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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Someone To Talk To
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8 posts in this topic

hi, my name is Anwen and i am 13(nearly 14) years old. I was diagnosed with celiac about 3 years ago and have been gluten-free since then. But, even tho I have been gluten-free for so long I still find the temptation hard to deal with. My family and freinds are all very supportive but none of them have celiac so I feel they do not quite understand and I would love a penpal who also has celiac that I could talk to. Any replies would be appreciated.

Thanks :)

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I'm sorry you're feeling so alone with your celiac! The Gluten Intolerance Group of North America has a program for teens where you can be put in touch with teens throughout the U.S. with celiac or gluten sensitivity. Here's the link to Teen Advocates with Gluten Sensitivities (TAGS):

http://www.gluten.net/gig%20kids/TAG.aspx

You should find lots of support there!

Laura

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hi, my name is Anwen and i am 13(nearly 14) years old. I was diagnosed with celiac about 3 years ago and have been gluten-free since then. But, even tho I have been gluten-free for so long I still find the temptation hard to deal with. My family and freinds are all very supportive but none of them have celiac so I feel they do not quite understand and I would love a penpal who also has celiac that I could talk to. Any replies would be appreciated.

Thanks :)

Hey im shaun i am 16 and would like a pen pal too

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Hey! I'm Katie and I'm 15 years old. I was diagnosed this year in january and would love a penpal :)

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Hey, I'm Kaitlyn :) I'm 17 and I've been gluten-free for a little over 2 years. I'd love a penpal :)

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Hello Anwen,

Just to say i feel so sorry for you , so young , I am 56 and feel alone in family as they all mix up and talk while eating. This is one hard fact we all have to face.

Hope you will find good friends here.

Take Care

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Heyy I'm Ebony, I'm 19 and the only one in my family who is gluten free, it would be good to have a penpal to talk to about everything :) xx

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Hey I'm 13 and I've had celiac disease for 9 years. I would love to have somebody to talk to. It's really easy to feel alone in this and I highly suggest you find somebody to talk to.

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    • Lenbh- I was diagnosed last year and I have wondered that very question. Not too long ago (before kids) I traveled quite a bit. The idea of traveling now with celiac is a bit overwhelming.  I am pretty strict at home to avoid gluten and almost never eat in situations where CC is even possible- and as far as I can tell, I don't really get any symptoms of glutening.   I have definitely heard that it is easy to travel to Ireland with celiac. In fact, many restaurants have 2 menus - a regular and a coeliac. They often cook the food in a separate kitchen as well.  I can't wait to take my kids to Italy and am already thinking "how in the world will that ever work???" I have decided so far that I will do my best, not knowingly eat gluten, and try to buy food in stores or eat in "safe" restaurants -but understand that the more often I eat in restaurants, the more likely it is to be exposed to gluten. I guess it's just a risk I'm willing to take every once in a while so that I can explore the world with my kids.  And, yes, Gelato! At least twice a day while in Italy...:)
    • They do not work for prevention, they might help with getting over the gut pains. But will not stop the antibody reaction, or the damage. At $100+ a bottle your better off investing in Nima or EZ gluten strips and testing foods.   Other thoughts for quick alternatives. They sell microwave cookers out of plastic and silicon for eggs, bacon, etc. Might be worth getting and doing dishes that way. Steam bags and fresh veggies also to avoid pans and pots that could have issues. I been looking at MRE type stuff allergen friendly myself for trips and emergency's. Things get expensive at $6-7 a meal compared to bars or shakes.
    • I would not use these as prevention, but maybe they would help a post-glutening.  In my case, I travel with lactose tablets and digestive enzymes.    When glutened, I become lactose intolerant again.    Would hate to miss out on some gelato.  Do not forget any meds you normally take too.  
    • Thanks for the help! I didn't know Bacardi was gluten-free; that's a great option. 
    • Those travel cards work well even at local markets or  grocery stores.  For example, we were in Poland and had a hard time reading some labels (unlike other EU countries),  store employees were so helpful after reading our card in Polish.    Searching for restaurants "celiac friendly" was helpful too.  Pharmacies carry some gluten free things too.  Handy when shops are closed on Sundays as these are often open.   You do not have to pack a ton of food, just a few meals to get you by in case you can not find anything.  The only time we have been desperate was on the airplane where they repeatedly forgot to provide our gluten free meals despite my confirming several times.  That has happened several times and on different carriers internationally.  You can not exit the plane to go look for food!   Bring toaster bags.  We used them in Bed and Breakfast Inns and hotels.  You can order them on Amazon.  We also packed a collapsible cooler.  Bought picnic stuff upon our arrival, plastic ware, etc. and had picnics if we could not find a suitable restaurant.   Sans Gluten!    
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