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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Worried About Blood Results
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4 posts in this topic

After searching the forum for people's TTG results, it started to worry me about my own results. A lot of people's here don't seem to be higher than 200 (from what I've read) when they were diagnosed.

In April this year, I had another blood test to see if any gluten was getting into my diet. I was strictly gluten-free (very paranoid about CC and forever cleaning the kitchen before I cook) for a good 5 months before I had my blood test but my results were over 2000!!! I'm not sure what it was when I was diagnosed but my dietitian did say it hasn't come down by much.

I'm not sure what other blood tests they ran but doctors in England don't really tell you anything.

Since being gluten-free my stomach pains and indigestion are completely gone but I still suffer major headaches, fatigue, non-refreshing sleep, joint and muscle pains and I keep getting recurrent sinus infections and infections in my wisdom tooth.

JFYI, I'm on vitamin B12 injections every 3 months (have been since 2007), been on vitamin D before as my level was 16 but was fine on my last blood test and my iron was okay too. I'm just sick of feeling like this.

Is there anything else that could be keeping my levels so high or any other reasons why I feel so rubbish all the time?

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After searching the forum for people's TTG results, it started to worry me about my own results. A lot of people's here don't seem to be higher than 200 (from what I've read) when they were diagnosed.

In April this year, I had another blood test to see if any gluten was getting into my diet. I was strictly gluten-free (very paranoid about CC and forever cleaning the kitchen before I cook) for a good 5 months before I had my blood test but my results were over 2000!!! I'm not sure what it was when I was diagnosed but my dietitian did say it hasn't come down by much.

I'm not sure what other blood tests they ran but doctors in England don't really tell you anything.

Since being gluten-free my stomach pains and indigestion are completely gone but I still suffer major headaches, fatigue, non-refreshing sleep, joint and muscle pains and I keep getting recurrent sinus infections and infections in my wisdom tooth.

JFYI, I'm on vitamin B12 injections every 3 months (have been since 2007), been on vitamin D before as my level was 16 but was fine on my last blood test and my iron was okay too. I'm just sick of feeling like this.

Is there anything else that could be keeping my levels so high or any other reasons why I feel so rubbish all the time?

TtG can be related to other autoimmune conditions: thyroid diseases (Grave's/Hashimoto's), liver conditions (autoimmune hepatitis), diabetes, Inflammatory Bowel Diseases (Crohn's) among them.

Ask for copies of your blood tests. Even in England I think you can get access to that information.

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TtG can be related to other autoimmune conditions: thyroid diseases (Grave's/Hashimoto's), liver conditions (autoimmune hepatitis), diabetes, Inflammatory Bowel Diseases (Crohn's) among them.

Ask for copies of your blood tests. Even in England I think you can get access to that information.

I've been tested for thyroid problems and diabetes several times and it's always come back normal. Not sure what else it could be; perhaps I'll have to have a talk with my doctor, although I don't really get on with him and he tells me it's all in my head. :huh:

Probably could, will have to ask.

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All in your head? Nope - all in your gut.

Glad to hear that you have had improvement with digestive issues since going gluten-free, sorry to hear you have not had improvement in other areas - is it possible you have food intolerances that are contributing to your other symptoms? Have you tried removing Dairy, Legumes, Nightshades (tomato, potato, peppers, eggplant), Grains, Nuts?

Can you switch doctors? I wasted far too many years with doctors telling me that my symptoms were caused by stress, overwork, motherhood, hormones, etc. etc. etc.

I'd certainly start with getting your blood test results and go from there.

Good Luck to you :)

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