• Join our community!

    Do you have questions about celiac disease or the gluten-free diet?

  • Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
0
Sage122

Can I Eat Regular Oats?

Rate this topic

Recommended Posts

Im lactose intolerant and gluten intolerant...maybe celiac. I'm not too exactly sure. I couldn't get tested for celiac cause I had already gone gluten free and felt better. The doctor said to assume I was gluten intolerant or gluten sensitive. My dad just found out he had celiac, but he doesn't have a lot of symptoms. So I COULD have celiac.

When I eat gluten, nothing really serious happens. I just get a stomach ache, and I feel all bloated. If I were to consume a large quantity of gluten (say a slice of bread), I get a couple of hives on my arms, and a couple rashes that go away in like 2 or 3 hours.

My friend has celiac and doesn't have many symptoms. I've seen her eat honey nut Cheerios, and nature valley oats and honey granola bars. She has no problem with it and doesnt feel sick after.

When I eat normal oatmeal, or normal oats, I have no problems

2 questions:

1) is it ok for me to eat normal oats, or do I still have to buy my not as good gluten free pure oat oatmeal?

2) How bad is cross contamination? Like if a product says "processed in a facility with wheat," do you still eat it? Can I still eat it????

I'm 14...

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


1) about 10% of celiacs react to oats. if you are bloated or get a stomach ache after eating gluten free oats, you will need to avoid ALL oats. if you don't, you can safely have GLUTEN FREE oats, but not regular ones as they have (most) all tested out at too high of a level of contamination. your friend is playing with fire and likely doing internal damage that she doesn't feel.

2) I can't entirely answer that question for you, as it depends on your level of sensitivity. I eat many things made in shared facilities, and sometimes shared equipment, without problem. Heck, if there is gluten in the house you live in, everything you eat at home is made in a shared facility. Some people find they can't tolerate this. But being made in a shared facility doesn't guarantee there is contamination.

  • Upvote 1

Share this post


Link to post
Share on other sites

Hi Sage,

Welcome!

Unfortunately all regular oats are contaminated with wheat due to the way they process them, so the only thing safe for Celiacs is Gluten Free Oatmeal. Your friend is getting a lot of gluten eating those products, they are not safe for Celiac/Gluten Intolerance. The rash you get may come and go quickly now, but it could be DH which is Dermatitis Herpetiformis and it is the skin form of Celiac. It is very sensitive to cross contamination. If you are going to assume you have Celiac based on your reactions and the fact that your dad has it, then you would want to be careful of cross contamination also.

Sorry, it's a bummer not to be able to eat regular oatmeal. Some with Celiac cannot eat oats either, even if they are certified gluten free, but it doesn't sound like that is the case for you.

Whether or not you have symptoms, if you are Celiac, then even trace amounts of gluten will be doing damage to your intestines. The bloating and the rash are consistent with Celiac. I hope you do some reading here and keep asking questions anytime! Tell your Celiac friend about us too, it sounds like she might want to do some reading about Celiac before she ends up with more damage and symptoms. I'm not trying to lecture...just concerned and we are willing to answer any questions you guys may have. Hope this helps. :)

Oh! And the question about shared facility where they also process wheat. Some of us react to those products and cannot eat them either.

  • Upvote 1

Share this post


Link to post
Share on other sites

I might not have Celiac though. I mean based on the fact that my dad has it, do you think i have it? If im only gluten sensitive (non celiac), does eating oats still cause damage? (regular oats).

Oh and ps, I can handle normal gluten-free oats

Share this post


Link to post
Share on other sites

Sage, without being tested it's hard to say if you are celiac or gluten intolerant. BUT your dad having celiac is a big clue. And just b/c you don't have big reactions doesn't mean you are not celiac --- just like your friend who is celiac & doesn't have big reactions. There are even what are called "silent celiacs" who have no reactions at all. But any celiac who eats gluten even cross contaminated oats is doing damage to their intestines & this is a very serious disease. There are many serious illnesses which can develop from this if one keeps eating gluten. Things like insulin dependent diabetes, lupus, lymphoma (cancer) & the list goes on & on; plus there are neurological things that can & often do happen. Celiac is a genetically inherited disease. Your dad has it. The odds are that you do too considering the reactions you are having at this stage of the game. I remember your posting before & most of what you told us then & about how much better you feel off of gluten. You said your family (parents) weren't really on board with you not eating gluten & that you had to buy your own gluten-free foods. This is very interesting that your dad has now tested positive for celiac. I hope that now the situation at home has changed somewhat.

And I want to add too that celiac, especially in someone your age, can go into "remission" at times which means you could eat gluten a year from now & have absolutely no reaction at all --- but that does not mean that damage is not being done to a celiacs guts & the rest of the body.

There are a couple ways you could go with this if you want to find out if you are or are not celiac.

1) You can do a gluten challenge which means eating gluten for a specified time & get the blood work done & an endoscopy.

2)Or maybe you should talk to your parents about seeing your dad's doc who dx'd him. It might be that doc will consider your reactions to gluten along with your dad's dx & do an endoscopy on you to see if there is visible damage to your villi & dx you based on that.

Honestly, since your reactions are not all that bad yet it might be best for you to do the whole thing --- the gluten challenge, celiac blood panel, & endoscopy. Also, if you have siblings they should be tested.

As eatmeat said --- the rash & hives you get could be the early stages of dh which is the skin manifestation of celiac disease. This could also explain why you do not have such strong reactions b/c most of us with dh tend not to have many GI symptoms & even when we do they are not as severe. BUT that does not mean damage is not being done to our guts b/c it is!

Sage, we would welcome your friend as well as your dad if either should decide to join us here. We are always happy to help.smile.gif

  • Upvote 1

Share this post


Link to post
Share on other sites
Ads by Google:


Sage, without being tested it's hard to say if you are celiac or gluten intolerant. BUT your dad having celiac is a big clue. And just b/c you don't have big reactions doesn't mean you are not celiac --- just like your friend who is celiac & doesn't have big reactions. There are even what are called "silent celiacs" who have no reactions at all. But any celiac who eats gluten even cross contaminated oats is doing damage to their intestines & this is a very serious disease. There are many serious illnesses which can develop from this if one keeps eating gluten. Things like insulin dependent diabetes, lupus, lymphoma (cancer) & the list goes on & on; plus there are neurological things that can & often do happen. Celiac is a genetically inherited disease. Your dad has it. The odds are that you do too considering the reactions you are having at this stage of the game. I remember your posting before & most of what you told us then & about how much better you feel off of gluten. You said your family (parents) weren't really on board with you not eating gluten & that you had to buy your own gluten-free foods. This is very interesting that your dad has now tested positive for celiac. I hope that now the situation at home has changed somewhat.

And I want to add too that celiac, especially in someone your age, can go into "remission" at times which means you could eat gluten a year from now & have absolutely no reaction at all --- but that does not mean that damage is not being done to a celiacs guts & the rest of the body.

There are a couple ways you could go with this if you want to find out if you are or are not celiac.

1) You can do a gluten challenge which means eating gluten for a specified time & get the blood work done & an endoscopy.

2)Or maybe you should talk to your parents about seeing your dad's doc who dx'd him. It might be that doc will consider your reactions to gluten along with your dad's dx & do an endoscopy on you to see if there is visible damage to your villi & dx you based on that.

Honestly, since your reactions are not all that bad yet it might be best for you to do the whole thing --- the gluten challenge, celiac blood panel, & endoscopy. Also, if you have siblings they should be tested.

As eatmeat said --- the rash & hives you get could be the early stages of dh which is the skin manifestation of celiac disease. This could also explain why you do not have such strong reactions b/c most of us with dh tend not to have many GI symptoms & even when we do they are not as severe. BUT that does not mean damage is not being done to our guts b/c it is!

Sage, we would welcome your friend as well as your dad if either should decide to join us here. We are always happy to help.smile.gif

Thanks :)

Share this post


Link to post
Share on other sites

Thanks :)

YVW sweets!

Share this post


Link to post
Share on other sites

I might not have Celiac though. I mean based on the fact that my dad has it, do you think i have it? If im only gluten sensitive (non celiac), does eating oats still cause damage? (regular oats).

Oh and ps, I can handle normal gluten-free oats

The truth is... "gluten intolerance" or "celiac" is TOTALLY IRRELEVANT. If you have either one, gluten can harm you...in many, many ways. In fact, MANY people do not experience immediate symptoms, BUT they develop some devastating symptoms and/or diseases... And, you MUST UNDERSTAND that some things will not "get better" or "go away" just because you've realized, by the time you have those problems, and go gluten free.

There is mounting evidence and personal experience to be found (start researching) that supports the thinking that the medical community has a very long way to go in testing, in understanding and treating gluten intolerance.

Please don't make the mistake of thinking that the only thing that "could" happen is just "a little discomfort".

Personally, I believe that the medical community will, finally, realize the seriousness of gluten intolerance AND how damaging it truly is... Sadly, it's not going to be soon...and there are a lot of people who are just going to get sicker and sicker...

Please learn! YOU are, ultimately, the one who is in charge of your health... your future.

Share this post


Link to post
Share on other sites

I would like to add this:

Because of what is currently known, many people think/believe that you will be doing damage to your intestines. This is absolutely true...for some.

For others...not...

You see, when you are gluten intolerant, your body's immune system kicks into overdrive. The immune system attacks the small intestine...hence, the damage.

But...how to explain the people who do not show this "damage"??? And, yet, they develop rashes, neurological problems, joint pain, thyroid diseases, rheumatoid arthritis, lupus, etc, etc, etc. There are some doctors/researchers who are, even, starting to connect diabetes, high blood pressure, heart palpitations, etc.

My point is... Gluten intolerance is autoimmune (triggers the immune system into hyperdrive and it attacks the body because it can't get rid of the real enemy). As a result, many autoimmune; diseases are triggered.

My opinion...based on a lot of reading...

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,916
    • Total Posts
      943,494
  • Member Statistics

    • Total Members
      67,100
    • Most Online
      3,093

    Newest Member
    Deena
    Joined
  • Popular Now

  • Topics

  • Posts

    • So my tTG-IgA result came back negative. Doc did not do the total IgA so I could be in the 2% false negative. However my ferritin continues to fall (at 25 now so getting borderline to need another iron infusion, 6 months ago it was 50) and reflux was keeping me up at night so after the blood test I went on a gluten free and low FODMAP diet. 6 days later my reflux is gone! I had no idea it could work that quickly. I still feel like there is a lump in my esophagus and have a bit of difficulty swallowing (think I still have irritation in that area) but no more acid and regurgitation! Also have not had a single episode of gas or urgency or days with 8 BMs.  It has only been 6 days so maybe I am just having a good spell but am going to continue gluten free and low FODMAP for a month and then see if there are any FODMAP foods I can eat (but not gluten unless my doc decides I should have a biopsy) (I miss pears and apples). I guess the real test is to see if my ferritin levels start to go up-testing again in 6 months. The diet is very restrictive but worth it if it gets rid of the reflux and other symptoms. BTW post-menopausal (and before that I had an IUD for 10 years TMI) so no periods to blame for chronic microcytic/hypochromic anemia. Doc says "that's normal for you, you just don't absorb iron very well".
    • Did you know that there are so many issues and questions surrounding celiac disease that even doctors who specialize in it find that the scientific data changes every six months, and this includes research data, new diagnostic and testing recommendations, and its connections to other diseases and conditions. In fact, many of us who think we have "arrived" and know it all might actually need a refresher course on the disease. View the full article
    • Apologies for my over-reaction.  As the shampoo exposure was only for a couple week or so, I doubt any lab tests would have indicated exposure. Unfortunately, since I didn't have the antibodies, I can only rely on my symptoms to tell me if I've been exposed. I'm fortunate enough that eliminating gluten (and dairy) from my diet completely fixed my problems. I have had no lingering systems, and now that I have been gluten free for a while, when I do get gluten I have a very clear reaction (and a distinct reaction to dairy) that follows a fairly predictable timeline. This has accidentally been tested a couple of times. For example, early on before I was better at reading labels I grabbed some cookies at the grocery store that I thought were gluten free (the company produces both a normal and gluten-free version, and this was before I learned to avoid shared facilities). I had grabbed the wrong bag but I didn't figure it out until about a week of feeling crappy had passed and I went searching for a culprit. Things like this have happened a couple of times, where I accidentally did a blinded experiment on myself. The symptoms are consistent, and resolve once I remove the offending item. So when I recognized my symptoms as the result of gluten, I went looking for a culprit and I found the shampoo and conditioner. I removed them and then I got better.  My problems are largely systemic. I wouldn't be surprised if I don't actually have celiac but some other immune mediated reaction that hasn't been defined, but calling it celiac is the best way to get people to take my needs seriously (which I'm sure you understand). Unfortunately, my problems don't seem to fit into any particular diagnostic bucket, so I've learned not to rely on the official medical terms and just go with what works. I'm lucky to have had doctors who think the same way, else they might have told me that I didn't need to go gluten free once I failed to show clear-cut celiac. Maybe I'm pre-celiac, maybe it's the much maligned NCGS, or it's all related to leaky gut (I am eagerly awaiting the FDA approval of larazotide so that I can get a doctor to give me some, I think it might do me a lot of good). All I know is that when I went gluten and dairy free it literally changed my life.  In general it seems that gluten exposure causes a generalized inflammatory response. I get some inflammation in my gut that manifests as reflux, acid indigestion (what I call "fake hunger"), and a little bit of urgency and unpredictability with regards to bathroom needs, but if that were the only problem, I think I could live with it. I also get headaches, brain fog, my depression/anxiety gets triggered to a scary degree, arthritis, muscle aches, and then, the clincher, muscles spasms in my upper back and neck that have been known to lay me out for a couple of days while I wait for the muscle relaxants to help me heal. The muscle spasms, arthritis and brain fog are the most recognizable and are usually what cue me in that I got glutened, especially the spasms.  Again, sorry for being oversensitive. I should have known better, since this is such a supportive community.  
    • I appreciate your point. However, constancy of my celiac symptoms indicates that I have had the disease for at least three years - while I have never experienced any food allergies in that time. Although I will keep an eye on any emerging allergies, I believe my current fatigue is due to nutritional deficiency, because the only exogenous change in my life style has been the transition to gluten free diet.   Yes, I certainly need to keep a food diary. Thanks again for the advice.
    • In many cases no.....I consume heavy magnesium foods like pumpkin seeds, cocoa nibs etc....and still need 2-3x the dose of magnesium recommendations. Going on more of what poster boy said. You dose magnesium to tolerance with citrate like Natural Vitality Calm you start off small partial doses and slow ramp up....it can hit you hard causing gas and D if you go to quick into it. You dose citrate to tolerance meaning you slowly up your dose til you get loose stools...then back down a bit. You should have vivid dreams with a good dosing....also if it becomes to harsh or you can not handle citrate there is Doctors Best Glycinate...it does not have the gut effects at all...but the dreams and how much it makes you relax is more more felt.   ...with this disease you can have a food intolerance or allergy crop up out of the blue....like no where. You have a autoimmune disease....celiac it effects your immune system and can make it really wonky. Like it seems to always be on guard like a sleep deprived sentry on stim packs...jumps at everything and shoots it. If you get sick, eat something odd or harsh you system might red flag it as a issue for awhile and go bonkers....keep a food diary and try a food rotation in the mean time...OH as a example to this, I was fine with chia seeds last week...I got a cold over the weekend....same bag, same brand same way....withing 30mins I now puke if I eat them...new intolerance.....I also am finding jalapenos/paprika making it sleepy tired....so I am removing them both for a few months from my diet and changing to other sources for fats/fiber and vitamin A/C til I get over that issue.....these things just happen. https://www.mindbodygreen.com/articles/are-food-sensitivities-for-life
  • Upcoming Events