This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.
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What are the major symptoms of celiac disease?
Celiac Disease Symptoms
What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic)
Celiac Disease Screening
Interpretation of Celiac Disease Blood Test Results
Can I be tested even though I am eating gluten free?
How long must gluten be taken for the serological tests to be meaningful?
The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free
Is celiac inherited? Should my children be tested?
Ten Facts About Celiac Disease Genetic Testing
Is there a link between celiac and other autoimmune diseases?
Celiac Disease Research: Associated Diseases and Disorders
Is there a list of gluten foods to avoid?
Unsafe Gluten-Free Food List (Unsafe Ingredients)
Is there a list of gluten free foods?
Safe Gluten-Free Food List (Safe Ingredients)
Gluten-Free Alcoholic Beverages
Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?
Where does gluten hide?
Additional Things to Beware of to Maintain a 100% Gluten-Free Diet
What if my doctor won't listen to me?
An Open Letter to Skeptical Health Care Practitioners
Where can I buy gluten-free stuff?
Support this site by shopping at The Celiac.com Store.
Absolutely nothing to apologise for Awol. I'm sorry for getting on my sugar hobby horse. In any case I'm a dreadful hypocrite, cutting out fruit juice but still indulging cravings for gluten-free cheesecakes and the like
I wish I had some advice for you. Bone broth helped me, I think it can help leaky gut, maybe worth a try? Dr Fasano's diet could be another option?
It was difficult yes, but on reflection worthwhile as the gluten challenge confirmed that a wide spectrum of symptoms were all either fully or mostly resolved on a gluten free diet and resuming it saw them reappear. Once you know this it doesn't really matter what blood tests say, you don't want eat gluten ever again, or at least I did't.
It sounds like you're happy to go gluten free, you may want to take a look here for some tips:
Best of luck, hope you find as much support here as I have
If she was just tested for DQ2 or DQ8 then it isn't for sure that she will never develop celiac. There are other genes that have been found to be associated but not all doctors are aware. The gene I have a double copy of, DQ9, is one example. Here is one research article but more can be found for those interested.
Evidence that HLA-DQ9 confers risk to celiac disease by presence of DQ9-restricted gluten-specific T cells
Does anyone know if the Canadian product called Map-O-Spread is gluten free? It contains 'composed sugar' (I guess it just couldn't get excited!) and glucose, which your site lists as gluten-free, but I wanted a thorough look at it for a client who is super-sensitive.