UGH!

 

I had long work commutes in my life. I'd join the library in every town I worked in and listen to ALL of Dickens and Austen on audiobooks. I can not begin to tell you how alive the stories become when someone is reading to you!! I'd get to work or home and not remember how I got there cause I was so engrossed in the story! Once, in the book Jackdaws by Ken Follett, the characters were peeking thru a window at German soldiers who had discovered their safe house and I yelled, "SHOOT THEM!! SHOOT THEM!!" at the car celiac disease player!!

 

I've loved all of Ken Follett's books, especially Pillars of the Earth and its sequel, most of Stephen King's... the earlier ones..., Isabella Allende's (sp?), Amy Tan's, any of the Bronte's, and so many others. At the moment I'm rereading Faulkner, having studied him intensely in college. Talk about the darker underside of the South!!

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I am just about to finish Pillars of the Earth tonight. Great book! So different from what he usually writes and better, IMO.

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Loved Pillars of the Earth!

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The sequel was good too... can't remember the name! I spent the better part of an entire weekend on the couch w/ it. Hubs walked thru the living room and said, "Are you STILL reading the same book???" Ha ha.

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I don't think I ever read the sequel... hmmm, might have to get it for my vacation.  ;)

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    • Yes you are correct. Interestingly my genes in the US are thought to be more associated with RA. Which is something they thought I had prediagnosis. In the Middle and far East they are more likely to be associated with celiac and they are rare genes in Caucasians which I am according to my parents known heritage. I always caution folks not to take the gene tests as absolute proof they can't have celiac because I had one child who had positive blood and biopsy, did well on the diet, then got genes tested in young adulthood and was told they could never be celiac. Of course that resulted in her abandoning the diet. I worry but hope someday doctors will realise we still have a lot to learn about the genetics of this disease. PS While I still have some deformity in my hands my joint pain resolved after a few months on the diet.
    • It seems like you really need a concrete or near concrete answer so I would say maybe you ought to get the gene testing. Then you can decide on the gluten challenge.   Thanks! I am convinced our dogs are there waiting for us. Meanwhile they are playing, running, laughing, barking & chasing. I have another favorite quote dealing with dogs: "If a dog will not come to you after having looked you in the face, you should go home & examine your conscience."  ~~~ Woodrow Wilson ~~~
    • I can't help thinking that all of this would be so much easier if the doctor I went to 10 years ago would have done testing for celiac, rather than tell me I probably should avoid gluten. He was looking to sell allergy shots and hormone treatment, he had nothing to gain from me being diagnosed celiac. I've been messing around ever since, sort-of-most-of the time being gluten free but never being strict about it. I really feel like three months of eating gluten would do my body a lot of permanent damage. I've got elevated liver enzymes for the third time since 2008 and no cause can be found which might be good, I guess. I wonder if it would be reasonable to do the HLA testing first, to decide if I really need to do the gluten challenge. If the biopsy is negative, that is. Squirmingitch, love your tag line about dogs in heaven. We lost the best dog ever last December. I sure hope all my dogs are there waiting for me!
    • Most (90%-95%) patients with celiac disease have 1 or 2 copies of HLA-DQ2 haplotype (see below), while the remainder have HLA-DQ8 haplotype. Rare exceptions to these associations have been occasionally seen. In 1 study of celiac disease, only 0.7% of patients with celiac disease lacked the HLA alleles mentioned above. Results are reported as permissive, nonpermissive, or equivocal gene pairs. From: http://www.mayomedicallaboratories.com/test-catalog/Clinical+and+Interpretive/88906  
    • This is not quite as cut & dried as it sounds. Although rare, there are diagnosed celiacs who do not have either of those genes. Ravenwoodglass, who posted above, is one of those people. I think she has double DQ9 genes? Am I right Raven?  My point is, that getting the gene testing is not an absolute determination either way.
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