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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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Peppa_minto

Interstitial Cystitis And Elmiron

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Okay so I recently realized I never actually checked to make sure that elmiron was gluten free (I have IC). I've seen some conflicting posts on the matter. Some say the medication inside the capsule is gluten-free but the capsule itself is not. Does anyone know?

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Peppa_minto, I don't know. I do remember having GI issues when I took it, but I think they warn about that even for "normal" folks. I didn't know I had Celiac then, so I wasn't researching my meds. Elmiron was not good for me, though - I had the side effects. I also am not sure whether I have IC, so I didn't appreciate taking it! (It didn't help me, but since I may not have IC that might be why! I do hope it helps you!)

I know I read on an IC board about some people putting the pill's contents into water and drinking it. I'd talk to your pharmacist, they should be able to help you.

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Long time member needs some help.

Since this was a old post I hope some new posts on how this med worked for them.

The diet they handed me was so limiting and all foods I was eating SO need to find replacerments.

Have had 3 bouts of C-DIFF, a trip to hospital over Thanksgiving and just starting anti-depressent Pristiq so who know what is causing the cramping and mucus D.

any help so appreciated as just too tired and weak to search

Thanks in advance Judy

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Thanks for the input

infectious disease specialist said that that drug caused diarrhea and a reocurance of c diff

Of course urologist just denied it

So now I'm struggling with the pain of both I C and C-Diff.

Any ideas welcome done waiting for

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Long time member needs some help.

Since this was a old post I hope some new posts on how this med worked for them.

The diet they handed me was so limiting and all foods I was eating SO need to find replacerments.

Have had 3 bouts of C-DIFF, a trip to hospital over Thanksgiving and just starting anti-depressent Pristiq so who know what is causing the cramping and mucus D.

any help so appreciated as just too tired and weak to search

Thanks in advance Judy

So sorry to hear you are not feeling well. I do not have IC, but regarding the C diff and your diet restrictions--I've had to restrict some foods in my diet in addition to gluten containing foods due to (my interpretation) inflammatory reaction. I've had low WBC counts occasionally which I believe is adding to more susceptibility to infection. I have found The New Yorker, October 22, 2012 article, Germs Are Us, very interesting and helpful (there is reference to C. diff infection, and basically that we are eroding our gut flora and probiotics help maintain it). I have found that the diet restrictions (in addition to gluten) very narrow, but the increased health really negates any difficulty. I truly hope you feel better and wish you a very happy holiday season.

Edited by sunsetsunrise

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Thanks for your reply and the time it took to do it

Learning all I can about this drug

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    • yeah , i might try go tomorrow if I can find out - i literally stopped 2 days ago so unikely to be out of my system and if im due to go for a test tomorrow I could maybe try eating something witha bit of gluten in tonight or something to "top up" as it were
    • I was completely floored by the realisation after I went gluten free of just how badly it had been affecting me. Before then I had all these different things which I was either barely coping with, ignoring, trying to pretend they weren't there etc. I went gluten free and suddenly all sorts of different things started to resolve. It blew my mind! Try and get a blood test now before cutting it, its so much easier than going back on it for a gluten challenge.  If the test is negative, don't assume its not an issue for you. My test was negative but I responded to the diet.  Lots of help and advice here if you need it Best of luck! Matt
    • Gemma......if you are ever in London, please check out this place.  It is a 100% gluten free bakery and the food is out of this world!  I can't get bread like this in the States and it certainly is worth a road trip for anyone living in the Uk, within reasonable distance from London.  It will easily satisfy all of your bakery cravings and I bet the bread freezes well. http://www.beyondbread.co.uk/
    • Celiac disease can be dormant for years til a strain/stress to the immune system makes it come out. Many of us have had this issues, your infection run in might have triggered the dormant genes for the disease if you had them. I would follow up with the testing, see about getting a full celiac blood panel if you can, you have to be eating gluten for 12 weeks daily prior to testing. http://www.cureceliacdisease.org/screening/

        If not celiac it could be another food intolerance/sensitivity I suggest keeping a food diary and tracking what you eat, seasonings, how it is cooked etc. And how you feel later. Change up our diet more and look for patterns.  Here is stuff to read up on. https://www.mindbodygreen.com/articles/are-food-sensitivities-for-life
    • Yeah , i will look into getting tested - like you say there is no harm in it . What I found very interesting is the part where you say "Later I got pains in the stomach, usually a dull ache although I could get a fierce stabbing pain there too. When I went gluten free those pains stopped. as did my chronic sciatic backache which Ive subsequently realised was probably due to inflamed tissues pressing on nerves." - I also started to get chronic sciatic nerve pain on the right side over a similar time period and am wondering if its the same kind of thing. If I could solve both those things it would be life changing for me
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