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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Interstitial Cystitis And Elmiron
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6 posts in this topic

Okay so I recently realized I never actually checked to make sure that elmiron was gluten free (I have IC). I've seen some conflicting posts on the matter. Some say the medication inside the capsule is gluten-free but the capsule itself is not. Does anyone know?

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Peppa_minto, I don't know. I do remember having GI issues when I took it, but I think they warn about that even for "normal" folks. I didn't know I had Celiac then, so I wasn't researching my meds. Elmiron was not good for me, though - I had the side effects. I also am not sure whether I have IC, so I didn't appreciate taking it! (It didn't help me, but since I may not have IC that might be why! I do hope it helps you!)

I know I read on an IC board about some people putting the pill's contents into water and drinking it. I'd talk to your pharmacist, they should be able to help you.

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Long time member needs some help.

Since this was a old post I hope some new posts on how this med worked for them.

The diet they handed me was so limiting and all foods I was eating SO need to find replacerments.

Have had 3 bouts of C-DIFF, a trip to hospital over Thanksgiving and just starting anti-depressent Pristiq so who know what is causing the cramping and mucus D.

any help so appreciated as just too tired and weak to search

Thanks in advance Judy

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Thanks for the input

infectious disease specialist said that that drug caused diarrhea and a reocurance of c diff

Of course urologist just denied it

So now I'm struggling with the pain of both I C and C-Diff.

Any ideas welcome done waiting for

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Long time member needs some help.

Since this was a old post I hope some new posts on how this med worked for them.

The diet they handed me was so limiting and all foods I was eating SO need to find replacerments.

Have had 3 bouts of C-DIFF, a trip to hospital over Thanksgiving and just starting anti-depressent Pristiq so who know what is causing the cramping and mucus D.

any help so appreciated as just too tired and weak to search

Thanks in advance Judy

So sorry to hear you are not feeling well. I do not have IC, but regarding the C diff and your diet restrictions--I've had to restrict some foods in my diet in addition to gluten containing foods due to (my interpretation) inflammatory reaction. I've had low WBC counts occasionally which I believe is adding to more susceptibility to infection. I have found The New Yorker, October 22, 2012 article, Germs Are Us, very interesting and helpful (there is reference to C. diff infection, and basically that we are eroding our gut flora and probiotics help maintain it). I have found that the diet restrictions (in addition to gluten) very narrow, but the increased health really negates any difficulty. I truly hope you feel better and wish you a very happy holiday season.

Edited by sunsetsunrise
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Thanks for your reply and the time it took to do it

Learning all I can about this drug

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