• Join our community!

    Do you have questions about celiac disease or the gluten-free diet?

  • Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
0
tctwhite

My One Week Update

Rate this topic

Recommended Posts

Today has been a week in my gluten-free life. Ive had more energy this week than I have in years. And the kids are back in school so Ive been getting up early. Yesterday morning I washed AND waxed my truck :blink: and then in the evening I bathed my dog. Which I paid for last night because I was sore, but it was a good kind of sore. Not the debilitating aches. Its obvious that my body is going to have to get used to all this moving around again. I was talking to DH last night and I told him that I feel better, and that I wasn't sure if it was all in my head or if I really am improving. I want to believe that its true progress and its not all in my head. I guess Ive been told "its all in your head" one too many times.

My headaches seem to be lessening in intensity, but not frequency. One thing that is bothering me though. I am absolutely ravenous. I was that way before but this has just taken it over the top. Could that be a gluten withdrawal? I don't feel the absolute need to go raid the bread box per se but I feel as though Im starving. That is not a good feeling, and the scale is starting to creep up, which really bothers me since I constantly struggle with weight. Just curious as to if others have experienced this.

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Today has been a week in my gluten-free life. Ive had more energy this week than I have in years. And the kids are back in school so Ive been getting up early. Yesterday morning I washed AND waxed my truck :blink: and then in the evening I bathed my dog. Which I paid for last night because I was sore, but it was a good kind of sore. Not the debilitating aches. Its obvious that my body is going to have to get used to all this moving around again. I was talking to DH last night and I told him that I feel better, and that I wasn't sure if it was all in my head or if I really am improving. I want to believe that its true progress and its not all in my head. I guess Ive been told "its all in your head" one too many times.

My headaches seem to be lessening in intensity, but not frequency. One thing that is bothering me though. I am absolutely ravenous. I was that way before but this has just taken it over the top. Could that be a gluten withdrawal? I don't feel the absolute need to go raid the bread box per se but I feel as though Im starving. That is not a good feeling, and the scale is starting to creep up, which really bothers me since I constantly struggle with weight. Just curious as to if others have experienced this.

I started feeling better after a week too, but not completely healed. It's been over four months, and I sometimes have setbacks, but the healing is still continuing. The first things to disappear were the D and the headaches, and the energy came back very quickly too. But the anxiety part, although reduced, is something I'm still struggling with. The brain fog comes and goes too, but less frequently.

As for the hungry feeling - I didn't have that. It could just be a mental thing, where you feel so deprived by not being able to eat the foods you're used to that your brain tells you to eat to overcome the deprival. I used to get that when I was trying to lose weight by cutting out certain foods. Not eating gluten will get easier though.

  • Upvote 1

Share this post


Link to post
Share on other sites

I'm a week free too! I feel amazing! I have so much energy and I feel so light on the inside! I'm happier, calmer...my family even noticed a difference! I do get terrible cravings, and I get very hungry. I try to just suppress these and ride it out, they will go away I believe.

Well done! :lol: Go us! :)

Share this post


Link to post
Share on other sites

I am just over a week gluten-free..I can say the main thing that is constant is that I have an abundance of energy (or its normal energy that was not present due to the gluten intolerance). Also, I have seen a slight decrease in my belly (it was always "swollen".

Lost about 5 lbs. yet still eating when hungry(hunger has diminished, prob due to higher protein intake.

I dont crave wheat or wheat products and since I also cut back on sugar(to stop any yeast that may have been present), sweet tasting items seem much more sweet now.

Share this post


Link to post
Share on other sites

HI,

Yes, I went through time of being extra hungry after going gluten-free. But it passed after a while and now I eat less than did before gluten-free.

Share this post


Link to post
Share on other sites
Ads by Google:


Well either last night I got CC'd or just had a bad night in general. I was blown up like a balloon looking pregnant, stomach pains, nausea, and just felt like I could throw up at any second.

Im still blowing up like a balloon after meals. And these are meals I have made with no one else around and have been oober careful of CC possibilities.

I was just looking at labs that were done on me at the beginning of this year and just about all my vitamin deficiency tests were either right at the lowest normal level or just below normal. The writing has been on the wall for a long time and no one has caught it......or cared enough to delve deeper into what was going on. So many pieces of the puzzle are fitting together, even if it is self diagnosing. No way am I going to do the gluten challenge to try the blood work, and I dang sure am not having another endo done. :rolleyes:

  • Upvote 1

Share this post


Link to post
Share on other sites

HI,

Being low on vitamins is a sign you may have damage to your villi preventing absorption. That's probably something doctors should always test people for, vitamin deficiencies. You are still very new to the gluten-free diet, so it is not surprising it hasn't cleared all your symptoms up yet. It may be a few months up to a year or more for you to get back to feeling right digestion wise. Healing can take some time.

Share this post


Link to post
Share on other sites

The longest I went gluten-free was 3 weeks and I felt A M A Z I N G!!!!

I fell off the wagon and have been feeling pretty crappy all the time again. I do not have Celiac, I am Gluten Intolerant. I just went 4 days and felt great again and then stupidly ate some stupid cake at work today. I am not in pain, just feel lousy. I cannot say why I do this to myself, its all mental, I know that.

My energy level the last few days have been so amazing. Tonight I feel like I am ready to pass out but the last few days I had to find ways to get myself to sleep because I had so much energy!

Share this post


Link to post
Share on other sites

That's great you are feeling better so soon! Congrats! I'm sorry to hear you were cc'd though; it's amazing how noticeable the symptoms are when we've been off gluten a while (I'm 2 months in).

I was extra hungry the first week or two, and now I find I'm less hungry. I can go more than 2hours without eating. LOL I used to get the shakes if I did that. In those first weeks, I did eat gluten-free snack foods a lot, and I still lost a couple pounds. Now, after 8 weeks, I'm down about 10-15 lbs. I don't know if it's the lack of inflammation, or just eating healthier foods, but it's working for me so I'm going with it! LOL

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,918
    • Total Posts
      943,502
  • Member Statistics

    • Total Members
      67,109
    • Most Online
      3,093

    Newest Member
    DEBBIE_ANN
    Joined
  • Popular Now

  • Topics

  • Posts

    • Yeah someone else said a few weeks ago that there local manger was very antimate that NONE of their shakes with celiac safe....as pointed out if one shake has gluten.....they use the same shake mixing machine...so THEY ALL will have gluten at that facility.....
    • I just saw your profile says thalassemia. My doc blames part of the microcytic anemia on thalassemia trait even though all my thalassemia gene tests have come back negative (and I don't have the right ethnic background). In a way I am hoping it is a FODMAP (carbohydrate) sensitivity instead of a gluten allergy because at least with the FODMAP you just have to stay low FODMAP and don't have to worry about crumbs and gluten cross-contamination like with celiac. I will check back in in 6 months once I see whether there are specific foods I can't eat or if it really does come down to gluten  Thanks for your support!!
    • Good for you for trying to manage your health.  My only suggestion would be to find another doctor.  Obviously, he does not even follow standard recommendations for screening.  I would worry that he overlooks other things too.  It never hurts to get a second opinion.  Second opinions have saved my family from unwanted surgeries and incorrect treatment.   The IgA (Immunoglobulin A) Test, in the case of celiac disease testing,  is a control test.  If he had ordered it, you would have known if the results are valid or not.  Now you are left in diagnostic Limboland.  Again, my TTG was negative it has never been positive even in follow-up testing.   You can go gluten free for life.  My hubby did that 17 years ago some 12 years prior to my diagnosis (per the advice of his GP and my my allergist).  But he will be the first to tell you that I get way more support from family, friends and medical. I wish you well!  
    • Okay so I had a peanut butter milkshake from steak n shake last night. I'm nearly positive that every thing else I've had recently has been gluten free. I have been feeling like my stomach is acting up a bit lately, but after this milkshake it is so much more intense. I considered maybe I'm sensitive to dairy too, but in the last few days  I've had plenty of dairy that didn't make me react  like this. The steak n shake website didn't list any real specifics on ingredients for milkshakes. I read in other forums that some shakes use a malt mix or syrup ( which I didn't see mentioned on the site), but it is corn based. I called the my local steak n shake and the guy said he is "pretty sure" it's corn based.  I called the customer service line and they couldn't tell me if it was gluten free or not. I found ONE listing on a website that said all shakes were gluten free expect peanut butter and one other flavor. I know this seems like a lot for one shake, but I'm so tired of not knowing what makes me sick. Has anyone else had an experience with this or has anymore knowledge about steak and shakes products?
    • So my tTG-IgA result came back negative. Doc did not do the total IgA so I could be in the 2% false negative. However my ferritin continues to fall (at 25 now so getting borderline to need another iron infusion, 6 months ago it was 50) and reflux was keeping me up at night so after the blood test I went on a gluten free and low FODMAP diet. 6 days later my reflux is gone! I had no idea it could work that quickly. I still feel like there is a lump in my esophagus and have a bit of difficulty swallowing (think I still have irritation in that area) but no more acid and regurgitation! Also have not had a single episode of gas or urgency or days with 8 BMs.  It has only been 6 days so maybe I am just having a good spell but am going to continue gluten free and low FODMAP for a month and then see if there are any FODMAP foods I can eat (but not gluten unless my doc decides I should have a biopsy) (I miss pears and apples). I guess the real test is to see if my ferritin levels start to go up-testing again in 6 months. The diet is very restrictive but worth it if it gets rid of the reflux and other symptoms. BTW post-menopausal (and before that I had an IUD for 10 years TMI) so no periods to blame for chronic microcytic/hypochromic anemia. Doc says "that's normal for you, you just don't absorb iron very well".
  • Upcoming Events