• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Enter Lab Results
0

12 posts in this topic

i just got in my 2 children's gluten sensitivity results.

Child 1

Fecal Anti-gliadin IgA. 144 units ( Normal range is less than 10 Units)

Child 2

Fecal Anti-gliadin IgA 11 Units (Normal range is less than 10 Units)

Milk Protein Sensitivity

Child 2

Fecal Anti-casein (cow's milk) IgA 9 Units (Normal range is less than 10 Units)

My first question is there is such a big difference in the two gluten sensitivity results. Does that mean child 1 has it more severe? I am new obviously and I just recently found out I was gluten sensitive and trying to nurse myself back to health. Should I bring these results to their pediatrician or find a doctor specializing in this? Or just take them off of gluten for a while? Celiac runs on my dads side and a suspected first cousin on my moms side, so it is a possibility for my children. My children are 4 and 8 and have complained about stomach problems their whole lives. The 4 year old literally did not sleep and cried for 2 years. My biopsy was negative for Celiac but he only took 1 sample and I will never get back on gluten for another biopsy. Any

advise as to where I go from here.

Also I called the naturopath office and the lady at the front desk, when told results, said just gradually wean them off of gluten so they don't feel bad all at once and that almost everyone is sensitive to gluten. Is this correct?

Edited by ShannonA
0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


I not familiar enough with the fecal tests to comment other than there certainly is something going on with gluten. I know that IgA levels can vary greatly among celiacs, so it may differ between your kids...curious is the one with the much higher level the older &/or have more severe symptoms?

I'd vote for getting full celiac blood on both your kids, then immediately start them on gluten-free diet. Since they both have symptoms and several family members with gluten issues - it is likely that eating gluten-free will improve their health and certainly will not harm them. Added bonus is all three of you will be eating gluten-free - it can be difficult to feed young children gluten and avoid all cross-contamination to you.

Good luck to you all :)

0

Share this post


Link to post
Share on other sites

Also I called the naturopath office and the lady at the front desk, when told results, said just gradually wean them off of gluten so they don't feel bad all at once and that almost everyone is sensitive to gluten. Is this correct?

No. It may be true that many people may "feel" better eating gluten free, but it is certainly not true that "almost everyone" is sensitive to gluten. I don't see a reason to wean them gradually. Just make sure you have some of their favorite gluten-free foods at the ready &/or replicate some of their gluten-filled favorites with gluten-free versions.

0

Share this post


Link to post
Share on other sites

I not familiar enough with the fecal tests to comment other than there certainly is something going on with gluten. I know that IgA levels can vary greatly among celiacs, so it may differ between your kids...curious is the one with the much higher level the older &/or have more severe symptoms?

I'd vote for getting full celiac blood on both your kids, then immediately start them on gluten-free diet. Since they both have symptoms and several family members with gluten issues - it is likely that eating gluten-free will improve their health and certainly will not harm them. Added bonus is all three of you will be eating gluten-free - it can be difficult to feed young children gluten and avoid all cross-contamination to you.

Good luck to you all :)

Yes older one has higher level & more fatigue. Also a full celiac panel will be quite expensive and so what would be the most cost effective route to go. I've already spent close to $26,000 on myself, I was near death for a year, so money is limited.
0

Share this post


Link to post
Share on other sites

There are two kinds of kids, the kind that eat anything, everything, and the .... other kind. If you've got the really, really picky kind, especially the picky kind stuck on eating just the same few things over and over again, it might be better to ease them into it, like over a week or so, (after testing) so they don't automatically balk at the thought that this "new gluten free stuff," they think they hate, is some sort of punishment. If they already associate food with discomfort, they can have a bit of a meltdown when confronted with the lack of the "favorite item," or the substitute, at first, from what I've read about toddlers/preschoolers. You don't want to get into any battle royales over it. And then there is the "school" problem where in some situations they are slinging gluteny cupcakes and pizza around for celebrations constantly. :ph34r: You will want to have a stash of this sort of thing in your freezer, slices of gluten free pizza and individual servings of cake or cupcakes, so you can take one out to send along, so the kid doesn't feel left out. It's fairly easy to find gluten free candies, by comparison, which meet the taste test.

For example, if you can get them to eat rice cakes, and if they already do peanut butter, you can take marshmellows (Kraft, or kosher ones) and those chocolate chips that are allergen free (Enjoy Life), maybe some coconut flakes or craisens, and make all sorts of rice crispy type treats, without having to purchase the more expensive gluten free rice crispie type puffed rice cereal.

This can work out better than if you buy a $5 box of gluten-free cake mix, add another $2 of ingredients, and discover you don't actually care for the flavor of that flour mixture, and the kids hate it. Or they have a textural problem. My spouse who is not gluten free, but who eats gluten free at home, can always tell when there is rice flour in anything. He'll eat it anyway, but he always notes "this has that grainy rice flour texture to it" and he's said the same thing in restaurants, if he tastes something first. I don't really notice, but I think this is funny.

0

Share this post


Link to post
Share on other sites
Ads by Google:


Most cost effective is to go completely gluten-free and monitor changes in symptoms.

Get yourselves healthy - then worry about testing/gluten challenge down the road if one of your kids questions their need to be gluten-free.

0

Share this post


Link to post
Share on other sites

Ah, but blood tests first, THEN diet change, or the tests won't show anything, if you are going to test for a baseline. :)

http://www.celiac.com/articles/32/1/How-accurate-are-blood-antibody-tests/Page1.html

The endomysial and anti tissue transglutamimase antibody tests are supposed to be the most accurate, but if you have low IGA, it can skew the whole thing.

0

Share this post


Link to post
Share on other sites

In case you are interested...I did find a source for a celiac panel without a doctor - one of my kids is considering a gluten challenge within the next year as his original celiac panel was negative. He has had improved health since going gluten-free, but he doesn't have as severe reactions to accidental glutenings as his siblings hence the question in his mind - with good reason.

http://www.healthcheckusa.com/Celiac-Disease-Antibody-Profile-Comprehensive/63473/

Have no idea if these can be done where you live...just thought I'd throw it out there.

0

Share this post


Link to post
Share on other sites

Ah, but blood tests first, THEN diet change, or the tests won't show anything, if you are going to test for a baseline. :)

http://www.celiac.com/articles/32/1/How-accurate-are-blood-antibody-tests/Page1.html

The endomysial and anti tissue transglutamimase antibody tests are supposed to be the most accurate, but if you have low IGA, it can skew the whole thing.

Thanks! I would of started the diet before the blood work. My mind is not clear these days.
0

Share this post


Link to post
Share on other sites

In case you are interested...I did find a source for a celiac panel without a doctor - one of my kids is considering a gluten challenge within the next year as his original celiac panel was negative. He has had improved health since going gluten-free, but he doesn't have as severe reactions to accidental glutenings as his siblings hence the question in his mind - with good reason.

http://www.healthcheckusa.com/Celiac-Disease-Antibody-Profile-Comprehensive/63473/

Have no idea if these can be done where you live...just thought I'd throw it out there.

Thanks for info, they have a lab in my town and a reasonable price too!
0

Share this post


Link to post
Share on other sites

Your kids' response to the diet means a LOT more than fecal IgA. It's not a terribly reliable test, though a result of 144 is certainly interesting. Little kids don't always have a strong immune response so the older's test results might simply be a reflection of his/her more mature immune system.

As other folks have said, you can't have them tested for celiac once they're off gluten. If your insurance won't cover celiac panels and it's beyond your means, you might consider getting a home TTG test kit and at least testing the older who has a lot of fecal antibodies. http://www.glutenpro.com/

I hope going off gluten helps their stomach-aches! Obviously follow your naturopath's advice as far as tapering and how long to try the diet once you've done whatever celiac testing you feel is appropriate.

0

Share this post


Link to post
Share on other sites

Thank you! I can't wait to get them off of gluten, I know it will make a difference. My 8 year old is so fatigued constantly, I just want them to feel good all the time.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,772
    • Total Posts
      932,324
  • Member Statistics

    • Total Members
      64,243
    • Most Online
      3,093

    Newest Member
    Tracy210t
    Joined
  • Popular Now

  • Topics

  • Posts

    • Are you sure he didn't eat pizza or a cookie?  If you weren't there.....  just a thought.  And, is this his usual reaction to gluten?  Do you really know that it is from gluten..... I mean...positive he got some gluten and this happens?  For example - I realized after I ate something that it wasn't what I thought it was.... so I know my reaction from gluten for certain.   The thing is, it just seems extreme for a teeny amount of gluten.  I just don't want you to miss something because you blame it on gluten.  It's a natural thing to blame everything on gluten. I feel this is his reaction to gluten, he needs to learn to recognize that it is irrational and learn to manage it.  If that means he stays in his room with soft music and a punching bag.... no matter what the cause of this episode - you definitely need to talk about it.  Maybe several times.  I know with my boys, you might have to explain what concerns you and maybe a brief why it concerns you ( tho this behavior probably needs no " why "it worries you).   They may need to think about it for a while or give you a partial answer today and discuss more in depth tomorrow.
    • Potato chips are usually gluten-free. If there is a concern, it is in an added flavor. I haven't seen a problem except for some BBQ flavors, and even then rarely. Wheat must be declared on the label in Canada and the USA. Rye and Barley do not need to be declared in the US, but in practice they are not hidden. That leaves dextrose which is a pure sugar and is gluten-free no matter where from what it was derived. Potato chips are very high in salt. The potatoes themselves provide a lot of sugar through carbohydrates. Just saying...
    • Hi, Welcome. Have you taken your son to the doctor yet? If you believe gluten is his problem, then I suggest you talk with your doctor about getting him tested. Could he be behaving badly due to reasons other than diet?
    • Hello, my 10 year old son, who is celiac, ate some potato chips (which likely had wheat or dextrose as ingredients as they were flavored chips) today at a end of school year gathering. He became very argumentative and misplaced several items in his room and blamed his siblings and us. As the evening wore on, my son became increasingly irrational, yelling and screaming, saying that he felt fine and that he couldn't understand why he was acting badly. My husband and I had no success reasoning with him over the course of hours and eventually he ended up in his room and fell asleep. Tonight was a "severe" outburst with my son almost picking an argument with everything and anyone. It was extremely difficult just to be in the house with him as he makes "grumping" noises and is incorrigible when he gets into gluten. I'm wondering if anyone has experience with this age kid and the behavioral manifestations of accidentally eating things that contain gluten. My husband and I felt completely wiped out after this episode. I fear that my son's behavior, if not contained, will lead him to bad choices/ irrational choices and I know I can't be with him every minute of the day. After this episode passes in a few days, he will likely be reasonable but how do we get him to understand how he is when glutened? Should we bring up this episode and talk about it?
    • Barilla makes great tasting gluten free pasta, Etalia makes a great artisan style bread, Canyon Bakehouse makes great bagels and sandwich bread so your good to go there. Canyon also makes focaccia but I've never tried it and it couldn't possibly compare to my sisters focaccia.
  • Upcoming Events