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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Severe Chronic Constipation
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36 posts in this topic

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GottaSki    459

Most doctors remain woefully undereducated with regard to Celiac Disease.  They were taught the "classic" list of symptoms -- Underweight, Diarrhea, Short Stature, Childhood Disease that many outgrow.  Sadly, many of the 300 symptoms associated with celiac disease are not on their radar.  

 

In my opinion, constipation not being a "classic" symptom of Celiac Disease is one of the primary reasons so many of us went undiagnosed for many years.  Bowel changes are the key.  Some of us have D, some C and some flip-flop back and forth -- really how many folks know exactly what a healthy bowel movement looks like if they have had abnormal movements their entire life? 

 

I was 43 and in the process of being diagnosed with Celiac Disease - speaking to one of the top Celiac doctors in the country when I had my very first frank discussion about my bowel movements.  No doctor of any specialty for over 25 years asked me the questions he did about my "poop" history.

 

I forget the actual figures, but I think the last ones I saw published were approximately 40% of those with celiac disease present with constipation -- not a "classic" symptom -- thankfully the wide array of celiac symptoms are beginning to trickle down to the medical community -- would be nice if we could assume someone trained in gastroenterology had a good understanding of our disease -- sadly this is not always the case.

 

Oops....hoping off my soapbox

 

I have been recovering for over four years and I still battle constipation regularly -- I have had improvement -- but the slow transit issue I developed over the years has yet to be completely resolved.  I am hopeful one day I will join the "regular" crowd.

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Have you heard of the specific carbohydrate diet? It's used to help heal digestive disease. I got on it and after 2 day I could notice a difference. I have a mild form of C and I'm in my 20's and I'm afraid it will get worse if I don't get it under control. I ran across this website http://pecanbread.com/p/how/coprotocol.htm . The diet she is referring to is based on Elaine Gottschall's book Breaking the Vicious Cycle and there is more information on scdlifestyle.com. I wish I knew more of what to tell you but sometimes it helps me to read people's testimonies of what worked for them and maybe it can work for someone else, too.

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Cattknap    3

Probiotics are the way to go.  I take Align once a day and my chronic constipation is cured - normal bms for the first time since I was in high school....I am 62 and was diagnosed (blood test and biopsy) with Celiac almost 2 1/2 years ago.  I buy Align  at Costco.  I am vegetarian - eating a plant-based diet other than salmon once a week and plain Greek yogurt every other day.  Much of my diet is raw.  Align has totally changed my life.

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ravenra    0

I suffered from chronic constipation as a child but then switched to regular D as a teen and in my early 20s.

 

Over the past 2 years I've been sorting out my food intolerances (onion, garlic, peppers, sugars, casein/lactose & gluten) and when I would eat a big batch of something my body didn't like I'd get D for days - french onion soup was what tipped me off on the onions.

 

Since going gluten free 8 months ago I immediately became constipated. Initially I thought it was because I cut out all grains - but then after 5 months of terrible constipation (which seems worse to me than D) I realized that it was the gluten-free oats I was eating. I stopped eating oats and all of a sudden I was having perfect BMs.  Now, when I get accidentally 'glutened' I get constipated (along w/ all the other symptoms) -  and if I eat my 'other' intolerances, which happens much more often, I get D. 

 

For me, journaling and sorting out all the other food intolerances - including lots of healthy fruits and veg I was eating EVERY DAY - was the most important thing.

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Both my kids had to use miralax as c was their main symptom. Mour gastro told us a double or triple dose for 3 days to get everything out, then follow the dosing on the bottle for adults. It's tasteless so justbmix it in with water. If the adult dose isn't enough use a dose and a half for awhile, you can't really overdose on miralax, it's plant based, if you take too much you just get the runs, then you know you need to take a little less.

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Cattknap    3

Both my kids had to use miralax as c was their main symptom. Mour gastro told us a double or triple dose for 3 days to get everything out, then follow the dosing on the bottle for adults. It's tasteless so justbmix it in with water. If the adult dose isn't enough use a dose and a half for awhile, you can't really overdose on miralax, it's plant based, if you take too much you just get the runs, then you know you need to take a little less.

But with probiotics you can create a healthy colon environment rather than taking laxatives which does not help you other than to go to the bathroom.  I can't believe no one here takes probiotics!

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But with probiotics you can create a healthy colon environment rather than taking laxatives which does not help you other than to go to the bathroom. I can't believe no one here takes probiotics!

I took and still take them. But c due to gluten and thyroid disease can not be I cured by probiotics alone. If it could, I would have done it years ago.

My son has c. Probiotics don't fix him either. His gluten-free trial is coming....

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JRK803    0

I too suffer with chronic C. I am not officially celiac because my doctor won't test me because I have been gluten free for over two years. I really get encouragement from your posts. My gastro doc has me taking Miralax and a drug called Amitiza. Neither work that well but after a day of bloating up from Miralax I will finally have a BM. Does anyone else get horrible bloating from taking Miralax? I get so depressed and frustrated until I go and then I get happy and feel normal until the downward spiral happens again. It's horrible. I think I am going to eat things with gluten and when I do it's worse! I do all the tricks, lemon water, magnesium and probiotics. I haven't found the magic bullet. Magnesium was my miracle cure - Milk of Magnesium and then it stopped working. Please let's keep sharing! I get helped by reading your posts. God bless us all!

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mamaw    133

Mineral oil  3  tbsp.  daily or  at  night  before  bedtime.... They  really  don't  use  this  method  anymore  but  it works  but  can be dangerous  if  a person throws  it  up.... I still use  it  as  years ago  that  was the protocol  for babies....

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Renaye    1

I have some sort of dysfunction where my lower colon muscles don't work. I take miralax and eat more soluable than insoluable fiber and this seems to help. I have done everything and now have just accepted it.

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Irma    0

I have suffered from constipation for most of my life. If it goes on for more than two days then I drink a small bottle of organic prune juice.

This works every time. I then have a normal bowel movement which is such a relief! This normally works for about two weeks and then I end up having to drink some again :))

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    • This - I agree with all of this. I have also twigged that if oats are a problem then certified processed gluten free food is out. And I got really sick from drywall. It's such a relief to hear this as there was a time when I was feeling like an alien for thinking these things. Well I agree 99.9%. I had a skin problem, possibly DH, which got better when I gave up gluten, improved further when I gave up processed foods but it wasn't until I stopped eating dry beans that I stopped getting any flares. I am also sensitive to egg though (although that does something different to my skin) so I'm a bit a skin-reactive person. Could be worth cutting it out just to see if that helps?
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