This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.
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What are the major symptoms of celiac disease?
Celiac Disease Symptoms
What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic)
Celiac Disease Screening
Interpretation of Celiac Disease Blood Test Results
Can I be tested even though I am eating gluten free?
How long must gluten be taken for the serological tests to be meaningful?
The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free
Is celiac inherited? Should my children be tested?
Ten Facts About Celiac Disease Genetic Testing
Is there a link between celiac and other autoimmune diseases?
Celiac Disease Research: Associated Diseases and Disorders
Is there a list of gluten foods to avoid?
Unsafe Gluten-Free Food List (Unsafe Ingredients)
Is there a list of gluten free foods?
Safe Gluten-Free Food List (Safe Ingredients)
Gluten-Free Alcoholic Beverages
Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?
Where does gluten hide?
Additional Things to Beware of to Maintain a 100% Gluten-Free Diet
Where can I buy gluten-free stuff?
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King Arthur Flour has excellent mixes and gluten free recipes if you enjoy baking. If you live in a city, there are bound to be bakeries and cafes that make gluten free items and some groceries stores that stock them as well.
You could have the full celiac panel done to see if any other numbers come up high. TTG IGA and IGG, DGP IGA and IGG, EMA.
If your doctor is not a gastroenterologist then you can try going to one. They know what to test for.
You could also simplify your diet and start a food log. Gradually introduce foods and when stomach pains start you can see what you ate in the last two days to cause a problem.
I had the same issue with stomach pain after diagnosis and it turned out to be soy protein that was causing it. I never ate much soy before diagnosis and gluten was keeping me constantly ill so I never realized it was an issue till I stopped going with foods with soy on the suggestion of good freind. Not saying that is the problem with you but thought I would throw it out there as a possibility. If you are eating oats you may want to drop those for a bit also since some of us will react to those even if they are gluten free.
In addition is there any way you can avoid eating oput for a month or so? You may be getting glutened but not enough to show on the TtG. I could be wrong but I think the DGP tests are the preferred ones for checking with dietary compliance. You should also consider dropping dairy for a bit. Add it back in when you are feeling better starting with stuff like hard cheeses, yogurt and butter that have low amounts of lactose.
Hopefully you will be able to figure out what is going on soon and get some relief.
I was diagnosed with celiac 2 years ago and since have been gluten-free. When I started my ttg was 88. I just recently visited the doc because I still seem to suffer from almost daily stomach pain. My ttg came back at 4. The doc suggested I try Metamucil and next week give lactaid a try as I still eat dairy.
The metamucil I took one day and I had such bad stomach pain and loose bowel movements I felt too miserable to try it again. I haven't tried the lactaid yet but in the past I have and didn't see much difference.
Heres the other thing: I do eat out a lot. I try to stick with safe places but every now and then I play the odds. So I usually manage to get sick once a month (lately it's been more)
so I went to the doc and had my ttg level tested to see if my body is still getting gluten and this is why I still feel horrible. But my levels came back at 4, so now I'm just wondering... what the heck? I'm feeling super discouraged and doomed to a life of unexplained stomach pain.
The annoying part is all my dr did is give me the results. Like "oh you're continuing to improve." Ok, but I'm in paid so what's going on? No answers, ever. It seems like I get suggestions, but they never do anything and I'm so fed up with my body. I'm tired of waking up frequently wondering what I could have ate that is bothering me. I had no idea two years later I'd still be struggling. Lately the stomach pain has increased and it's daily now again. I've been taking pepto for it and it helps a bit, but I don't want to live life digging in my purse for pepto everyday.
any advice or suggestions from anyone who has been through this are appreciated.
I get that celiac may not be the only problem but I don't know where to go anymore as I've been searching for 2 years.
I agree that this article is a scare tactic. Looks like this child was starved to death. Note the article states the parents did not seek medical help. Millions of children and adults have food allergies and intolerance but do not have this happen. Following a medical diet is a healthy choice for quality and quantity of life. These types of articles have no value in this place of healing.