• Join our community!

    Do you have questions about celiac disease or the gluten-free diet?

  • Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

Rate this topic

Recommended Posts

Hi I'm Shaun I recently found out I am allergic to gluten and cow dairy. I would like to talk to people about when they found out so i can learn more. I would prefer to talk to people closer to my age lol but i will listen to anyone. :D

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Hi Shaun,

I was close to your age at one time, but it has only been a few decades, 3 maybe 4 tops. I stared out having lactose intolerance for 9 years or so, and then found out I had celiac disease. Celiac is not actually an allergy, allergies are IgE immune reactions. Celiac is IgA or IgG or some other immune reactions. IgE reactions are like hayfever type reactions where it affects breathing, skin, eyes etc,. People can take anti-histamines for IgE reactions, but they don't help much for celiac disease reactions. Well, that was pretty boring!

Anyhow, there are some other younger members on the forum, so maybe they will show up with some rad info for you. Do they still say rad? :) And welcome to forum we are glad to have you here!

  • Upvote 1

Share this post


Link to post
Share on other sites

Hi Shaun,

I was close to your age at one time, but it has only been a few decades, 3 maybe 4 tops. I stared out having lactose intolerance for 9 years or so, and then found out I had celiac disease. Celiac is not actually an allergy, allergies are IgE immune reactions. Celiac is IgA or IgG or some other immune reactions. IgE reactions are like hayfever type reactions where it affects breathing, skin, eyes etc,. People can take anti-histamines for IgE reactions, but they don't help much for celiac disease reactions. Well, that was pretty boring!

Anyhow, there are some other younger members on the forum, so maybe they will show up with some rad info for you. Do they still say rad? :) And welcome to forum we are glad to have you here!

Thanks for your help and my doctor thinks i might have celiac disease but we dont know yet.

Share this post


Link to post
Share on other sites

Hi Shaun,

Have you had the blood antibody tests and an endoscopy? If the blood antibodies are positive you may not need an endoscopy. Usually it takes a couple weeks to get the antibody results from a lab. It is helpful to get a paper copy of the resutls for yourself also. You might want to review them with another doctor later or even post them on the forum. There are some medical people on the forum who can help interpret them. It's important to keep eating gluten until all the tests are done.

Eating gluten-free is quite a challenge at first. We end up making a lot of our own food and snacks since some times you can't find things when you are out. Although fruit is often a good choice or nuts and they are widely available.

Take care,

Paul

Share this post


Link to post
Share on other sites

Hi Shaun,

Have you had the blood antibody tests and an endoscopy? If the blood antibodies are positive you may not need an endoscopy. Usually it takes a couple weeks to get the antibody results from a lab. It is helpful to get a paper copy of the resutls for yourself also. You might want to review them with another doctor later or even post them on the forum. There are some medical people on the forum who can help interpret them. It's important to keep eating gluten until all the tests are done.

Eating gluten-free is quite a challenge at first. We end up making a lot of our own food and snacks since some times you can't find things when you are out. Although fruit is often a good choice or nuts and they are widely available.

Take care,

Paul

I just heard from my doctor today and she said that i tested negative and thanks.

Share this post


Link to post
Share on other sites
Ads by Google:


Are you still going to be gluten free?

I am not your age, I'm 49, but I wondered if this means you will be eating gluten or if you will be gluten free due to allergy to it?

Share this post


Link to post
Share on other sites

Are you still going to be gluten free?

I am not your age, I'm 49, but I wondered if this means you will be eating gluten or if you will be gluten free due to allergy to it?

i am gluten and dairy free still

Share this post


Link to post
Share on other sites

Yes...I'm hijacking your thread (I just wanted to support my fellow geriatrics. I've got a good 3 decades on you, too, kiddo ;) )

But, seriously... I'm curious about how you came to suspect gluten/dairy? Symptoms? Any progress yet?

Share this post


Link to post
Share on other sites

Yes...I'm hijacking your thread (I just wanted to support my fellow geriatrics. I've got a good 3 decades on you, too, kiddo ;) )

But, seriously... I'm curious about how you came to suspect gluten/dairy? Symptoms? Any progress yet?

Well i go to a doctor every now and then for my anxiety and i mentioned i feel sick all the time and she is a celiac so she thought i was and we did some tests that revealed that i have a bunch of allergies i was unaware of lol

Share this post


Link to post
Share on other sites

Well i go to a doctor every now and then for my anxiety and i mentioned i feel sick all the time and she is a celiac so she thought i was and we did some tests that revealed that i have a bunch of allergies i was unaware of lol

So...how long have you been gluten/dairy free? Any improvement?

What allergies?

Share this post


Link to post
Share on other sites


Ads by Google:


So...how long have you been gluten/dairy free? Any improvement?

What allergies?

My main food allergies are gluten and dairy. I have been mostly free of these for about 2 weeks i think. I have noticed a lot of improvement on how i feel.

Share this post


Link to post
Share on other sites

Hi Shaun,

My name is Kaitlyn and I'm 17. I started eating gluten-free when I was 14. I was not officially diagnosed with celiac, but my cousin has it and her gastrointerologist said I most likely have it as well. Either way, eating gluten-free has changed my life for the better.

Share this post


Link to post
Share on other sites

Hi Shaun,

My name is Kaitlyn and I'm 17. I started eating gluten-free when I was 14. I was not officially diagnosed with celiac, but my cousin has it and her gastrointerologist said I most likely have it as well. Either way, eating gluten-free has changed my life for the better.

Thank you for the reply kaitlyn. I believe it has changed my life for the better too. Is there any foods or resturants you would recommend?

Share this post


Link to post
Share on other sites

Shaun- Yes, PF Changs is my favorite. It's a little pricey, but they have a menu with a great variety of dishes, and the gluten-free entrees are even served on completely different dishes. I have never had a bad experience there (i.e. cross contamination). The nearest one to my house is like an hour away though, so it's just for special occasions. I eat at a lot of mexican restaurants. I just have them prepare my meal with a corn tortilla in the usual flour one's place. Honestly I do not eat out very often, so I don't have many suggestions...

Share this post


Link to post
Share on other sites

Shaun- Yes, PF Changs is my favorite. It's a little pricey, but they have a menu with a great variety of dishes, and the gluten-free entrees are even served on completely different dishes. I have never had a bad experience there (i.e. cross contamination). The nearest one to my house is like an hour away though, so it's just for special occasions. I eat at a lot of mexican restaurants. I just have them prepare my meal with a corn tortilla in the usual flour one's place. Honestly I do not eat out very often, so I don't have many suggestions...

Thank you lol. The nearest pf changs is about an hour from here too. So since you dont eat out often what do you make to eat?

Share this post


Link to post
Share on other sites

I love pf changs!!

Ok lol but there arent any near me.

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,963
    • Total Posts
      943,691
  • Member Statistics

    • Total Members
      67,274
    • Most Online
      3,093

    Newest Member
    Vicheth
    Joined
  • Popular Now

  • Topics

  • Posts

    • We use pure cherry juice with our snow cone machine. Makes for a nice dessert after dinner.
    • Hi Kurasz, How's it going?  Any change for the amazingly better?  Or slightly better?  
      If not, hang in there, and keep praying! :)
    • Garden of Life brand Dr. Formulated Organic Fiber. It's certified gluten free. Also free of psyllium husk, dairy and soy. Also found that just simply increasing fiber intake works wonders. Perhaps try skipping a protein for at least one meal and fill up on veggies and fruits.
    • When you're looking for answers the negative endoscopy may seem like bad news in a funny way, it did for me when the doctor told me, but really as CL said it's good.  Keep working with your doctors.  From what you've said before gluten could still be the problem.  Now you've eliminated celiac you can try removing it from your diet, but it's important that you do it safely. You don't want to cause a problem while trying to fix one. Most people get a lot of B vitamins in particular from gluten foods. So if you make a change to your diet do it with your mom, ideally involve your doctor or a dietician and keep a diary of your symptoms too, sometimes called a food journal. You may still have found your answer, don't panic and don't lose heart. Best of luck Matt 
    • BoliviaB, DH rash can occur in Celiac's who reindtroduce wheat/gluten after a break from gluten. However I want to go/see that the parasite route has also been exhausted. The fever's (for most Celiac's anyway) are not typically but low grade inflammation is. I had annual bronchitis issues and ear aches that went away after stopping gluten. You did not say if your were a native Bolivian or not but if you are you  probably know about Chagas disease carried by the Kissing Bug. A blood test will confirm that the Chagas parasite's were killed with your AB's round. Though many AB's rounds can be as long as 2 months . . . not just two weeks for complete control. I wonder if you have Chagas (possibly) and it is causing you colon problems.  GI problems can be a sign of advanced Chagas complications. If you are having your blood drawn again it should be (re)checked. In the US (since it is not endemic) as it is in Bolivia people typically find out if they have it (Chagas) by giving blood. Chagas is considered a Neglected Tropical Disease (NTD) in the US but in Bolivia it should be ruled out as a possible cause of your fever(s) and GI problems. https://www.cdc.gov/parasites/chagas/disease.html quoting "a dilated esophagus or colon, leading to difficulties with eating or passing stool" can be a sign of chagas. if you hadn't mentioned parasites in your regimen I might not of mentioned it.  And in the UK if they didn't know your country of origin or your home country they might not of think to ask about it since it is a Neglected Tropical Disease and therefore had no reason to suspect Chagas to test your blood for it. I was only aware of it because it has begun to show up in Texas and CNN run an article about it a couple of years ago. http://www.cnn.com/2015/11/24/health/kissing-bugs-chagas-disease/index.html  If you have an outdoor dog --- dog's can also contract Chagase disease from the bite of the Kissing Bug much like in the US dog's can get heart worm from a mosquito bite. The CDC (the US health agency) says most people are assymptomatic but GI problems can be a severe sign of undiagnosed Chagas in about 30% of the population. quoting again "In people who have suppressed immune systems (for example, due to AIDS or chemotherapy), Chagas disease can reactivate with parasites found in the circulating blood. This occurrence can potentially cause severe disease." . . (NCGS and/or undiagnosed Celiac Disease (my words) could certaintly complicate someone's response to the Chagas parasite). This might be higher in Bolivia. . . and probably is since Chagas is endemic to Bolivia. The good news a blood test can help you find out if undidangosed Celiac or undiagnosed Chagas is causing your problems or if it is a complicated mix of the two. **** this is not medical advice but it explains your fevers' better than Celiac (usuallY) but the rash defiantly could be a DH reaction to gluten. I hope this is helpful. 2 Timothy 2:7 “Consider what I say; and the Lord give thee understanding in all things” this included. posterboy by the grace of God, ETA: Here is the FAQ link from the CDC on Blood Screening for Chagas disease in the US.  https://www.cdc.gov/parasites/chagas/gen_info/screening.html Again I hope this helpful.    
  • Upcoming Events