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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Day 8...still Glutened
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6 posts in this topic

This is really frustrating. I was glutened last Tuesday and I'm still having symptoms today. They are also getting worse instead of better! I was up all night with stomach cramps, D and nausea, and still have lingering anxiety.

When I first went gluten-free I was also lactose intolerant, but overcame that after a month or so. Is it possible that being glutened has left me temporarily lactose intolerant again? That could explain the stomach issues, because I ate some cheese last night.

As for the anxiety, I called my doctor this morning and asked for a prescription of Xanax. It took the edge off a little bit when dealing with anxiety before (or at least it helped me sleep). I usually get the generic alprazolam. Does anyone know if this medication is really gluten free? I did a search on past posts on this board and there were people who strongly claimed it wasn't gluten free, and others who strongly claimed it was gluten free. I'm really confused!

I have a hard time overcoming the anxiety, because it sort of self-perpetuates and I can't shake those anxious feelings very well on my own. But, I don't want to take something for it only to continue being glutened and ending up in a loop.

Thanks!

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Xanax is listed at glutenfreedrugs.com as gluten-free in all forms but an't say about the generic. And here are the gluten-free ones listed for the generic -- Alprazolam (Geneva, Greenstone, Mylan, Novapharm, Sandoz) Alprazolam XR (Geneva, Greenstone, Mylan, Novapharm, Sandoz). Of course formulations can change, but the VAST majority of medications are gluten-free. It's really quite rare to find a prescription med that isn't.

If you're taking the generic, the only way to know for certain is to find out who makes it and call them. Even then you might get the CYA routine.

richard

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Thanks for the response! It makes me feel better than this medication is gluten free.

However, I called the doctors office and they won't give me a refill. I need to make an appointment first, and the earliest they can get me in is next Thursday afternoon. :(

Oh well. I'll have to stick it out until then. Hopefully the glutening will be over by then anyway. I am feeling less consistently anxious at the moment, but it comes and goes.

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Thanks for the response! It makes me feel better than this medication is gluten free.

However, I called the doctors office and they won't give me a refill. I need to make an appointment first, and the earliest they can get me in is next Thursday afternoon. :(

Oh well. I'll have to stick it out until then. Hopefully the glutening will be over by then anyway. I am feeling less consistently anxious at the moment, but it comes and goes.

Klonapin is also a benzo drug like Xanax but it is more effective for longer term use. Xanax can cause very bad rebound anxiety so you wind up having to take it every 6 hours indefinitely or you will get awful rebound anxiety worse than the initial anxiety.

Xanax works for the night terrors and panic attacks, but you really don't want to use it more than an attack here and there. Klonapin allows you to take a dose and it will keep the anxiety awayall day pretty much. I am very sensitive to meds to .5 mgs really works for me. I take it at night before bed if I have to, but thankfully my most recent bout with anxeity depression passed with minimal klonapin use.

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Klonapin is also a benzo drug like Xanax but it is more effective for longer term use. Xanax can cause very bad rebound anxiety so you wind up having to take it every 6 hours indefinitely or you will get awful rebound anxiety worse than the initial anxiety.

Xanax works for the night terrors and panic attacks, but you really don't want to use it more than an attack here and there. Klonapin allows you to take a dose and it will keep the anxiety awayall day pretty much. I am very sensitive to meds to .5 mgs really works for me. I take it at night before bed if I have to, but thankfully my most recent bout with anxeity depression passed with minimal klonapin use.

I haven't noticed any rebound anxiety with Xanax, probably because the dose is only 0.25, and I cut those in half. I'm also not on it long term - just when the anxiety is really bad.

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How about soy, or any nuts? Maybe it's not just lactose but casein as well?

I know exactly how you feel.

I'd suggest an elimination diet and see what happens. Of course I'm only new to this myself, so don't take my word as prescription!

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