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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Perimenopause At 37?
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Marie1976    6

Am I going through perimenopause? I used to get my period every 28 days. Then for a while it was every 25 days. Now it's 21 days. Why??

The last time I saw my doc I told him I'm having fatigue, irritability, I'm emotional, etc. I told him I feel like I have PMS all the time, and could I be going through menopause? He says no. He said it's stress and I need to go on vacation (ha ha, wouldn't that be nice?) I didn't mention the period thing to him because the 21 day interval occurred after my appointment.

Does celiac cause early menopause? Is that what is happening to me?? I'm only 37. I'm also depressed and crying a lot lately. Suggestions? Advice? Thanks in advance!

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Takala    413

Get the Dr. Christiane Northrup books http://www.drnorthrup.com/bookstore/index.php on this topic, and start reading them. Perimenopause can last a very long time, and there are a lot of different options on what you can do to deal with it. I won't tell you how long mine went before I finally had to have one ovary that was causing most of the problems removed, because I don't want to depress anyone, but I may have set a record for the longest time of having periods (41 years) and the number of them because of short- cycling. They would have gladly taken everything much earlier, but I knew with the bone loss that I needed the natural hormones as the replacements so do not agree with me. The synthetic progesterone in the birth control pills doesn't agree with much of anybody. Natural progesterone that you can buy otc can work a lot better to balance out the estrogen.

And then you have to start supplementing, if you haven't already, with the Bvitamins and calcium, D, magnesium routine.

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bartfull    565

I had early menopause. By the time I was 42 my periods had stopped completely. The hot flashes lasted over ten years and to be honest, even at 58 I still get them once in a while. :angry:

I think there was a thread here several months ago about this, and if I remember correctly quite a few of us have gone through this. I believe, at least from anecdotal evidence, that celiac CAN cause early menopause.

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Newbee    9

My periods were happening every 3 weeks for awhile for me. I was really thin and stressed so wonder if that was the issue. Now they are back to every 28 days but have gotten a lot heavier. I've heard there are different things that can cause that. Did you have your doctor test your hormones? That could help rule out an imbalance if that might be the cause.

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nvsmom    332

That happened to me too! My periods got closer together, about 3 weeks apart, and lasted a week. What I hated was that I spotted for the week prior to it starting too so I only had about a week off in between. It lasted about 6 months... This was a year or two before I was diagnosed with celiac and (what appears to be) an under-active thyroid which I'm guessing is Hashimotos. I looked up symptoms of hypothyroidism and it says more frequent, and heavier, periods is on the list, as is fatigue and depression.

Here's a link:

http://thyroid.about.com/cs/basics_starthere/a/symptoms.htm

You should look into having your TSH (but this can vary wildly from day to day) and T4 and T3 levels checked. It could be a thyroid issue.

Best wishes.

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Marie1976    6

I did have my thyroid checked (it was normal) but not my hormones. My doc actually kind of chuckled when I suggested I could be going through menopause, so I guess that's why he didn't check my hormones.

Thanks for the info! I'm going to check out those books. ... I don't know if I've had hot flashes. I have been feeling hot a lot but I don't know if it's hot flashes, it might just be because it's been over 100 degrees lately. ;)

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Gemini    785

I did have my thyroid checked (it was normal) but not my hormones. My doc actually kind of chuckled when I suggested I could be going through menopause, so I guess that's why he didn't check my hormones.

Thanks for the info! I'm going to check out those books. ... I don't know if I've had hot flashes. I have been feeling hot a lot but I don't know if it's hot flashes, it might just be because it's been over 100 degrees lately. ;)

Marie....yes, Celiac can cause early menopause. Every female in my family went into full blown menopause by 45 years of age. I started having hormonal swings and hot flashes at 38 and everything stopped at age 45. I was diagnosed with celiac disease at 46. If you are not sure if you have had a hot flash, then you haven't had one. Trust me, you would remember those! :P All of your other symptoms scream of perimenopause. I know this is tough to handle at the moment but it will get better.

As for your doctor, they are more clueless regarding menopause than they are about Celiac. I refuse to go to male doctors anymore because they are condescending dopes. They wouldn't know how to diagnose the beginning of the change if someone put a gun to their head so don't talk to them about it. You don't need to. It's like puberty in reverse, only a bit worse, I think. I wouldn't advise taking hormones because your body adjusts to them quickly and hot flashes don't stay at bay for long. Then you still have to go through another mini-menopause when you stop taking them. I did not do anything except grin and bear it and find ways to make the symptoms better.....like sticking my head in the freezer from time to time. :D:P

Having your periods shorten in cycle duration is common in the beginning. They come closer together and then further apart until they stop. This can take up to 10 years, my dear. This is when I began to appreciate red wine. :lol: I am not trying to laugh at you in your misery but I keep trying to find the funny in it so you won't go crazy. It does get better, however. Exercise helps tremendously with any sleep issues and just makes you feel better overall.

If you do mange to get them to test your hormones, you should be aware that you may have symptoms long before it shows in your blood work. Sort of like Celiac. Also, progesterone is the first hormone to dump down and then the estrogen goes. If there is an imbalance between the 2, and if the progesterone is low in relation to the estrogen, you are entering the beginning of menopause, most likely. Hang in there, Lady! :)

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Marie1976    6

Thanks, Gemini! Five years ago I didn't have kids or (know about having) celiac, now I have two kids, celiac and possibly pre-menopause. It's a lot to happen in so short a time. A lot to happen to my body. Ha! I definitely do need to exercise. Every time I start working out, I get sick. I think just a coincidence, but it does throw a wrench into my plans...

Puberty in reverse sounds... depressing. But I'm glad to hear you say that I don't need to see a doc about it. I hate taking meds, and I have no desire to take hormones. I have read about herbs, like black cohosh? Does that help or ...? I really hate feeling like I have PMS all the time. And I haven't been sleeping very well so now I'm even crankier... Grrr.

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Gemini    785

Thanks, Gemini! Five years ago I didn't have kids or (know about having) celiac, now I have two kids, celiac and possibly pre-menopause. It's a lot to happen in so short a time. A lot to happen to my body. Ha! I definitely do need to exercise. Every time I start working out, I get sick. I think just a coincidence, but it does throw a wrench into my plans...

Puberty in reverse sounds... depressing. But I'm glad to hear you say that I don't need to see a doc about it. I hate taking meds, and I have no desire to take hormones. I have read about herbs, like black cohosh? Does that help or ...? I really hate feeling like I have PMS all the time. And I haven't been sleeping very well so now I'm even crankier... Grrr.

I completely understand what you mean about being slammed. I went into full blown menopause at 45 and 1 year later, exactly, hit the wall with Celiac and came very close to not making it. It was awful and I was a mess. It took another 3 years to feel significantly better, after going gluten free but things are much better now. I am exercising and feeling pretty good. I still have my bad days when I am tired (I have 4 autoimmune diseases) but I just do what the British do: keep calm and carry on.

You may want to start very slow with exercise, like walking, if you are just diagnosed and not well. Then start doing more as you feel better. It will get better, believe me. I never tried the herbs for menopausal symptoms but some people think they work well so you could try them. Just make sure you read up on it and learn about any interactions with other foods or meds. I am like you....I take nothing but thyroid hormone and Rx eye drops for my eye problems. Nothing else but supplements.

You will have trouble sleeping in the beginning, like waking up at the same time every night or not staying asleep. Do whatever you need to do to help that because you have 2 kids to keep up with. I just dealt with it, was tired a lot and waited for it to subside....it does.

You know what I like to throw at male docs when they roll their eyes about menopause or try to offer stupid advice? I ask them..."Do you have a uterus? No? Then what the hell do you know"? They don't. When you start having symptoms, it's probably peri-menopause and there isn't a blood test for that. You can most certainly start with symptoms in your late thirties. You have noticed that young girls are getting their periods earlier and earlier? Same is true for many women with regards to menopause. I can't show you medical studies but I can say with confidence that it is happening to more and more women. It's a natural change and it isn't always comfortable but it does get better and you don't need medical guidance for this. They will just screw you up further.

Be kind to yourself and rest when you can. Check into natural supplements, if you are really uncomfortable, but be patient. Menopause ain't for sissies! :lol:

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Marie1976    6

Thanks for all the info! I did end up getting my hormones tested they said it was came out normal. But I think just because it doesn't show anything doesn't necessarily mean it isn't related to hormones...

They told me it was stress and gave me the number for stress management. :P

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AnemiaJen    2

Hi all,

I know this strand is a little old, but I just joined and have a related concern and wanted to express it in the right place. My period has been changing over the past two years or so. I used to be like clockwork, every 28 days. Now they come a little earlier and don't last as long, or they stop and restart, sometimes with some mid-cycle spotting. I've also been fatigued but that could have to do with work (I run my own business and teach on the side). I didn't make any connection with my celiac DX until yesterday when I was reading about peri-menopause. This month I got the heavy feeling in my legs and the sense that it was coming but... it never came. I thought I had a long time before I had to worry about the change! I'm 42. I've never missed a period, even when I was super-anemic. Ugh. Fortunately my mom said she never had any truly uncomfortable symptoms and she (still!) has the bone density of a much younger person. Hopefully I'll have the same experience.

My yearly GYN appt. is coming up in July. Should I just wait and see, then say something to my doc then?

Thanks in advance for any light you could shed on this.

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cyclinglady    723
1 hour ago, AnemiaJen said:

Hi all,

I know this strand is a little old, but I just joined and have a related concern and wanted to express it in the right place. My period has been changing over the past two years or so. I used to be like clockwork, every 28 days. Now they come a little earlier and don't last as long, or they stop and restart, sometimes with some mid-cycle spotting. I've also been fatigued but that could have to do with work (I run my own business and teach on the side). I didn't make any connection with my celiac DX until yesterday when I was reading about peri-menopause. This month I got the heavy feeling in my legs and the sense that it was coming but... it never came. I thought I had a long time before I had to worry about the change! I'm 42. I've never missed a period, even when I was super-anemic. Ugh. Fortunately my mom said she never had any truly uncomfortable symptoms and she (still!) has the bone density of a much younger person. Hopefully I'll have the same experience.

My yearly GYN appt. is coming up in July. Should I just wait and see, then say something to my doc then?

Thanks in advance for any light you could shed on this.

I would not worry.  Things might resolve on the gluten free diet as celiac disease does impact fertility in many ways.   I hit perimenopause at 40.  It lasted over a decade (the range of years varies from person to person)  and I experienced every single perimenopause symptom (on and off) in the book.  I was diagnosed with celiac disease after I went though menopause because of anemia that would not resolve.   You could ask your GP/PCP to order a hormonal panel (include thyroid) if you see him/her sooner.   This will let you know if you are starting perimenopause.  

My Mom breezed through menopause.  Not me!!!!!  

 

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Estes    12
1 hour ago, AnemiaJen said:

Hi all,

I know this strand is a little old, but I just joined and have a related concern and wanted to express it in the right place. My period has been changing over the past two years or so. I used to be like clockwork, every 28 days. Now they come a little earlier and don't last as long, or they stop and restart, sometimes with some mid-cycle spotting. I've also been fatigued but that could have to do with work (I run my own business and teach on the side). I didn't make any connection with my celiac DX until yesterday when I was reading about peri-menopause. This month I got the heavy feeling in my legs and the sense that it was coming but... it never came. I thought I had a long time before I had to worry about the change! I'm 42. I've never missed a period, even when I was super-anemic. Ugh. Fortunately my mom said she never had any truly uncomfortable symptoms and she (still!) has the bone density of a much younger person. Hopefully I'll have the same experience.

My yearly GYN appt. is coming up in July. Should I just wait and see, then say something to my doc then?

Thanks in advance for any light you could shed on this.

My story is yours too.  Now I am 42 and after many years of regularity, it is odd, I agree.  It's always a surprise.  An IUD helps a little.  I am however not worried. I asked a few Doctors and it is all normal.  I have been gluten free for one year.

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