• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Silly Folks On Psoriasis Forums
0

8 posts in this topic

Because psoriasis is my most notable symptom I have been to many psoriasis forums. I have told my story and they reject the very idea that gluten-free can help! There are many scolarly articles about the connection from some very reputable doctors, hospitals and other organizations, but they STILL reject the idea. I'll see things like, "I tried a gluten-free diet for three weeks and it didn't make any difference." But we here know that they were probably using their old toaster, double dipping in the peanut butter, not reading labels, etc.

I have even explained about secondary intolerances and how it has taken me over a year to see permanent results. They see that an think, it's too hard. It seems that no matter how bad their psoriasis is, they just refuse to give up bread and other grains.

It's just so frustrating! I KNOW that gluten-free is the answer. I guess you can lead a horse to water but you can't make him THINK.

And it's sad that not only are they suffering the pain, itching, and hideous appearance of psoriasis, but they are doing damage to their bodies as well.

Oh well. I tried...

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Very frustrating. I try to just say the idea and hope that someone might make actually get tested properly for it. It's too frustrating.

0

Share this post


Link to post
Share on other sites

You know the saying about horses and water... you tried, that's all you can do. The whole concept of gluten free must sound pretty bizarre to others when it's been one of the staples of most people's diets their entire lives. Hopefully when more people become aware of just how sick it's making more and more people, it won't be as widely used? I tell people: be careful not to overdue the wheat in your diet, it can come back to haunt you! If they have to hit rock bottom they way we all have, then they'll change :)

0

Share this post


Link to post
Share on other sites

I just had a conversations with my mother in law that is pretty much the same thing. Her entire family is riddled with diseases linked to celiac and she herself has non-hodkins lymphoma which again, linked to celiac. She made a remark about my mango and I said it's one of the few fresh fruits I'm allowed to eat any more so that's why I eat so many of them. She then went on and on about how she could just never do it because it would be SO HARD.... so like, dying of cancer is easier than not eating bread? Some people will just never see reason. I mean no, I don't think we can blame everything on gluten and I doubt it would help everyone, but what is the harm in trying?

0

Share this post


Link to post
Share on other sites

Because psoriasis is my most notable symptom I have been to many psoriasis forums. I have told my story and they reject the very idea that gluten-free can help! There are many scolarly articles about the connection from some very reputable doctors, hospitals and other organizations, but they STILL reject the idea. I'll see things like, "I tried a gluten-free diet for three weeks and it didn't make any difference." But we here know that they were probably using their old toaster, double dipping in the peanut butter, not reading labels, etc.

I have even explained about secondary intolerances and how it has taken me over a year to see permanent results. They see that an think, it's too hard. It seems that no matter how bad their psoriasis is, they just refuse to give up bread and other grains.

It's just so frustrating! I KNOW that gluten-free is the answer. I guess you can lead a horse to water but you can't make him THINK.

And it's sad that not only are they suffering the pain, itching, and hideous appearance of psoriasis, but they are doing damage to their bodies as well.

Oh well. I tried...

Three weeks off gluten is hardly enough to start reversing anything, at best some lucky people might get relief from diarrhea and other acute digestive problems but anything else would take months, even years to heal if the damage is not too great. When I didn't know better I'd tell people to go off wheat for a week or so to see if it would make a difference, well, that might work for a few lucky ones but now that I know about "gluten detox" and have lived it on 2 occasions I know it's completely possible to feel much worse before starting to feel better. Because I've never been diagnosed I'd stay away mainly from wheat for months at a time but would eventually cheat, but the last 2 times the consequences have been more serious, especially the last time. I first stopped wheat, then the other gluten grains back in March but my progress this time has been very very slow.

I surely understand your frustration, I've felt it regarding other important things that I wanted to pass on to others, but many will not listen. These days I don't get frustrated anymore, I plant the seed and leave it up to others to choose what to do, and cold as it may seem I now feel that those that won't listen probably deserve the suffering they're in.

0

Share this post


Link to post
Share on other sites
Ads by Google:


Perhaps gluten can give some people psoriasis but I don't think that is my case. I do not have celiac. I am not intolerant or allergic to gluten or wheat. But my daughter was for many years. So I did eat a gluten-free diet for well over a year. No affect on my psoriasis whatever. It seems to come and go. And why? I do not know.

0

Share this post


Link to post
Share on other sites

I have psoriasis in my finger nails and being gluten free doesn't help with. It seems to get worse when I am in an AI flare though -so I know it is all connected.

0

Share this post


Link to post
Share on other sites




Gluten, soy, corn, and high salicylate foods have ALL contributed to my psoriasis. I had to ditch them all, and now my psoriasis is GONE. As I said in (in my poorly spelled) original post, SECONDARY intolerances are just as important as gluten. Julie, I would bet that the reason yours would come and go is that you ate something else you were intolerant to on those occasions it came back.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      107,321
    • Total Posts
      935,475
  • Member Statistics

    • Total Members
      64,982
    • Most Online
      3,093

    Newest Member
    RocioC
    Joined
  • Popular Now

  • Topics

  • Posts

    • You'll get there. It's very early days yet.
    • Thank you everyone for the replies, advice and well wishes. Hope you are all good I don't know whether to take the folic acid and deal with the lactose wind, or just put up with the fatigue as I'm sure its contributing to it. Its just the weight loss bothering me. I wish I could have some peanut butter or eggs so I could take in more calories but my gut won't have it. Ah, well. Best wishes all and my thanks. R
    • Hi Matt. Nice to meet someone from the U.K Thank you for your encouraging reply :). Yeah, I'm sure we all make mistakes at the start. I have however changed all my cutlery, plates, chopping boards and binned my toaster as I can't eat gluten-free bread due to the egg intolerance. I do think my house is completely gluten free. I do wish I could eat more. I can't do rice/grains or potatoes either. The only thing my stomach seems content with is chicken and veggies. Thanks for listening.   R
    • Wow, I was on the EXACT same stuff, it is basically medical speed, amphetamine. Yeah it will motivate you but it is addictive and withdrawal is a real nightmare with it. I use EXTRA b-vitamins and give myself a extra kick with a red eye coffee sometimes now days to avoid those pills. And I do not want to go through that withdrawal again. I would honestly suggest a 5-hour no sugar energy shot and some cocoa nibs and hemp seed snack mix over those pills anyway. Sorta what gets me by now days.  THIS is going to sound really really odd, but I makes this great sprinkle for depression and energy made with ground cocoa nibs form ciro bru, hemp protein powder, and a sweetener like pyure, or xylitol and just sprinkle it over or in stuff. The blend of hemp and cocoa really helps my mood in combination with the Stress & Energy mix. I think the magnesium I take daily also contributes. I honestly can not get mad, sad, or depressed no matter what for the past 3 weeks.....like the most messed up stuff has happened and I just go "Oh well it will work out" ....and I mean some really bad stuff has happened this month lol.
    • So I have one pesky symptom that in the last few years has cropped up and never gone away. Lack of motivation to do some very basic things. So basic it's embarrassing to talk about. I barely manage to do a lot of adult tasks these days. It's a real stretch. It's like something is blocking me. Anyways, so I'm talking to my psych and she suggests adderal for it as we've tried lots of different avenues for this issue and none have helped. My bipolar is totally under control, for an entire year so far. My anxiety is ok with a script. It'll be even better once I get one major thing that I won't get into here taken care of. But I'm not the super motivated, extremely hard working person I used to be. It really changed basically when I got sick about 9 years ago. So, does anyone else take adderal? I've got the pills next to me but worried to take them. Not sure why. Any help, advice, reassurance is welcome.
  • Upcoming Events