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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Gluten-Caused Cramps
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3 posts in this topic

It would be great to get as many to share their cramp-symptoms as possible. I have constant crams nowadays and it got me thinking, what if they're something else?

For those of you who get constipation, please join in too.

1. Do you get C or D?

2. How long before the cramps begin?

3. Does the pain occur in the same place or can it vary? (upper/lower abdomen and left/right)

4. How many days do the cramps last, and for how long each day?

5. Do you get back-pain? If yes, what type (location, is it movement-induced or constant and stingy?) and for how long?

5. Does muscle and joint soreness occur at the same time, before, after, or throughout?

6. Any specific signs that help you differentiate the cramps from other types of problems? (reflux/ indigestion/ period/ kidney/ gallbladder/ pancreas/ IBS)

I might add more questions later.

Thanks so much for those of you who take the time to share.

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From 2004 to 2007, I had a sharp, colicky pain on the right upper abdomen, right under the rib cage. I was tested for everything kidneys, liver, gallbladder, even had a investigative surgery where they took out my appendix, had a twisted colon, and basically my organs were out of place; but that didn't stop the pain. My stomache was visually, extremely bloated, varied c and d, and it didn't affect my appetite, which I thought was strange. Well, after 3 extremely painful years, I finally quit taking my vitamins (my doctor assured me that wouldn't cause such a pain), the pain stopped. It moved to my kidneys and so on, but that's another story. Three years later, my doctor informed me of Celiac's disease, so I believe, it's safe to assume it was the gluten in the vitamins that caused my pain. Every now and then, that area will hurt, like it was damaged. I'm guessing, if I wasn't a Celiac, it wouldn't of hurt. When, I eat gluten, I get extremely bad cramps, like you get when you have d. My son (celiac) and my husband (sensitive) both get d. I just wanted to share my story, just in case anybody else finds themselves with a phantom pain.

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Yup! Started getting them once in a rare while in my 20s and they became progressively worse in my 40's and 50s till I finally got a celiac diagnosis. Used to go to India where all my friends had the runs and I'd be there for months at time unable to have a BM - having to take laxatives constantly. My doctor always told me I didn't drink enough water; nonsense. Last few years, the least little thing would set me off. If I ate chlorella or any super green food - I'd end up on stool softeners for a month. Same thing if I had acupuncture that used electro-stimulation. I would get terrible gas - under my right rib and got sent for horrible hours-long MRIs drinking nasty radioactive milkshakes, endless sonograms and nothing every came up. Stopped gluten about a month ago and all is good in that department.

Still dealing with fatigue and some joint aches - but digestion is great. I hear that folks after getting gluten free can deal with caffeine - so hoping to risk drinking a normal cup of coffee again after years.

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    • Yes I made it  Welcome Lakme, you've found a great community and resource and I'm sure myself and Ennis won't be the only ones that recognise elements of our own experiences in your account.  In addition to the links Ennis sent you above and the stickied forum faq, I tried putting down some info that may be useful to people just realising they may have an issue with gluten, you can find it in this thread:    Reading your account you do tick a lot of the boxes and perhaps you have found the underlying cause. As that thread explains however, we can't diagnose you, if you want answers you'll need to be eating gluten in order for the tests to work. I know this is probably the last thing you want at the moment, but do read the thread and think about it. You're young and that diagnosis could prove useful for a number of reasons in the years ahead. The longer you leave it, the more of a challenge the gluten challenge may prove.  Out of interest how long since you started on the diet and have you noticed any change in symptoms? You may want to consider keeping a journal, it can be very difficult to track the neuro type symptoms in particular, a written account helps you do that and tracking progress can help with anxiety issues and depression too. I get these too. It's not formally diagnosed, like you I had a physical exam of the eye which failed to show anything, but I believe it to be optic neuritis. It's vastly improved since my diet change, as has an awful lot of other stuff.  So if you're celiac or non celiac gluten sensitive you will hopefully see similar improvements in the weeks, months and even years ahead.  I wish you the best of luck.  Matt
    • Lenbh- I was diagnosed last year and I have wondered that very question. Not too long ago (before kids) I traveled quite a bit. The idea of traveling now with celiac is a bit overwhelming.  I am pretty strict at home to avoid gluten and almost never eat in situations where CC is even possible- and as far as I can tell, I don't really get any symptoms of glutening.   I have definitely heard that it is easy to travel to Ireland with celiac. In fact, many restaurants have 2 menus - a regular and a coeliac. They often cook the food in a separate kitchen as well.  I can't wait to take my kids to Italy and am already thinking "how in the world will that ever work???" I have decided so far that I will do my best, not knowingly eat gluten, and try to buy food in stores or eat in "safe" restaurants -but understand that the more often I eat in restaurants, the more likely it is to be exposed to gluten. I guess it's just a risk I'm willing to take every once in a while so that I can explore the world with my kids.  And, yes, Gelato! At least twice a day while in Italy...:)
    • They do not work for prevention, they might help with getting over the gut pains. But will not stop the antibody reaction, or the damage. At $100+ a bottle your better off investing in Nima or EZ gluten strips and testing foods.   Other thoughts for quick alternatives. They sell microwave cookers out of plastic and silicon for eggs, bacon, etc. Might be worth getting and doing dishes that way. Steam bags and fresh veggies also to avoid pans and pots that could have issues. I been looking at MRE type stuff allergen friendly myself for trips and emergency's. Things get expensive at $6-7 a meal compared to bars or shakes.
    • I would not use these as prevention, but maybe they would help a post-glutening.  In my case, I travel with lactose tablets and digestive enzymes.    When glutened, I become lactose intolerant again.    Would hate to miss out on some gelato.  Do not forget any meds you normally take too.  
    • Thanks for the help! I didn't know Bacardi was gluten-free; that's a great option. 
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