• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Anatomy Question On Gluten Intolerance
0

6 posts in this topic

Hi, I took a celiac test (biocard) and got negative, not sure if accurate as I have been gluten free for past two weeks and only went back on gluten on Friday evening? Gonna keep eating for two weeks then take again. However have been pondering, my understanding is that celiac disease causes damage to gut, because of this malnutrition and lactose intolerance are risks (think I have both of these body not enjoying dairy just now). However intolerance which as far as I understand does not do any damage to digestive system can also have the same symptoms (lactose intolerance and malnutrition). My question is how can intolerance cause these if it is not doing the damage required to cause these? Is there any significant research into possible damage that intolerance is doing, most of what I have read is based on celiac disease. Just confused how the same symptoms can be caused but without the same damage.

Thank for any info anyone can provide.

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


A gluten intolerance, celiac or not, DOES cause intestinal damage until it has time to heal. I have had damage and the same symptoms as celiacs, even though my blood test was negative. The blood test, I hear, is not sensitive enough to diagnose everyone. I don't know what the bio card is. Either way, the cure is the same - a gluten free diet.

1

Share this post


Link to post
Share on other sites

Have done more research and from what I understand intolerance is caused by the general not specific immune system, (not antigen related), what confuses me is if I have intolerance and therefor no lining damage why lactose intolerance can still be a symptom and inability to digest fat? Confused as to how intolerance can cause same symptoms without the same cause.

0

Share this post


Link to post
Share on other sites

Not meaning to add more confusion but some consider gluten intolerance and celiac to be the same thing. Some doctors would define me as gluten intolerant because I had false negative blood tests but the damage done was still autoimmune and severe although it was my brain and skin that were attacked before my gut. As the previous poster stated it doesn't matter what they call what is going on any amount of gluten is off limits.

0

Share this post


Link to post
Share on other sites

As you probably gathered by now, there is no definite answer yet, but theories abound. One that was written about in the book "healthier without wheat" made the most sense to me, so I will share it.

When gluten protein is put in a petro dish with healthy tissue, the tissue suffers damage. Gluten itself is toxic to tissue. Now, if you have a healthy mucosal barrier in your intestine then theoretically, gluten would pass harmlessly thru. However, most everyone suffers SOME danage to that barrier, whether by antibiotics, illness, surgery, even stress can damage it. Once the tissue is exposed, gluten comes into contact with it, and voila, damage. In celiac disease, you have an auto-immune response where your own immune system is putting holes in your intestine, in addition to outside causes.

So...the root cause is different, but the end result is the same. Damaged intestines, and a permeable intestinal barrier, ie "'leaky gut" that allows harmful proteins, like gliadin, to enter the bloodstream where they can wreak havoc not just on the intestine, but the entire body.

If you subscribe to that theory, then you would possibly, with extreme care, maybe be able to restore your intestinal lining to health and it could again do its job. It seems doubtful to me though, that perfect restoration and maintenance would ever be likely unless you happen to live in a stress free, organic, non-inflammatory bubble....but....you know, its something to strive for! Anyway, if that happened, you could go back to eating gluten without issue. Which I think few people would be willing to risk.

A celiac, of course, could NEVER do that because any ingested gluten would just trigger the process all over again.

Now...your lactose issue there IS hope for. You don't need PERFECT intestines to digest lactose- just enough healthy villi that they produce lactase to digest it. That IS attainable, usually within 6 mos to a year of a gluten-free diet. But not always. Some peoples bodies simply don't work the way they should in that regard.

Hope this helped!

1

Share this post


Link to post
Share on other sites
Ads by Google:


Well, I've read somewhere GI is a lighter form of celiac (can't remember where for my life). Personally, I agree with this view. Fatigue and quick weight loss are signs of malabsorption, and I've been getting more sensitive to gluten even though not that much.

However, in comparision to what the celiacs go through, I actually have it pretty easy. Bloating, discomfort, occasional stomachache which doesn't last for even an hour and soft stools are barely nothing, in comparision. And I have lived with lactose intolerance for six years before discovering the GI.

It is worst, and better. The symptoms were harsher, but I recovered with time, not to mention they would go away pretty quickly (in a matter of 8 hours maximum). With GI, once I am glutened, my diet has to go back to the safe foods list for a week before I'm well enough to handle any possible small CC: the symptoms go away slowly and I react even to the safe foods, although in a considerably smaller dose.

I can even eat some gluten and "get away" with it (though it usually comes from CC and once I start eating the food in question in a bigger frequence, I feel the pain).

BUT I am merely myself and these are my experiences. I doubt they can beat scientific researches on the matter of what exactly is non-celiac GI. :P

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,797
    • Total Posts
      932,502
  • Member Statistics

    • Total Members
      64,282
    • Most Online
      3,093

    Newest Member
    lyoncallies
    Joined
  • Popular Now

  • Topics

  • Posts

    • I think he's right. It's a hard burden at times at any age but there will be particular challenges for your daughter as kids don't want to stick out or have to be continually monitoring things like their food. Check out this advert from a UK retailer. Beware it's so sugary it could probably give a diabetic person a sugar crash! Maybe you could do similar? Just get or make a selection of kid friendly foods but don't say anything about it to your daughter, just everyone go in and start filling their plates.  If she asks you if you've done anything for her you just tell her that she can eat everything on the table. At least this would show both that choice is still available to her and that because everyone is eating the same thing that she won't feel like she's being singled out?  
    • Hi Michael and welcome The celiac diagnosis process can be a little confusing. Some time ago I tried to put together some info and links that may be of help:    The key point would be to stay on gluten until you and your doctors are satisfied that celiac has been excluded. In your case that may include another test with a more complete panel as CyclingLady says above. If you go gluten free independently during this time you risk invalidating the results and adding to uncertainty. The second suggestion would be that should you succeed in eliminating celiac as a diagnosis then you have nothing to lose from trying the gluten free diet. I tested negative on blood and endoscopy, but removing gluten resolved or greatly improved a whole load of symptoms including anxiety, depression and that feeling of not being right that you outline above.  I say greatly improved because I can still suffer from anxiety or depression, as anyone can, but if I do, they're nowhere near as severe as they were when I was consuming gluten.  In the meantime, one thing you could do is to keep a food journal to see if you can track any relation between what you eat and how you feel. It's good practice for if you later try the gluten free diet and you never know what you may learn.  This is a good site full of friendly help and advice. I hope you get the help you need  
    • “I was coming here before I was diagnosed with celiac disease, but after, it was one of the few places I could go to since they had gluten-free items,” ... View the full article
    • Good advice Ennis!  I would add baking and freezing some gluten-free cupcakes to have on hand, so that she is never left out.  Be sure to read our Newbie 101 tips under the coping section of the forum.  Cross contamination is a big issue,  If the house is not gluten free, make sure everyone is in board with kitchen procedures.   Hopefully, your GI talked about the fact that this AI issue is genetic.   Get tested (and your TD1 child).  TD1 is strongly linked to celiac disease.  About 10% of TD1's develop celiac disease and vice versa.  Get tested even if you do not display any symptoms.    http://www.cureceliacdisease.org/screening/ https://celiac.org/celiac-disease/understanding-celiac-disease-2/diagnosing-celiac-disease/
    • What does weak mean?  Like you squat down and and you can not get back up?  Or are you fatigued?  When you said blood panel, was your thyroid tested?  Antibodies for thyroid should be checked if you have celiac.  So many of us have thyroid issues.  
  • Upcoming Events