This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.
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What are the major symptoms of celiac disease?
Celiac Disease Symptoms
What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic)
Celiac Disease Screening
Interpretation of Celiac Disease Blood Test Results
Can I be tested even though I am eating gluten free?
How long must gluten be taken for the serological tests to be meaningful?
The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free
Is celiac inherited? Should my children be tested?
Ten Facts About Celiac Disease Genetic Testing
Is there a link between celiac and other autoimmune diseases?
Celiac Disease Research: Associated Diseases and Disorders
Is there a list of gluten foods to avoid?
Unsafe Gluten-Free Food List (Unsafe Ingredients)
Is there a list of gluten free foods?
Safe Gluten-Free Food List (Safe Ingredients)
Gluten-Free Alcoholic Beverages
Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?
Where does gluten hide?
Additional Things to Beware of to Maintain a 100% Gluten-Free Diet
Where can I buy gluten-free stuff?
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If eating carbs before bed this could be the issues, your system slows at night while you sleep, carb are processed more slowly going through your gut while your lying down. There is a chance your gut bacteria could be getting a bit more active and processing them, fermenting, or just breaking them down producing gas, enzymes, etc. Not moving so much in your sleep to keep stuff a bit more mobile could lead to irritation, gas bubbles, etc. NOTE this is all just guessing. You could be snacking on something that contains gluten or is CCed. Or it could be something else,
My suggestion is try fasting and sleeping or just having a bit of plain protein or a glass of almond milk before bed. I personally take a protein powder before bed. Wish you luck.
Please join the club of people who didn't recover in 5 minutes. We have a lot of members and they all pay dues! Your dues are an extended course in patience. Dues are paid daily for an indeterminate time.
There was a study a while back of children on the gluten-free diet. A good precentage of them had not totally healed after 18 months on the gluten-free diet. Some had though. Maybe some smart person will post a link to that study.
I suggest you change your snacking habits. Try something different to snack on. I know I had trouble with popcorn early in the gluten-free diet. It is hard to digest. Whole corn is hard to digest for most people. That's why they make hominy. You may be able to eat popcorn later on. Also consider what you are eating at all times. Your symptoms can be delayed by hours perhaps.
Fairly often we compare the recovery process to a rollercoaster ride. There can be ups and downs in an apparently illogical manner. The good news is you really are sick, so you are not a hypchondriac anymore!
Now lets see, you are eating cereal, which is a refined carb generally, and hard for our messed up guts and flora to handle. What other processed foods are you eating? If you put all the processed foods you are eating in a pile on the kitchen counter, is it bigger than the pile of whole foods you are eating?
Recovery from celiac disease is all about diet, gut flora, and patience. Maybe a few vitamins thrown in here and there. The tricky things are additional food intolerances that might crop up. They can be confusing and cause many symptoms themselves. The way to find them is with an elimination diet. Put on your thinking cap and start investigating your diet. Remember processed foods are your enemy.
Hi guys! I messaged cyclinglady yesterday but thought of reaching out to all of you for some support. I'm almost 5 months into this thing. My stomach is better. I rarely feel bloated. I rarely have any stomach pain at all. It wasn't terrible before, but I definitely notice a difference now. I'm about 15 lbs lighter. I don't look pregnant when I go to bed. That said, I'm not 100% and I notice that I have good days and iffy days. For the past week or so I have noticed that my belly is kinda off in the mornings. Loose stool mostly. It's formed, but not ideal. But if I go in the afternoon it's usually totally fine. First I was panicked about refractory, but cyclinglady talked me off that cliff. My TTG-iga went from >100 to 12 in 2 months. But I was worried that somehow my body quit responding to my diet. But I think that's highly unlikely and that I'm being a little dramatic. I'm trying to figure out why my digestion seems wonky overnight. I snack at night. Gluten free but I do snack. Sometimes I'll have a bowl of cereal. Usually I have popcorn. And I'm wondering if the popcorn is doing it. Seems like a high fiber dinner or snack makes me funny. I don't know. Nothing seems consistent because it's on and off.
is this normal? I expect to feel 100%. I feel 100% in the afternoon. But my overnight digestion isn't. Why? Am I still healing? Does it take a while? I went gluten free on November 8. Am I being too impatient? I'll have my TTG iga checked again in July and I'm not going sooner. I'm a hypochondriac (for real) and I don't need to go down that spiral again. Been there too many times.
i would think if it were gluten or my celiac I would feel "off" all day, or i would experience loose stools at other times than just in the morning. And I don't. So maybe it's something I'm doing at night. I just can't figure out what because it's not consistent. And sometimes when I eat popcorn, for example, I'm ok. Then when I don't, I'm not. So strange.
Regardless, I'm frustrated.
I have been on gluten free diet now for a year in april but still break out all the time.. so from what I am reading you have to have Celiac to have DH correct . why are these drs telling me different ... I dont know what to do