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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Someone To Talk To
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8 posts in this topic

hi, my name is Anwen and i am 13(nearly 14) years old. I was diagnosed with celiac about 3 years ago and have been gluten-free since then. But, even tho I have been gluten-free for so long I still find the temptation hard to deal with. My family and freinds are all very supportive but none of them have celiac so I feel they do not quite understand and I would love a penpal who also has celiac that I could talk to. Any replies would be appreciated.

Thanks :)

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I'm sorry you're feeling so alone with your celiac! The Gluten Intolerance Group of North America has a program for teens where you can be put in touch with teens throughout the U.S. with celiac or gluten sensitivity. Here's the link to Teen Advocates with Gluten Sensitivities (TAGS):

http://www.gluten.net/gig%20kids/TAG.aspx

You should find lots of support there!

Laura

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hi, my name is Anwen and i am 13(nearly 14) years old. I was diagnosed with celiac about 3 years ago and have been gluten-free since then. But, even tho I have been gluten-free for so long I still find the temptation hard to deal with. My family and freinds are all very supportive but none of them have celiac so I feel they do not quite understand and I would love a penpal who also has celiac that I could talk to. Any replies would be appreciated.

Thanks :)

Hey im shaun i am 16 and would like a pen pal too

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Hey! I'm Katie and I'm 15 years old. I was diagnosed this year in january and would love a penpal :)

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Hey, I'm Kaitlyn :) I'm 17 and I've been gluten-free for a little over 2 years. I'd love a penpal :)

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Hello Anwen,

Just to say i feel so sorry for you , so young , I am 56 and feel alone in family as they all mix up and talk while eating. This is one hard fact we all have to face.

Hope you will find good friends here.

Take Care

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Heyy I'm Ebony, I'm 19 and the only one in my family who is gluten free, it would be good to have a penpal to talk to about everything :) xx

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Hey I'm 13 and I've had celiac disease for 9 years. I would love to have somebody to talk to. It's really easy to feel alone in this and I highly suggest you find somebody to talk to.

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    • Hi Christiana, thanks for the reply. I am both interested in the outcome of this story for curiousity and for how it relates a bit to me,  Is your pain and pressure similar to the feeling of all your insides about to slide out onto the ground? It is similar to carrying a baby in the third trimester! I get this when I've been standing and walking for most of the day. There is also pain presenting in my Pelvic area, although I thought this was from a nerve cluster that was damaged during my hysterectomy . Is there anything you do about this? thanks again!
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    • It needed paragraphs 
    • Hi Victoria I hope you get some replies as some of these people are still on this board.   Is this something you are suffering from? I thought I'd just let you know that I had this very badly at diagnosis, and it went on and on for some time. I had pelvic u/s and also a precautionary sigmoidoscopy - all was clear.  In the end what really helped was giving up all dairy for a few weeks.  It pretty much stopped - I missed my dairy though, so reintroduced it. But it was good to know it was bloating that was causing it.   But the pain was also due to something else. I still get pain to the left of my groin/pelvis when I've been carrying heavy bags and doing a lot of walking.  I have an issue with my sacroiliac joint.  Look it up - it is a common problem for coeliacs.  The pain transfers to the front of the groin, and also to the buttocks.  If I touch my left sacroiliac joint now it is really tender.  But with it I have an accompanying feeling of pain and pressure in my left groin/pelvic area, which reminds me of the time when I was expecting a baby , a simliar type of pressure.   I hope you hear from others but maybe this will help? Cristiana
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