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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Dealing With Changing Sensitivites?
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14 posts in this topic

I've been eating gluten-free for alomost 3 months. All week I have been watching closly what I've been eating as last weekend I had a terrible time with what I think must have been CC somewhere. Just started feeling well again last night. Today I've been very careful as I have a ball game tonight and am needed to play. I just shared a small bowl of grapes with my daughter and instanly I've had two painful trips to the bathroom. Last time I had grapes, yesterday, I was totally fine, and was happy to find a fruit that didn't upset my stomach. Now what do I do? How often are food sensitivities going to change. How do I know what is safe and not, especially when dealing with fresh fruit??? How do I expect to be able to go on outings with the kids or play a baseball game without flare ups??? I'm so frustrated right now!! I'm too afraid to even go for a walk with the kids, and that is just not fair!

I understand the elimination test, but how can I do that when everyday differs? Does it make a difference when I eat the same fruit two days in a row? Please help!

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It may not have been the grapes, but a continuation of the glutening you got last weekend. I was glutened last week, and the D went away for a couple of days and then came back again yesterday. I wasn't glutened again, so my body is probably doing a rollercoaster recovery. I'm not sure how long the average gluten symptoms can last, but some people have issues for a couple of weeks after accidentally eating gluten.

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Until full healing can take place, any kind of food may be problematic gluten free or not. And you may find that your reaction time may vary, which always make it hard to pin point an issue.

Keeping a food diary might be helpful. Have you eliminated dairy? Immodium works for me when I'm in a situation with no rest room. It's also, relieves some of the worry, which makes everything worse. :rolleyes:

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Until full healing can take place, any kind of food may be problematic gluten free or not. And you may find that your reaction time may vary, which always make it hard to pin point an issue.

Keeping a food diary might be helpful. Have you eliminated dairy? Immodium works for me when I'm in a situation with no rest room. It's also, relieves some of the worry, which makes everything worse. :rolleyes:

Yes! Definitely the worrying makes it that much worse! That was my next question. It's like a vicious circle! I don't understand how things can ever get better when things are constantly changing? I've been tempted to try a laxative every morning to clear things out and then immodium through the day to actually be able to have some sort of life.

Yes, I have eliminated dairy other than lactose free milk and lactose free yogurt. I wonder if there is something in those other than lactose that would be causing this?

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I wonder if there is something in those other than lactose that would be causing this?

Yes, it's possible. But, first make sure you are 100% gluten free (as much as humanly possible) for some time, before you start to suspect other issues. Revisit your meds, lotions, lipstick, scratched pots and pans, shared toaster, cooking non-gluten free foods, kisses... etc. Gluten can be very sneaky! <_<

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When you mentioned grapes, the first thing I thought was sulfites, since I've been having to avoid that as well as gluten (and soy and msg). See here: http://www.learningtarget.com/nosulfites/grape.htm

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Grapes have yeast naturally in/on them. I learned this picking grapes in an orchard. I won't tolerate grapes. But I see that one time you did.

Well, I am about 3 months in and dealing with the same questions. What did it and why?

Diana

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Yes, it's possible. But, first make sure you are 100% gluten free (as much as humanly possible) for some time, before you start to suspect other issues. Revisit your meds, lotions, lipstick, scratched pots and pans, shared toaster, cooking non-gluten free foods, kisses... etc. Gluten can be very sneaky! <_<

What about BBQ's?

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What about BBQ's?

You mean going to BBQ's?

It takes a while to learn what may have gluten or not. And you have to know your environment. Generally, I would eat before you go, bring a dish to share (gluten free) or bring your own food.

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I often wonder if my sensitivities are changing too - I never had GI symptoms before my diagnosis and could eat whatever I wanted, keep it mind I was drinking about a gallon of milk every day and a half. But now things are different and I'm either getting CC'd or I'm developing new sensitivities, but I just cant put my finger on it. I'm also trying to keep in mind that it could also be my body's healing process, as I'm only 4 months into being gluten free. Whatever it is, its frustrating. Not that I would EVER do this, but at times I get so frustrated that I almost want to eat something like pizza or bread just to see what a purposeful, real glutening feels like so I can weed out other symptoms/foods. But I wouldn't feed myself anti-freeze or bleach, so I won't eat gluten. Cant do that to my body. I hope you can figure it out soon and start feeling better!!! You'll be in my thoughts...

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I often wonder if my sensitivities are changing too - I never had GI symptoms before my diagnosis and could eat whatever I wanted, keep it mind I was drinking about a gallon of milk every day and a half. But now things are different and I'm either getting CC'd or I'm developing new sensitivities, but I just cant put my finger on it. I'm also trying to keep in mind that it could also be my body's healing process, as I'm only 4 months into being gluten free. Whatever it is, its frustrating. Not that I would EVER do this, but at times I get so frustrated that I almost want to eat something like pizza or bread just to see what a purposeful, real glutening feels like so I can weed out other symptoms/foods. But I wouldn't feed myself anti-freeze or bleach, so I won't eat gluten. Cant do that to my body. I hope you can figure it out soon and start feeling better!!! You'll be in my thoughts...

Thank you! It's definitelyl a roller coaster ride. It is also tough when some symptoms happen right away and others take a couple days. How do you know what it actually was that bothered you? I'm just going to keep trying and look forward to the day when things get back to "normal". One day at a time!!!

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You mean going to BBQ's?

It takes a while to learn what may have gluten or not. And you have to know your environment. Generally, I would eat before you go, bring a dish to share (gluten free) or bring your own food.

Those are good tips but I was thinking more about when you said CC can happen while sharing pots and pans while cooking for my family, having my own toaster and pots and pans, etc.. does that go for bbq's too?

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I kind of made a list of safe foods I can eat, no matter what my state is. Before I knew I had GI, I could eat three slices of bread + a handful of cookies before getting sick and now I get glutenated by cross contamination...

So whenever I feel bad, I go back to eating only those foods, that I know for sure that aren't doing any harm and wait for the sunshine to come. I don't stay ill for too long, though. Only three days maximum.

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Those are good tips but I was thinking more about when you said CC can happen while sharing pots and pans while cooking for my family, having my own toaster and pots and pans, etc.. does that go for bbq's too?

You mean is your BBQ grill contaminated? Probably. If you ever toated buns on it, used BBQ sauce, seasonings, or even margerine on whatever you cooked on it in the past. Most people either buy a new grate for their grills or use foil so their food doesn't touch the grate.

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