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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Seattle Doc
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I was hoping someone could suggest a good MD and/or ND in the Seattle/Bellevue area... or just Washington State!

I have not been officially diagnosed with Celiac but I would be willing to bet my right arm I have it and just need a good doc that will work with me.

I had a pretty bad experience with Eastside Gastro in Kirkland, so Im not really looking to go back there - short version of the story is my doc at the time mis heard, and incorrectly documented my symptoms I told him I was having so he insisted I only needed a colonoscopy and not an endoscopy - at the time I had not done much looking into all of this so I trusted he knew what he was doing. Needless to say as both a patient and an RN I am totally not impressed.

Any and all suggestions would be much appreciated!

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I like Dr Koch at Virginia Mason, however he admitted to not having a lot of experience with gluten intolerance (my issue) but he does have a few Celiac patients. He was very nice and actually listened to me though, which is more than I got elsewhere. Unfortunately there seems to be a shortage of celiac docs in the Seattle area.

As a side note, I would not go to Dr Zisman at UWMC...he treated me very poorly.

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Puget Sound Gastroenterology. They have offices in Edmonds and Mill Creek and possibly North Seattle. I see Dr. Chaffee there. So does my dad. My daughter sees Dr. Schnier. So does my Sis in law.

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I go to Susan McCormick MD at Virginia Mason. I went to see her after seeing another GI doc at VM who diagnosed me. Since I was only Marsh I, he said that I "didn't have to be strict on the gluten-free diet" since I wasn't showing much GI damage and he also refused to order biopsies for colitis when he was ordering my age 50+ routine colonoscopy.(I wanted to rule out colitis, as celiacs have a higher risk of getting some types of colitis.)

At VM, the coloscopies and Endoscopies are pot-luck, you get whoever is on that day and that's how I got my first GI doctor. When Dr. McCormick saw me to do the colonoscopy, the first words out of her mouth were "We're going to biopsy for colitis, because with celiac you're at higher risk." I had been planning to ask/plead for it but she beat me to it. So she may not be a specialist but she is aware of celiac and adults. When I saw her for follow-up, she wanted to know my symptoms if I get gluten accidentally and asked other health questions related to celiac (like osteoporosis) and ordered vitamin screening for deficiencies, 5+ years after diagnosis and gluten-free diet.

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Dr. Stephen Wangen, ND founded the IBS Treatment Center (located in North Seattle near Northgate Mall). He has celiac disease and several food allergies. So he understands the confusing symptoms and frustrating diagnostic process. I saw him for 4 years while he diagnosed my food allergies (with ELISA tests) and diagnosed and treated my 8 different gastrointestinal infections (bacteria, parasites and fungus).

Dr. Wendy Ellis, ND works at the Tahoma Clinic North (near Lake City in No. Seattle). She figured out why I got so many gastro infections (8) over a 4 year period and understands all the complications of long undiagnosed celiac disease (nutritional deficiencies, leaky gut problems and other autoimmune conditions which can also impair immunity). She's very knowledgable about hormonal problems (estrogen/progesterone, thyroid, adrenal fatigue, etc.).

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